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index aaronson, ian, 227n12, 231n7 achondroplasia, 188–189 aCt UP, 42 adoption, 3, 4; closed, 91, 101–102, 107; secrecy and, 101–102, 107, 223n6, 225nn19–20 advocates for informed Choice, 232n11 “age of gonads,” 19, 23, 213n3 ahmadu, Fuambai, 127, 129, 227n16 ain, Michael, 188 alciabiades, 196 alcoff, Linda Martín, 224n11 alexander, tamara, 219n17 allison, David, 72 alsop, Peter, 60 american academy of Pediatrics, 1, 63, 110–111 anderson, elving, 136 androgen insensitivity syndrome (aiS), 56, 198– 199, 215n15, 215n19 androgen insensitivity Syndrome Support group (aiSSg-US), 198 annas, george, 67 arendt, Hannah, 178, 211n6 aristophanes, 79 aristotle, 155, 164, 168, 174 asch, adrienne, 107–108, 222n32 aspinall, Cassandra, 90 auchus, richard, 213n1 autonomy: associated with kantian philosophy, 176–177, 233n3; as bioethical principle, 9, 108, 134–135, 138–139, 151, 155, 162, 175–176, 187, 191, 203, 207, 219n4, 230n2; compromised by dependency , 54–55, 232n12; “familial” or “parental ,” 155, 175, 180–181, 183, 187, 189, 190, 203, 230n3; as ground of human dignity, 176–177, 179–183, 185, 219n4, 234n4; as ground of human rights, 175–176, 184, 207, 232n12; as ideal, 162, 173, 175, 178, 182–184, 187, 232n12; identified with dignity, 14, 162, 178, 181, 183–184, 190, 233n3. See also bioethics: principles of; vulnerability Banks, Sarah, 230n3 Barbin, Herculine, 22 Barnwell, Ysaye Maria, 224n11 Bartter, Frederick, 30 Baskin, Larry, 228n11 Beecher, Henry, 212n7 Belmont Report, 9, 212nn9–10, 230n2 Bergoffen, Debra, 18, 175–182, 186–188, 191 Bhatia, Vijayalkshmi, 121–123, 125, 232n10 Biale, rachel, 117 Biddle, Jennifer, 74 Bing, elizabeth, 11, 217n2 bioethics: history of, 2, 6–10, 14, 212n10; influence of kant’s moral theory, 108, 120, 176, 183–186, 203; and philosophy, 6, 71, 123, 155–156, 176– 177, 193, 203, 211n5; principles of, 8–9, 70, 74, 90, 111, 123–124, 159, 162, 175, 212n9, 220n10, 230n2, 234n3; relationship to medical practice , 9, 68. See also autonomy; dignity; ethics; human rights Bioethics and intersex group. See german network DSD/intersex Blair Bell, William, 213n3 Boddy, Janice, 129 body schema, 17, 90, 92–93, 108 Bourdieu, Pierre, 15, 16, 17, 45–47, 63, 150, 218n5. See also habitus Brown, isaac Baker, 214n10 Budd, Linda, 167 Butler, Judith: Gender Trouble, 4; “MerleauPonty and the touch of Malebranche,” 94– 95; The Psychic Life of Power, 80–81 Cabral, Mauro, 235n5 Callahan, Daniel, 9 Cameron, David, 216n22, 219n17 Canguilhem, georges, 31–33 Caplan, arthur, 135–139, 141, 228n3 care of the self, 168–170, 173, 196–198, 234n1; and Christianity, 233n15; and parrhesia, 197–198, 200; and self-knowledge, 201 CareS Foundation, 214 Carman, taylor, 92 Cassatt, Mary, 171–173 Center for the Study of Value and the Sciences of Man, 8 Chase, Cheryl, 10–11, 110, 132, 134, 227n19, 235n5; 255 256 | index and change in nomenclature, 39, 215n18; and criticism of the standard of care, 38, 40, 133, 216n21; and intersex Society of north america, 5, 38, 41, 48, 215n18; and the “problem” of intersex , 15, 66–67, 100–101 Chomsky, noam, 7 clitorectomy, 49, 56, 116, 218n8; comparison between “traditional” and “medical,” 125–127, 131–132, 228n19, 219n18; harms resulting from, 16, 90; history of at Johns Hopkins University Hospital, 28–29; “nerve-sparing,” 145. See also genital normalization surgery; outcomes clitoroplasty, 218n8. See also clitorectomy Cohen, Deborah, 225n19 Colapinto, John, 36, 215n17 congenital adrenal hyperplasia (CaH), 14, 15, 21, 40, 48, 49, 52, 59, 60, 69, 112, 122, 142, 146, 149, 165, 167, 213n1, 234n7; history of treatment, 24–27, 30–33, 112–113, 116, 200, 214n9, 225n1; as model for care of intersex, 21, 28, 37; risks to health associated with, 22, 24–27, 42, 43, 48, 52, 54, 115, 116, 146–147, 214n7, 225n2, 229n11 “Consensus Statement on Management of intersex Conditions” (2006), 13, 21, 133, 134, 145, 155, 191, 195, 231n7; acknowledgement of harm in, 89, 157–158; change in nomenclature announced in, 39, 157, 215n18, 219n1; change in standard of care, 18, 38–39, 101, 140, 145, 157, 207, 208; discussion of normalizing genital surgery in, 43, 89, 157–158, 229n10 Cooley, Charles Horton, 101 Cornell, Drucilla, 96 corporeal generosity, 85, 87, 223n32 cortisone, 24–26, 28, 30 Coventry, Martha, 219n17 Crigler, John, 127 crime against humanity, 176, 178 Daaboul, Jorge, 19–21, 23 Declaration of Helsinki, 212n9. See also human rights Devore, Howard, 219n17 diabetes, type i, 27, 146, 147 Diamond, Milton, 36, 160–161, 205, 232nn9–11 dignity, 77, 122, 127; articulated in iCtY and iCtr, 176, 179–180, 182–184; associated with...

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