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INDEX

211actinomycin D, 116

Acute Leukemia Task Force, 119–120, 137

acute lymphocytic leukemia (ALL): clinical research, 7, 91–92, 94, 96–98

combination chemotherapy, 10, 92–94

diagnosis, 1

laboratory research, 2, 94, 96

organizations devoted to, 44, 45–46

outpatient clinics, 37–39

subject of illness narrative, 112–113, 138, 150–151, 154–157, 157–158

symptoms, 1–2

treatment of, 46, 85–87, 91–94

viral theories of, 2

Adair, Frank E., 25

adjuvant therapy, 120

adolescent patients, 156, 161, 171n6

adrenocorticotropic hormone (ACTH), 91–92, 103

adriamycin, 209n7

advocacy, parental, 153, 168

Agranoff, Joseph H., 131

Alex’s Lemonade Stand, 168

Allen, Roberta, 84

alopecia, 140

alternative therapies, 23, 65, 184n52, 204n41, 209n14.

See also Gerson, Max American Academy of Pediatrics, 34

American Board of Internal Medicine, 125

American Cancer Society (ACS), 5, 39–40, 48, 68, 103–107, 140.

See also American Society for the Control of Cancer

American Cancer Society, poster children: Leroy Curtis, 104–105

Darya Flagg, 105

Bobby Giampa, 106

Donald Lewis Marteeney, 104

Jennifer McCollum, 103

Thomas Nagy, 104

Patty Porrine, 106

Linda Wreith, 106

American Lebanese Syrian Associated Charities (ALSAC), 159

American Medical Association, 142

American Ophthalmological Society, 18

American Society for the Control of Cancer (ASCC), 5, 39–40, 48, 68, 103–104, 140

The American Way of Death, 148

aminopterin, 46–48, 85–86, 103

amputation, 163–165

Anderson, Anne, 157–159

Anderson, Billy, 93

Anderson, Jimmy, 157–159

animal tumor models, 38, 83, 96, 191n66

asparaginase, 155

Association for the Care of Children in Hospitals, 152

Association of Pediatric Oncology, 152

Berger, Meyer, 99

Black, Kathryn, 59

blind, 17, 25–26, 174n18

blood donations, 100, 155

The Blood of the Lamb (De Vries), 112–114

cancer detection, 114–115

chemotherapy, 116–121

diagnosis, 117

etiology, 115

hospitalizations, 122, 123

outpatient care, 121

parental wellness, 133–135

religious themes, 113, 123

side effects, 122,

truth telling, 128–133

blood transfusion, 2, 43, 44, 85–87, 108–110, 140, 155

Bluebond-Langner, Myra, 147

bone tumors, 140, 163–164

Boston Braves, 32, 48

Boston Children’s Hospital, 46–47

Bowden, Lemuel, 129

Boy, Louis, 108–109

Bozeman, Mary, 90

brain tumor, 33, 53.

See also Death Be Not Proud

Burchenal, Joseph H., 38, 63–64, 101, 137, 155

Burkitt, Denis, 207n84

Burns, Angela, 10, 82, 85, 99

Burns, Mary Sheila, 82, 99

Bush, Robin, 99, 101–102

Bush, Vannevar, 64

Cabot, Richard, 87

Cameron, Charles S., 106, 116

cancer. See childhood cancer

Cancer and Leukemia Group B, 5, 97, 118, 120

cancer centers, 123–128, 140–142, 144, 146

Cancer Chemotherapy National Service Center, 96, 99, 118–119

Cancer in Childhood (Dargeon), 15, 33, 62

Candlelighters, 159–160

“Care of the Child with Cancer” conference, 123–128

chemotherapy: actinomycin D, 116

adrenocorticotropic hormone, 91–92, 103

adriamycin, 209n7

aminopterin, 46–48, 85–86, 103

asparaginase, 155

cortisone, 91

cytosine arabinoside, 119

daunomycin, 119

identification, screening, and development, 7, 10, 46, 191n66

mercaptopurine (6-MP), 94, 118, 122

methotrexate, 118, 122, 164

nitrogen mustard, 84–85

prednisone, 155

vincristine, 141, 155

childhood cancer: awareness, 36, 39–41, 114

in British context, 5, 172n14

classification, 13–15, 33

clusters, 157

detection, 33, 36–37, 43–44

education, 36–37, 46

national efforts, 95–99

quantification, 33–34

Children’s Cancer Research Foundation (CCRF), 48–52, 97, 116

Children’s Cancer Study Group A, 123–124

children’s court system, 17

Children’s Hospital of Philadelphia, 145

children’s hospitals, 4, 87

Children’s National Medical Center (Washington, D.C.), 159

Children’s Tumor Registry, 34

children’s wards, 14, 122

Helena Woolworth McCann Children’s Pavilion, 34–35

Cincinnati Children’s Hospital, 131

citrovorum factor, 164

class differences, 17, 29–30, 44, 75, 140, 165, 180n42

clinical trials, 7, 95–99, 118, 119–121, 127, 141–143, 167.

