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Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field
- Journal of Health Care for the Poor and Underserved
- Johns Hopkins University Press
- Volume 30, Number 4, November 2019, Supplement
- pp. 21-26
- 10.1353/hpu.2019.0111
- Article
- Additional Information
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Summary:
"Changing the conversation" around genomic research with U.S. tribal communities may lead to new pathways to address persistent health disparities. Restoring trustworthiness between researchers and communities entails a willingness to listen to Indigenous voices, being flexible, and refining existing policies and frameworks to adapt to communities' needs.