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Illness and the Limits of Expression
“Kathlyn Conway opens primordial questions about the shattering events of illness through close readings of selected illness narratives, proposing that only writing of a daring kind can utter the knowledge of the self-telling body. Wielding her ferocious intellect and braving exposure to self and other, Conway makes original discoveries about writing and illness and, more stunningly, about writing and life. Not a book about illness, this is a book about writing and being. It is taut, brave, unequalled in our scholarship, and true. Conway joins our most powerful investigators of the human predicament of mortality, helping us to see, helping us to live.”—Rita Charon, Columbia University, Program in Narrative Medicine
Published accounts of illness and disability often emphasize hope and positive thinking: the woman who still looked beautiful after losing her hair, the man who ran five miles a day during chemotherapy. This acclaimed examination of the genre of the illness narrative questions that upbeat approach. Author Kathlyn Conway, a three-time cancer survivor and herself the author of an illness memoir, believes that the triumphalist approach to writing about illness fails to do justice to the shattering experience of disease. By wrestling with the challenge of writing about the reality of serious illness and injury, she argues, writers can offer a truer picture of the complex relationship between body and mind.
Story of Sensitivity Training and the Encounter Movement
Sensitivity training, T-Groups, and encounter groups have become a way of life. Beyond Words traces the history of this movement, the background of its successes, its varieties, and its failures. Dr. Back's approach is neither one of wide-eyed admiration nor hostility. Instead, he has written a book that provides the first long, hard look at sensitivity training as a social phenomenon.
From its fortuitous beginnings the movement is followed through its developments at Bethel, its growth across the country, its new centers in California, its spread to Europe. The novelty of this movement, an almost religious exercise based on the scientific ethos, is related to the peculiar conditions of the last quarter century. The movement has acquired its own mythos. Dr. Back examines the interplay of the conflicting aims of self-expression and change, and shows how these contradictory aims have affected the ramifications of the movement in theory, in management, in recreation, and in education. Results emerging from studies on effects of sensitivity training indicate a recurrent pattern of great immediate emphasis followed by little permanent beneficial effect.
Finally, Beyond Words assesses the overall impact of the movement, its relation to science, its possible changes, and its portent as a symptom of the state of society.
Dr. Back examines the interplay of the conflicting aims of self-expression and change, and shows how these contradictory aims have affected the ramifications of the movement in theory, in management, in recreation, and in education.
A Social and Political History of the Controversial Mammogram
In 2009, an influential panel of medical experts ignited a controversy when they recommended that most women should not begin routine mammograms to screen for breast cancer until the age of fifty, reversing guidelines they had issued just seven years before when they recommended forty as the optimal age to start getting mammograms. While some praised the new recommendation as sensible given the smaller benefit women under fifty derive from mammography, many women's groups, health care advocates, and individual women saw the guidelines as privileging financial considerations over women's health and a setback to decades-long efforts to reduce the mortality rate of breast cancer.
In The Big Squeeze, Dr. Handel Reynolds, a practicing radiologist, notes that this episode was only the most recent controversy in the turbulent history of mammography since its introduction in the early 1970s. In a book written for the millions of women who face the decision about whether to get a mammogram, health professionals interested in cancer screening, and public health policymakers, Reynolds shows how pivotal decisions made during mammography's initial launch made it all but inevitable that the test would be contentious. He describes how, at several key points in its history, the emphasis on mammography screening as a fundamental aspect of women's preventive health care coincided with social and political developments, from the women's movement in the early 1970s to breast cancer activism in the 1980s and '90s.
At the same time, aggressive promotion of mammography made the screening tool the cornerstone of a huge new industry. Taking a balanced approach to this much-disputed issue, Reynolds addresses both the benefits and risks of mammography, charting debates, for example, that have weighed the early detection of aggressively malignant tumors against unnecessary treatments resulting from the identification of slow-growing and non-life-threatening cancers. The Big Squeeze, ultimately, helps to evaluate the ongoing public health controversies surrounding mammography and provides a clear understanding of how mammography achieved its current primacy in cancer screening.
A View from the Southeast
Investigations of skeletal remains from key archaeological sites reveal new data and offer insights on prehistoric life and health in the
The shift from foraging to farming had important health consequences for prehistoric peoples, but variations in health existed
within communities that had made this transition. This new collection draws on the rich bioarchaeological record of the Southeastern United States
to explore variability in health and behavior within the age of agriculture. It offers new perspectives on human adaptation to various geographic and
cultural landscapes across the entire Southeast, from Texas to Virginia, and presents new data from both classic and little-known sites.
The contributors question the reliance on simple cause-and-effect relationships in human health and behavior by addressing such key bioarchaeological issues as disease history and epidemiology, dietary composition and sufficiency, workload stress, patterns of violence, mortuary practices, and biological consequences of European contact. They also advance our understanding of agriculture by showing that uses of maize were more varied than has been previously supposed.
Representing some of the best work being done today by physical anthropologists, this volume provides new insights into human adaptation for both archaeologists and osteologists. It attests to the heterogeneous character of Southeastern societies during the late prehistoric and early historic periods while effectively detailing the many factors that have shaped biocultural evolution.