See also combination chemotherapy

Cobb, Beatrix, 90

Colan, Estelle, 23, 26, 27, 28

Colan, Helaine Judith, 23, 25, 27–28

Colan, Herman, 23, 24, 26, 27

Columbia-Presbyterian Medical Center, 22, 43, 60

combination chemotherapy, 7, 141–142

BIKE protocol, 121

POMP protocol, 121

VAMP protocol, 120–121, 127–128, 197n38, 198n39.

See also clinical trials

complications of disease or treatment, 86, 143, 150, 161, 166

alopecia, 140

hemorrhage, 1, 86, 89

infection, 2, 86, 136, 139

nausea, 86, 122

nosebleeds, 1, 86

oral ulcers, 85, 89, 122, 140

congressional appropriations (for leukemia research programs), 95

consent, 22, 142

consultation of specialists, 198n46, 199n57

cortisone, 91

court cases, involving health, 22–23, 157–159, 204n41

Crawford, B. A., 89

Cutter, Irving S., 26

cystic fibrosis, 7, 153, 206n68

cytosine arabinoside, 119

Dameshek, William, 45

Dana Farber Cancer Institute, 49, 164

D’Angio, Giulio J., 141

Dargeon, Harold, 2, 14, 33, 37, 62, 113

daunomycin, 119

death, 76–79, 147–149, 149–153

Death Be Not Proud (Gunther), 7, 9, 53–54, 82

diagnosis, 60–61

etiology, 62

monitoring health, 62

popularity of, 79–81

seeking treatment options, 62–64

treatment, 61, 65–66.

