In this Issue

Table of Contents

Editors' Note

Editors’ Note

James M. DuBois, Ana S. Ilitis, Susan G. DuBois
p. v
DOI: https://doi.org/10.1353/nib.2014.0001
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Narrative Symposium

Introduction

Confronting Pediatric Brain Tumors: Parent Stories

Gigi McMillan
pp. 1-3
DOI: https://doi.org/10.1353/nib.2014.0006
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Personal Narratives

A Bittersweet Score: A Father’s Account of His Family’s 20-Year Journey After a Pediatric Brain Tumor Diagnosis

Christopher Riley
pp. 3-6
DOI: https://doi.org/10.1353/nib.2014.0011
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From Normal to Nightmare

Brandi Wecks
pp. 6-9
DOI: https://doi.org/10.1353/nib.2014.0015
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Second Guessing

Anonymous One
pp. 9-11
DOI: https://doi.org/10.1353/nib.2014.0019
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Things Are NOT Okay

Lynne Hillard
pp. 11-13
DOI: https://doi.org/10.1353/nib.2014.0023
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Advocates, Not Problem Parents

Anonymous Two
pp. 13-16
DOI: https://doi.org/10.1353/nib.2014.0027
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What Now?

Mike Abell
pp. 16-18
DOI: https://doi.org/10.1353/nib.2014.0004
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Down the Medical Rabbit Hole

Anonymous Three
pp. 18-21
DOI: https://doi.org/10.1353/nib.2014.0009
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The Road to Understanding and Acceptance of the Late Effects of Pediatric Brain Tumors and Treatment

Jeanne Carlson
pp. 21-23
DOI: https://doi.org/10.1353/nib.2014.0013
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Family, Friends, and Cancer: The Overwhelming Effects of Brain Cancer on a Child’s Life

Lynne Scheumann
pp. 23-25
DOI: https://doi.org/10.1353/nib.2014.0017
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Over the Years

Kimberly Rocker
pp. 25-27
DOI: https://doi.org/10.1353/nib.2014.0021
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Prepping for the Day You Hope Never Arrives: Facing Recurrence

Terra Trevor
pp. 27-30
DOI: https://doi.org/10.1353/nib.2014.0025
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Not the End We Planned For

Anonymous Four
pp. 30-31
DOI: https://doi.org/10.1353/nib.2014.0002
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Ice Cream for Breakfast

Michelle Methven
pp. 31-33
DOI: https://doi.org/10.1353/nib.2014.0007
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Personal Narratives (Web Only Content)

Ethan’s Gift

Michelle Burgess
pp. E1-E2
DOI: https://doi.org/10.1353/nib.2014.0012
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How I Hate You, Cancer

Claire Yar
pp. E12-E14
DOI: https://doi.org/10.1353/nib.2014.0005
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Life in Limbo

M. Chiu
pp. E2-E4
DOI: https://doi.org/10.1353/nib.2014.0016
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My Lost Survivor

Virginia Hammond
pp. E4-E6
DOI: https://doi.org/10.1353/nib.2014.0020
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An Encounter with the Art and Science of Medicine

Anonymous Five
pp. E7-E9
DOI: https://doi.org/10.1353/nib.2014.0024
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Roadmap Needed: How to Help Parents Navigate the Worst Day of Their Lives

Cheryl Kilpatrick
pp. E9-E12
DOI: https://doi.org/10.1353/nib.2014.0000
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Commentary

Cartography of Endurance

Christy Rentmeester
pp. 34-38
DOI: https://doi.org/10.1353/nib.2014.0010
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The Right Thing

Michael Barraza
pp. 39-42
DOI: https://doi.org/10.1353/nib.2014.0014
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“Grey Matters”

Katie Rose
pp. 43-46
DOI: https://doi.org/10.1353/nib.2014.0018
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Reflecting on Parental Concerns in the Treatment of Pediatric Brain Tumors: Observations From A General Pediatrician

Lisa Stern
pp. 47-52
DOI: https://doi.org/10.1353/nib.2014.0022
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Research Article

Who Are You Going to Call? Primary Care Patients’ Disclosure Decisions Regarding Direct–to–Consumer Genetic Testing

Katherine Wasson, Sara Cherny, Tonya Nashay Sanders, Nancy S. Hogan, Kathy J. Helzlsouer
pp. 53-68
DOI: https://doi.org/10.1353/nib.2014.0026
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Case Studies

I Don’t Know Why I Called You

Jeffrey S. Farroni, Colleen M. Gallagher
pp. 69-74
DOI: https://doi.org/10.1353/nib.2014.0003
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Responding to the Refusal of Care in the Emergency Department

Jennifer Nelson, Arvind Venkat, Moira Davenport
pp. 75-80
DOI: https://doi.org/10.1353/nib.2014.0008
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