Experiencing the New Genetics: Family and Kinship on the Medical Frontier

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Experiencing the New Genetics This page intentionally left blank Experiencing the New Genetics Family and Kinship on the Medical Frontier Kaja Finkler University of Pennsylvania Press Philadelphia PENN Copyright © 2000 University of Pennsylvania Press All rights reserved Printed in the United States of America on acid-free paper 1 0 9 8 7 6 5 4 3 2 1 Published by University of Pennsylvania Press Philadelphia, Pennsylvania 19104-4011 Library of Congress Cataloging-in-Publication Data Finklcr, Kaja. Experiencing the newgenetics :family and kinship on the medical frontier / Kaja Finkler. p. cm. Includes bibliographical references and index. ISBN 0-8122-3538-X - ISBN 0-8122-1720-9 (pbk.) 1. Family. 2. Heredity, Human —Social aspects. 3. Kinship. 4. Medical genetics —Social aspects. 5. Family —United States. T.Title. GN480.2 .F56 2000 306.4'61- dc21 99-056639 In memory of all my loved ones and the multitude of others who perished on pyres fueled by an ideology of biological determinism This page intentionally left blank ...