Contributors include: Patricia S. Bridges, Elizabeth Monaham Driscoll, Debra L. Gold, Dale L. Hutchinson, Keith P. Jacobi, Patricia M. Lambert, Clark Spencer Larsen, Lynette Norr, Mary Lucas Powell, Marianne Reeves, Lisa Sattenspiel, Margaret J. Schoeninger, Mark R. Schurr, Leslie E. Sering, David S. Weaver, and Matthew A. Williamson
Combining cognitive and evolutionary research with traditional humanist methods, Nancy Easterlin here demonstrates how a biocultural perspective in theory and criticism opens up new possibilities for literary interpretation. Easterlin maintains that the goal of literary interpretation is still of central intellectual and social value. Taking an open yet judicious approach, she argues, however, that literary interpretation stands to gain dramatically from a fair-minded and creative application of cognitive and evolutionary research. This work does just that, expounding a biocultural method that charts a middle course between overly reductive approaches to literature and traditionalists who see the sciences as a threat to the humanities. Easterlin applies her biocultural method to four major subfields within literary studies: new historicism, ecocriticism, cognitive approaches, and evolutionary approaches. After a thorough review of each subfield, she reconsiders it in light of relevant research in cognitive and evolutionary psychology and provides a textual analysis of literary works from the romantic era to the present, including William Wordsworth’s “Simon Lee” and the Lucy poems, Mary Robinson’s “Old Barnard,” Samuel Taylor Coleridge’s “Dejection: An Ode,” D. H. Lawrence’s The Fox, Jean Rhys’s Wide Sargasso Sea, and Raymond Carver’s “I Could See the Smallest Things.” A Biocultural Approach to Literary Theory and Interpretation offers a fresh and reasoned approach to literary studies that at once preserves the central importance that interpretation plays in the humanities and embraces the exciting developments of the cognitive sciences.
A Study in Culture, Ethnography, and Religion
"Dr. Farhat Moazam has written a wonderful book, based on her extraordinary first-hand study.... [S]he is an exceptionally gifted and evocative writer. Her book not only has the attributes of a superb piece of intellectual work, but it has literary artistic merit." -- Renee C. Fox, Annenberg Professor Emerita of the Social Sciences at the University of Pennsylvania
This is an ethnographic study of live, related kidney donation in Pakistan, based on Farhat Moazam's participant-observer research conducted at a public hospital. Her narrative is both a "thick" description of renal transplant cases and the cultural, ethical, and family conflicts that accompany them, and an object lesson in comparative bioethics.
An Introduction to Natural Law Bioethics
Bioethics and the Human Goods offers students and general readers a brief introduction to bioethics from a "natural law" philosophical perspective. This perspective, which traces its origins to classical antiquity, has profoundly shaped Western ethics and law and is enjoying an exciting renaissance. While compatible with much in the ethical thought of the great religions, it is grounded in reason, not religion. In contrast to the currently dominant bioethical theories of utilitarianism and principlism, the natural law approach offers an understanding of human flourishing grounded in basic human goods, including life, health, friendship, and knowledge, and in the wrongness of intentionally turning against, or neglecting, these goods.
The book is divided into two sections: Foundations and Issues. Foundations sketches a natural law understanding of the important ethical principles of autonomy, non-maleficence, beneficence, and justice and explores different understandings of "personhood" and whether human embryos are persons. Issues applies a natural law perspective to some of the most controversial debates in contemporary bioethics at the beginning and end of life: research on human embryos, abortion, infanticide, euthanasia, the withdrawal of tube-feeding from patients in a "persistent vegetative state," and the definition of death. The text is completed by appendices featuring personal statements by Alfonso Gómez-Lobo on the status of the human embryo and on the definition and determination of death.
The Political Framework of Bioethics Decision Making
Issues concerning patients' rights are at the center of bioethics, but the political basis for these rights has rarely been examined. In Bioethics in a Liberal Society: The Political Framework of Bioethics Decision Making, Thomas May offers a compelling analysis of how the political context of liberal constitutional democracy shapes the rights and obligations of both patients and health care professionals. May focuses on how a key feature of liberal society—namely, an individual's right to make independent decisions—has an impact on the most important relational facets of health care, such as patients' autonomy and professionals' rights of conscience. Although a liberal political framework protects individual judgments, May asserts that this right is based on the assumption of an individual's competency to make sound decisions. May uses case studies to examine society's approach to medical decision making when, for reasons ranging from age to severe mental disorder, a person lacks sufficient competency to make independent and fully informed choices. To protect the autonomy of these vulnerable patients, May emphasizes the need for health care ethics committees and ethics consultants to help guide the decision-making process in clinical settings. Bioethics in a Liberal Society is essential reading for all those interested in understanding how bioethics is practiced within our society.
A Guide to Shaping Shared Solutions, Revised and Expanded Edition
Expanded by two-thirds from the 2004 edition, the new edition features two new role plays, a new chapter on how to write chart notes, and a discussion of new understandings of the role of the clinical ethics consultant. **** Bioethics Mediation offers stories about patients, families, and health care providers enmeshed in conflict as they wrestle with decisions about life and death. It provides guidance for those charged with supporting the patient’s traditional and religious commitments and personal wishes. Today’s medical system, without intervention, privileges those within shared cultures of communication and disadvantages those lacking power and position, such as immigrants, the poor, and nonprofessionals. This book gives clinical ethics consultants, palliative care providers, and physicians, nurses, and other medical staff the tools they need to understand and manage conflict while respecting the values of patients and family members. Conflicts come in different guises, and the key to successful resolution is early identification and intervention. Every bioethics mediator needs to be prepared with skills to listen, “level the playing field,” identify individual interests, explore options, and help craft a “principled resolution”—a consensus that identifies a plan aligned with accepted ethical principles, legal stipulations, and moral rules and that charts a clear course of future intervention. The organization of the book makes it ideal for teaching or as a handbook for the practitioner. It includes actual cases, modified to protect the privacy of patients, providers, and institutions; detailed case analyses; tools for step-by-step mediation; techniques for the mediator; sample chart notes; and a set of actual role plays with expert mediator and bioethics commentaries. The role plays include: • discharge planning for a dying patient • an at-risk pregnancy • HIV and postsurgical complications in the ICU • treatment for a dying adolescent • dialysis and multiple systems failure