Narrative Inquiry in Bioethics

Editor's Note

Narrative Symposium
Pediatric Access to Electronic Health Information:
Stories from Adolescents and Parents

Introduction

Full Collection of Personal Narratives

Personal Narratives

Pediatric Access to Electronic Health Information: A Parent Perspective

Leslie Sanderson

pp. 4-6

DOI: https://doi.org/10.1353/nib.2025.a957189

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Meeting in the Middle

Dana Wolinsky, Balin

pp. 6-8

DOI: https://doi.org/10.1353/nib.2025.a957190

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Openness and Transparency: To Whom Is Access Owed?

Casper S. White

pp. 8-10

DOI: https://doi.org/10.1353/nib.2025.a957191

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The Red Binder: A Tale of Special Care and Improving Coordination of Care

Melissa Heidelberg

pp. 11-12

DOI: https://doi.org/10.1353/nib.2025.a957192

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Good Health, Low Engagement: EHI’s Limited Role in the Life of My Healthy Teen

Michelle Stacy

pp. 12-13

DOI: https://doi.org/10.1353/nib.2025.a957193

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Access Denied, Voices Unheard: Advocating for Parental Access to EHI

Jessica Friedel

p. 14

DOI: https://doi.org/10.1353/nib.2025.a957194

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Privacy, Trust, and Parental Guidance in Teen Healthcare

Corinne Merrill, E.M.

pp. 15-17

DOI: https://doi.org/10.1353/nib.2025.a957195

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Empowering Partnership: Parental Involvement in Managing Immunodeficiency

Sharon Head, Connor Head

pp. 17-19

DOI: https://doi.org/10.1353/nib.2025.a957196

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Empowerment or Overwhelm: The Double-Edged Sword of Patient Portal Access

Hayley Finch-Genschorck

pp. 19-20

DOI: https://doi.org/10.1353/nib.2025.a957197

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Empowering Parents: The Critical Need to Access Electronic Health Information for Children With Special Needs

Amanda Dunkin, Stephen Dunkin

pp. 20-22

DOI: https://doi.org/10.1353/nib.2025.a957198

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A Young Adult’s Perspective on Patient Portals

Maanya Tarnal

pp. 22-23

DOI: https://doi.org/10.1353/nib.2025.a957199

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One Busy Mom’s Perspective on Health Privacy Changes at Age 12

Anonymous One

pp. 23-26

DOI: https://doi.org/10.1353/nib.2025.a957200

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Commentaries

Research Article

Case Study