In this Issue

Table of Contents

Editors’ Note

James M. DuBois, Ana S. Ilitis, Susan G. DuBois
p. v
DOI: https://doi.org/10.1353/nib.2015.0067
restricted access

Narrative Symposium: Patient and Research Participant experiences with Genetic Testing

Introduction

James M. DuBois
pp. 201-203
DOI: https://doi.org/10.1353/nib.2015.0061
restricted access

Full Collection of Personal Narratives

Narrative Symposium: Patient and Research Participant experiences with Genetic Testing

Dena Davis, Sarah Foye, Sarah M. Hartz, Carla C. Keirns, Christopher M. Lietz, Anneke Lucassen, Jacqueline Savard, KA Strong, Kiri Sunde, Michael J. Young, Anonymous One, Anonymous Two
pp. 203-228
DOI: https://doi.org/10.1353/nib.2015.0092
restricted access

Personal Narratives

Ethical Issues in Interpretation of Risk, from the Perspective of a Research Subject

Dena Davis
pp. 203-206
DOI: https://doi.org/10.1353/nib.2015.0080
restricted access

Whole Genome Sequencing Solved Our Family’s Genetic Mystery: Titin

Sarah Foye
pp. 206-208
DOI: https://doi.org/10.1353/nib.2015.0081
restricted access

My Experience with Direct to Consumer Genetic Testing

Sarah M. Hartz
pp. 208-210
DOI: https://doi.org/10.1353/nib.2015.0082
restricted access

Illusions of Certainty

Carla C. Keirns
pp. 210-212
DOI: https://doi.org/10.1353/nib.2015.0083
restricted access

23andMe and Me

Christopher M. Lietz
pp. 212-214
DOI: https://doi.org/10.1353/nib.2015.0084
restricted access

I Had Genetic Testing for Alzheimer’s Disease Without My Consent

Anneke Lucassen
pp. 214-216
DOI: https://doi.org/10.1353/nib.2015.0085
restricted access

A Test Unlike Any Other

Jacqueline Savard
pp. 216-218
DOI: https://doi.org/10.1353/nib.2015.0086
restricted access

Becoming the “Subject” of My Own Study

KA Strong
pp. 219-220
DOI: https://doi.org/10.1353/nib.2015.0087
restricted access

“Welcome to You”: A Reflection on Genetic Self-Exploration

Kiri Sunde
pp. 220-222
DOI: https://doi.org/10.1353/nib.2015.0088
restricted access

Peering into Vulnerable Genes: Genetic Risk and Population Screening

Michael J. Young
pp. 222-224
DOI: https://doi.org/10.1353/nib.2015.0089
restricted access

The Impact of My Genetic Testing on My Father

Anonymous One
pp. 224-226
DOI: https://doi.org/10.1353/nib.2015.0090
open access

A Sister, a Father and a Son: Autism, Genetic Testing, and Impossible Decisions

Anonymous Two
pp. 226-228
DOI: https://doi.org/10.1353/nib.2015.0091
restricted access

Commentary

Personal Narratives of Genetic Testing: Expectations, Emotions, and Impact on Self and Family

Emily E. Anderson, Katherine Wasson
pp. 229-235
DOI: https://doi.org/10.1353/nib.2015.0062
restricted access

In Guanine We Trust: Genetic Testing and the Sense of Coherence

James M. DuBois, Alison L. Antes
pp. 237-244
DOI: https://doi.org/10.1353/nib.2015.0063
restricted access

Appreciating Uncertainty and Personal Preference in Genetic Testing

Adam Kadlac
pp. 245-249
DOI: https://doi.org/10.1353/nib.2015.0064
restricted access

Research Article

Physician Religion and End–of–Life Pediatric Care: A Qualitative Examination of Physicians’ Perspectives

Lori Brand Bateman, Jeffrey Michael Clair
pp. 251-269
DOI: https://doi.org/10.1353/nib.2015.0065
restricted access

Case Studies

System Failure: No Surgeon To Be Found

Carol Bayley
pp. 271-277
DOI: https://doi.org/10.1353/nib.2015.0066
restricted access

Ethical Dilemmas Relating to the Management of a Newborn with Down Syndrome and Severe Congenital Heart Disease in a Resource-Poor Setting

Ama K. Edwin, Frank Edwin, Summer J. McGee
pp. 277-286
DOI: https://doi.org/10.1353/nib.2015.0060
restricted access

Ethical Issues in Interpretation of Risk, from the Perspective of a Research Subject

Dena Davis
pp. 203-206
DOI: https://doi.org/10.1353/nib.2015.0073
restricted access

Whole Genome Sequencing Solved Our Family’s Genetic Mystery: Titin

Sarah Foye
pp. 206-208
DOI: https://doi.org/10.1353/nib.2015.0075
restricted access

My Experience with Direct to Consumer Genetic Testing

Sarah M. Hartz
pp. 208-210
DOI: https://doi.org/10.1353/nib.2015.0077
restricted access

Illusions of Certainty

Carla C. Keirns
pp. 210-212
DOI: https://doi.org/10.1353/nib.2015.0079
restricted access

23andMe and Me

Christopher M. Lietz
pp. 212-214
DOI: https://doi.org/10.1353/nib.2015.0069
restricted access

I Had Genetic Testing for Alzheimer’s Disease Without My Consent

Anneke Lucassen
pp. 214-216
DOI: https://doi.org/10.1353/nib.2015.0071
restricted access

A Test Unlike Any Other

Jacqueline Savard
pp. 216-218
DOI: https://doi.org/10.1353/nib.2015.0072
restricted access

Becoming the “Subject” of My Own Study

KA Strong
pp. 219-220
DOI: https://doi.org/10.1353/nib.2015.0074
restricted access

“Welcome to You”: A Reflection on Genetic Self-Exploration

Kiri Sunde
pp. 220-222
DOI: https://doi.org/10.1353/nib.2015.0076
restricted access

Peering into Vulnerable Genes: Genetic Risk and Population Screening

Michael J. Young
pp. 222-224
DOI: https://doi.org/10.1353/nib.2015.0078
restricted access

The Impact of My Genetic Testing on My Father

Anonymous One
pp. 224-226
DOI: https://doi.org/10.1353/nib.2015.0068
restricted access

A Sister, a Father and a Son: Autism, Genetic Testing, and Impossible Decisions

Anonymous Two
pp. 226-228
DOI: https://doi.org/10.1353/nib.2015.0070
restricted access