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Table of Contents

  1. Editors’ Note
  2. James M. DuBois, Ana S. Ilitis, Susan G. DuBois
  3. p. v
  4. DOI: https://doi.org/10.1353/nib.2015.0067
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Narrative Symposium: Patient and Research Participant experiences with Genetic Testing

  1. Introduction
  2. James M. DuBois
  3. pp. 201-203
  4. DOI: https://doi.org/10.1353/nib.2015.0061
  5. restricted access

Full Collection of Personal Narratives

  1. Narrative Symposium: Patient and Research Participant experiences with Genetic Testing
  2. Dena Davis, Sarah Foye, Sarah M. Hartz, Carla C. Keirns, Christopher M. Lietz, Anneke Lucassen, Jacqueline Savard, KA Strong, Kiri Sunde, Michael J. Young, Anonymous One, Anonymous Two
  3. pp. 203-228
  4. DOI: https://doi.org/10.1353/nib.2015.0092
  5. restricted access

Personal Narratives

  1. Ethical Issues in Interpretation of Risk, from the Perspective of a Research Subject
  2. Dena Davis
  3. pp. 203-206
  4. DOI: https://doi.org/10.1353/nib.2015.0080
  5. restricted access
  1. Whole Genome Sequencing Solved Our Family’s Genetic Mystery: Titin
  2. Sarah Foye
  3. pp. 206-208
  4. DOI: https://doi.org/10.1353/nib.2015.0081
  5. restricted access
  1. My Experience with Direct to Consumer Genetic Testing
  2. Sarah M. Hartz
  3. pp. 208-210
  4. DOI: https://doi.org/10.1353/nib.2015.0082
  5. restricted access
  1. Illusions of Certainty
  2. Carla C. Keirns
  3. pp. 210-212
  4. DOI: https://doi.org/10.1353/nib.2015.0083
  5. restricted access
  1. 23andMe and Me
  2. Christopher M. Lietz
  3. pp. 212-214
  4. DOI: https://doi.org/10.1353/nib.2015.0084
  5. restricted access
  1. I Had Genetic Testing for Alzheimer’s Disease Without My Consent
  2. Anneke Lucassen
  3. pp. 214-216
  4. DOI: https://doi.org/10.1353/nib.2015.0085
  5. restricted access
  1. A Test Unlike Any Other
  2. Jacqueline Savard
  3. pp. 216-218
  4. DOI: https://doi.org/10.1353/nib.2015.0086
  5. restricted access
  1. Becoming the “Subject” of My Own Study
  2. KA Strong
  3. pp. 219-220
  4. DOI: https://doi.org/10.1353/nib.2015.0087
  5. restricted access
  1. “Welcome to You”: A Reflection on Genetic Self-Exploration
  2. Kiri Sunde
  3. pp. 220-222
  4. DOI: https://doi.org/10.1353/nib.2015.0088
  5. restricted access
  1. Peering into Vulnerable Genes: Genetic Risk and Population Screening
  2. Michael J. Young
  3. pp. 222-224
  4. DOI: https://doi.org/10.1353/nib.2015.0089
  5. restricted access
  1. The Impact of My Genetic Testing on My Father
  2. Anonymous One
  3. pp. 224-226
  4. DOI: https://doi.org/10.1353/nib.2015.0090
  5. open access
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  1. A Sister, a Father and a Son: Autism, Genetic Testing, and Impossible Decisions
  2. Anonymous Two
  3. pp. 226-228
  4. DOI: https://doi.org/10.1353/nib.2015.0091
  5. restricted access

Commentary

  1. Personal Narratives of Genetic Testing: Expectations, Emotions, and Impact on Self and Family
  2. Emily E. Anderson, Katherine Wasson
  3. pp. 229-235
  4. DOI: https://doi.org/10.1353/nib.2015.0062
  5. restricted access
  1. In Guanine We Trust: Genetic Testing and the Sense of Coherence
  2. James M. DuBois, Alison L. Antes
  3. pp. 237-244
  4. DOI: https://doi.org/10.1353/nib.2015.0063
  5. restricted access
  1. Appreciating Uncertainty and Personal Preference in Genetic Testing
  2. Adam Kadlac
  3. pp. 245-249
  4. DOI: https://doi.org/10.1353/nib.2015.0064
  5. restricted access

Research Article

  1. Physician Religion and End–of–Life Pediatric Care: A Qualitative Examination of Physicians’ Perspectives
  2. Lori Brand Bateman, Jeffrey Michael Clair
  3. pp. 251-269
  4. DOI: https://doi.org/10.1353/nib.2015.0065
  5. restricted access

Case Studies

  1. System Failure: No Surgeon To Be Found
  2. Carol Bayley
  3. pp. 271-277
  4. DOI: https://doi.org/10.1353/nib.2015.0066
  5. restricted access
  1. Ethical Dilemmas Relating to the Management of a Newborn with Down Syndrome and Severe Congenital Heart Disease in a Resource-Poor Setting
  2. Ama K. Edwin, Frank Edwin, Summer J. McGee
  3. pp. 277-286
  4. DOI: https://doi.org/10.1353/nib.2015.0060
  5. restricted access
  1. Ethical Issues in Interpretation of Risk, from the Perspective of a Research Subject
  2. Dena Davis
  3. pp. 203-206
  4. DOI: https://doi.org/10.1353/nib.2015.0073
  5. restricted access
  1. Whole Genome Sequencing Solved Our Family’s Genetic Mystery: Titin
  2. Sarah Foye
  3. pp. 206-208
  4. DOI: https://doi.org/10.1353/nib.2015.0075
  5. restricted access
  1. My Experience with Direct to Consumer Genetic Testing
  2. Sarah M. Hartz
  3. pp. 208-210
  4. DOI: https://doi.org/10.1353/nib.2015.0077
  5. restricted access
  1. Illusions of Certainty
  2. Carla C. Keirns
  3. pp. 210-212
  4. DOI: https://doi.org/10.1353/nib.2015.0079
  5. restricted access
  1. 23andMe and Me
  2. Christopher M. Lietz
  3. pp. 212-214
  4. DOI: https://doi.org/10.1353/nib.2015.0069
  5. restricted access
  1. I Had Genetic Testing for Alzheimer’s Disease Without My Consent
  2. Anneke Lucassen
  3. pp. 214-216
  4. DOI: https://doi.org/10.1353/nib.2015.0071
  5. restricted access
  1. A Test Unlike Any Other
  2. Jacqueline Savard
  3. pp. 216-218
  4. DOI: https://doi.org/10.1353/nib.2015.0072
  5. restricted access
  1. Becoming the “Subject” of My Own Study
  2. KA Strong
  3. pp. 219-220
  4. DOI: https://doi.org/10.1353/nib.2015.0074
  5. restricted access
  1. “Welcome to You”: A Reflection on Genetic Self-Exploration
  2. Kiri Sunde
  3. pp. 220-222
  4. DOI: https://doi.org/10.1353/nib.2015.0076
  5. restricted access
  1. Peering into Vulnerable Genes: Genetic Risk and Population Screening
  2. Michael J. Young
  3. pp. 222-224
  4. DOI: https://doi.org/10.1353/nib.2015.0078
  5. restricted access
  1. The Impact of My Genetic Testing on My Father
  2. Anonymous One
  3. pp. 224-226
  4. DOI: https://doi.org/10.1353/nib.2015.0068
  5. restricted access
  1. A Sister, a Father and a Son: Autism, Genetic Testing, and Impossible Decisions
  2. Anonymous Two
  3. pp. 226-228
  4. DOI: https://doi.org/10.1353/nib.2015.0070
  5. restricted access