See also Gerson, Max

Death Be Not Proud, readers: general, 66–67

nurses, 68

parents, 70–76

physicians, 67–68

religious leaders, 67

teachers and students, 69

Declaration of Helsinki, 142

de Villiers, Antoinette, 45

de Villiers, Robert, 44

de Villiers Foundation. See Leukemia and Lymphoma Society of America

De Vries, Peter, 10, 112–114, 195n4

De Vries, Emily, 113

Diamond, Louis, 47

diet regimen, 65, 122, 160

DiPerna, Paula, 158

disability, 17, 22–23, 24, 25–26, 163, 165

doctor’s committee, 26–27, 30

Donne, John, 56

DuBois, Keith, 43

Duke University Medical Center, 144

Dunaway, Gerald, 93

Eastern Study Group, 96

Edmark, Richard, 26

Edwards, Ralph, 32, 49

Elion, Gertrude B., 94

Enders, John F., 103

Endicott, Kenneth, 96, 97, 98

End Results Group (NCI), 140

Engel, Jonathan, 100

Eric (Kulenkamp), 150–151

Eric (Lund), 154–156

Ethical Guidelines for Clinical Investigation (1966), 142

ethnic differences, 17, 29–30, 44

etiology: congenital, 14

heredity, 175n22

industrial toxins, 157

nuclear fallout, 115

physical irritation or trauma, 62, 72–73

viruses, 2, 207n84

Ewing, James, 15

experimentation, human, 6, 39, 88, 107–110, 135–136, 142–143, 150, 155

family, role of child in, 42, 52, 76–77, 153

Farber, Sidney, 46–48, 49, 87–88, 92, 95, 104, 110, 116

financial concerns, 99–101, 151–152, 155

First Clinical ACTH Conference, 91

First Conference on Folic Acid Antagonists in the Treatment of Leukemia, 47

Fishbein, Morris, 100

Foley, George, 47

folic acid, 46–47

Frei, Emil, III, 96, 98, 120

Freireich, Emil J., 96, 120, 141

Friedman, Stanford, 133–134

fundraising campaigns: American Cancer Society, 102–107

hospital-based, 35–36, 159

by individuals, 168

Jimmy Fund, 32, 48–51

geographic factors, 101, 124, 140, 150

Gerson, Max, 64, 68, 75

Gilman, Alfred, 84

glioma babies, 9, 12

Golden, Janet, 6, 79

“Golden Age of Medicine,” 64–65

Good, Robert, 26

Goodman, Louis S., 84

Green, Chad, 204n41

Green, Morris, 129

Gross, Beatrice and Ronald, 153

Gross, Ludwig, 109

Gunther, Frances, 9, 56–58

Gunther, John, 9, 54–56

Gunther, Johnny, 58–60

Gustafson, Einar, 9, 32, 48–49

Guthrie, Elizabeth V., 71–72

Haiselden, H. J., 24

Hamady, Alfred, 132

Hammond, Denman, 126

Hansen, Bert, 20

Hartmann, John R., 124–128

hematology, history of, 38, 125

hemophilia, 7, 153, 167, 173n21

hemorrhage, 1, 86, 89

Hershman, Morris, 23, 24

Hitchings, George H., 94

Hodgkin’s disease, 84

Hole in the Wall Gang, 167

Holland, James, 96

Holt, L. Emmett, 38

“Home Care for the Dying Child,” 149–153

attitudes toward dying children, 152

minimizing technology, 149

nursing support, 150, 152

palliative care, 150–151

parental care and decision making, 150–151

professional skepticism, 152–153

reducing costs, 150, 151–152

hope: Building of Hope, 49

Hope Child, 107

Sword of Hope, 104

Tower of Hope, 38

hospice, 148–149, 153

Children’s Hospice International, 153

hospitalization, 90

Huggins, Charles, 68

human-interest stories, in popular press, 12, 19–20, 26, 43, 93, 100, 104, 163–165

illness narratives, 6, 10, 59–60, 150–151, 154–159, 166

incurability, 37, 42, 43, 44–45

industry-academic collaborations, 46–47, 82, 93–94

infection, 2, 86, 136, 139

infectious diseases, 4, 34, 82

In re Vasko, 22–23

Inside books, 54–56

insurance: individual plans, 140, 155

national insurance plan, 100

Jackson, Bill, 99–100

Jackson, Skipper, 99–100

Jimmy. See Gustafson, Einar

Jimmy Fund, 9, 32, 48–51

Jimmy Fund Clinic, 82, 87–88

juvenile diabetes, 7, 173n20

Kaplan, David M., 146

Karon, Myron, 129–131

Kennedy, Edward, 163

Kennedy, Edward M., Jr., 163–165

kidney tumor, 13, 14, 112, 116.

See also Wilm’s tumor

Kozol, Wendy, 77

Kübler-Ross, Elisabeth, 147–148

Kulenkamp, Doris, 150–151

Kulenkamp, Eric, 150–151

Ladd-Taylor, Molly, 42

laetrile, 204n41

Lasker, Mary, 40, 95

late effects of treatment, physical and mental, 11, 161, 168

Law, Lloyd, 97–98

Lederle Laboratories, 46–47

Lee, Henry F., 132

Lerner, Barron, 20, 154

Leukemia and Lymphoma Society of America, 45–46

Lewis, Dorothy, 163–166

Lewis, William, 163

Li, M. C., 120

Löwy, Ilana, 154

Lund, Doris, 154–156

Lund, Eric, 154–156

“magic bullets,” 64, 82

“Maintaining a Normal Life,” 160

March of Dimes, 59, 102

Massie, Robert and Suzanne, 167

Martin, Hayes, 14

Martinson, Ida, 149–153

Mauer, Alvin M., 131

M. D. Anderson Cancer Center, 1, 90, 97, 171n2

medical authority, 21, 23, 29–30, 41

medical oncology, 124–126

medical training, residency program, 39

Memorial Hospital for Cancer and Allied Diseases (also Memorial Sloan-Kettering), 2, 9, 14, 43, 97, 113

child-focused expansion, 34–35

outpatient clinic, 37–38

psychological studies, 90

residency program, 39

tumor registry, 34

meningeal leukemia, 123, 139

mercaptopurine (6-MP), 94, 118, 122

metastasis, 165

methotrexate, 118, 122, 164

Meyer, Leo, 48

Monaco, Grace Ann, 159

mortality rates, 33–34

mothers: blame, 30, 41–42, 58, 70

grief, 58, 76–79

role in detection, 42–44, 73–74

Mount, Lester A., 62

mouth care, 2, 3, 89

Murphy, James, 109

Murphy, Lois, 101

mustard gas, 45, 63, 83–84

National Cancer Act, 144

National Cancer Institute (NCI): Cancer Chemotherapy National Service Center, 96

clinical center, 98–99

cooperative studies, 96–98

designated cancer centers, 144

diet, cancer, and nutrition studies, 160

Special Virus Leukemia Program, 2

truth telling, 129–131

National Committee for a Sane Nuclear Policy, 115

National Conference on the Care of the Child with Cancer, 141

National Foundation for Infantile Paralysis, 103

National Research Council’s Committee on Growth, 85

nausea, 86, 122

neglect, child, 21–22, 176

neuroblastoma, 13

Newman, Paul, 167

New York Academy of Medicine, 15

nitrogen mustard, 84–85

nontreatment decisions, 9, 12, 16, 22–23, 24, 163

nosebleeds, 1, 86

Nuremberg Code, 110

nursing, 68, 88–90, 145, 149, 152

Office of Scientific Research and Development (OSRD), 64, 84

Oncology Nursing Society, 152

On Death and Dying (Kübler-Ross), 147–148

oral ulcers, 85, 89, 122, 140

outpatient clinic, 8, 10, 37, 122, 127, 150, 166

Pack, George, 14

pain, 148, 151

palliation, 149

Palmer, Walter L., 68

parental caretaking, 89–91, 145, 150, 151, 154, 160–161, 166

parental grief, 76–79, 133–134

parental noncompliance, 44

parental skepticism, 16, 76, 135

Parker, Mike, 1–2

The Patient as Person (Ramsey), 142

patient’s rights movement, 147

pediatric cancer. See childhood cancer

pediatric oncology, 152

pediatrics, 4, 14, 29, 41, 87

Penfield, Wilder, 62, 65–66

penicillin, 64

Philips, Frederick, 84

Pieroni, Antoinette L., 87

Pineda, Ricky, 146

Pinell, Patrice, 13

Pinkel, Donald, 153

polio, 52, 59, 82, 102–103

poster children, 6, 48, 80, 93, 104–106, 165–166, 169

prednisone, 155

psychological studies, 87, 90–91, 129–135, 146–147

Putnam, Tracy, 60

radiation therapy, 26–28, 44, 61

Ramsey, Paul, 142

Recommendations Guiding Doctors in Clinical Research (1964), 142

recreation therapy, 35

Reese, Algernon B., 17, 28, 175n23

relapse, 85, 92–94, 118–121, 133–136, 155

religion, 16, 24, 27, 30, 113, 123, 135–136

remission, 46, 85, 92–94, 117–121, 122–123, 133–136, 139, 155–156, 166

research subjects: children, 6, 107–110, 142

prisoners, 108–109

retinoblastoma, 9, 12

classification, 18

description, 23–24

etiology, 115

prognosis, 17–18

radiation, 27, 115

signs and symptoms, 18, 114–115

surgery, 18, 22, 24, 26, 27

Rhoads, Cornelius Packard, 37–38, 85, 88, 94, 95

Rogalski, Benjamin, 23

Ronald McDonald Houses, 144–145

Roosevelt, Franklin Delano, 103

Roswell Park Cancer Center, 96, 97

Salk, Jonas, 103

scientific motherhood, 4, 41

Scott, Alexandra, 168

sequential chemotherapy, 92–94

Seton, Elizabeth Ann Bayley, 137

Simone, Joseph, 140, 162

Slater, Marcia, 108–109

Sloan-Kettering Institute for Cancer Research, 38–39, 95

social work, 87–88, 146

Society for the Prevention of Cruelty to Children, 17–18, 175n21

Soderberg, Donna Jean, 93

Solnit, Albert, 129

Special Virus Leukemia Program, 2

Spock, Benjamin, 42, 115

St. Jude Children’s Research Hospital, 140, 159

Stanford Children’s Hospital, 145

state intervention, 21–22

Strang Prevention Clinic, 36–37

Strickland, Stephen, 119

Subbarow, Yellapragada, 46–47

sulfonamides, 64

supportive therapy, 7, 110

survival (short- and long-term), 10, 138, 140, 160

Tan, Charlotte, 101

telethons, 6, 168, 210n17

therapeutic uncertainty, 29, 76

Thomas, Danny, 159

Timmons, Amy Louise, 138

Tomes, Nancy, 20

total care, 49, 87–91, 144, 166–167

transportation, to access cancer care, 4, 98, 99, 166

Truax family, 43

truth telling: to adults, 129

to children, 10, 128–133, 146–147, 182n18, 200n71

Tuttle, William, 103

Typhoid Mary (Mary Mallon), 17

Umansky, Lauri, 42

University of Minnesota, 149

Van Lopik, Eileen Sue and Kathleen Jo, 107–108

Variety Club of New England, 48

Vasko, Anna, 12, 16, 17, 19, 22

Vasko, Helen, 12, 16, 21–22

Vasko, John, 12, 16, 19–20

Vernick, Joel, 129–131

vincristine, 141, 155

Viner, Russell, 6, 79

vital statistics, 2

Voigt, Ronald Joseph, vii–viii

Wald, Florence, 148

Walker, John, 101

Wallerstein, Harry, 108–109

War on Cancer, 137

Wetzel, David, 151

Wetzel, Meri, 151

White House Conference on Children, 153

Wilbur, Jordan R., 146, 160

Williams, Roger, 13

Williams, Ted, 49

Wilm’s tumor, 13, 14, 112, 116.

See also kidney tumor

Woburn, Massachusetts, 157–159

Women Strike for Peace, 115

World War II: furloughs, 42–43

soldiers who died in battle, 77–78

Yale–New Haven Hospital, 33, 84

Zubrod, Gordon, 96, 98, 119

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Notes

Additional Information

ISBN
9781421427775
Related ISBN
9781421429182
MARC Record
OCLC
1048206601
Pages
211-216
Launched on MUSE
2018-08-15
Language
English
Open Access
Yes
Creative Commons
CC-BY-NC-ND
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