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Index
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335 Index Abbey (research participant), 197, 199–200, 201, 204, 208 abilities framework: use of, 13, 23–24 abortion of autistic-susceptible fetuses, 109–10, 118, 125, 127–28, 129–30 Academic Autistic Spectrum Partnership in Research and Education (AASPIRE), 179–83, 184 academic writing about autism, 23, 319–30; autistic versus NT language and language use, 319–20; autoethnographic reflection on, 323–29; facts and language prejudice , 321–22; multiplicity of autistic nature and, 319, 322; rules of, 320–21 ADD/ADHD, 60, 122, 134 adult diagnosis of autism. See identity and diagnosis advocacy. See biological citizenship; France, autism advocacy in; neurodiversity ; parents and families of autistic people; self-advocacy and self-advocates Agosta, Lou, 31, 32 AIDS, 4–5, 173 alien or otherworldly: autistic people viewed as, 53–54, 86, 199–200 American Psychiatric Association. See Diagnostic and Statistical Manual of Mental Disorders Americans with Disabilities Act (ADA), 164, 174 Amundson, Ronald, 4 animals and autism, 65 Animals in Translation (Grandin), 36 Annie (mother of autistic child), 103 Anthropologist on Mars, An (Sacks), 53 anti-psychiatric movement, 251 applied behavior analysis (ABA), 146, 231, 232, 264, 267 Archie (self-advocate), 83, 102, 104 Asch, Adrianne, 162–64 ASD (autism-spectrum disorders). See autism and autism spectrum Asperger, Hans, 33, 38, 193, 217 Asperger’s Conversations (audio post), 73, 81 “Asperger’s Syndrome: A Clinical Account” (Wing), 38, 193 Asperger Syndrome: debates about place on autism spectrum, 2, 5, 14, 38–39; emergence and diagnosis of, 192–95; posthumanism and, 62, 65; schizoid personalities and, 33 Aspies for Freedom (Internet forum), 83, 90n3, 241, 245 Association of University Centers on Disability, 178 Atypical Autism, 118 Australia, autism in, 8–9, 90n3, 99, 109, 146, 240, 242, 244, 248 Autism (Frith), 33 Autism Acceptance Project, 289 autism and autism spectrum, 1–25; advocacy movements (see biological citizenship; France, autism advocacy in; neurodiversity; parents and families of autistic people; self-advocacy and self-advocates); care and treatment, 18–19 (see also genetics and autism; participatory research; public policy and autism care); challenging deficit narrative and using abilities framework, 10, 12–13, 23–24, 57, 99–100, 240; concepts of, 2–9, 16–18, 118, 143, 213, 235n1 (see also biological 336 INDEX citizenship; empathy; neurodiversity ; posthuman condition); critical approach to study of, 9–15, 23–25; cultural productions and representations of, 2, 13–14, 21–23, 193–94 (see also academic writing about autism; Internet and autism; narrating autism; nonverbal or minimally verbal autistic persons); current state of knowledge about, 8, 24; diagnostic issues, 19–21, 77, 118 (see also France, autism advocacy in; identity and diagnosis; level-of-functioning arguments); etiology of, 218–19, 227–28; etymology of term, 38–39; funding and research priorities, 117, 120–22, 123, 134, 136, 147, 152–53, 177–78; prevalence of, 1, 18, 39, 117, 153, 217–18, 224–27; terms for people living with, 79 Autism and Representation (Osteen), 268, 272 “autism as tragedy” narrative, 242, 307 Autism Centers of Excellence (ACE), 120–21, 137n1 autism diagnostic interview—revised (ADI-R), 193 autism diagnostic observation schedule (ADOS), 193 Autisme France, 247 Autism Matrix, The (Eyal et al.), 6, 251 Autism Network International (ANI), 174–75, 240–45, 247, 253, 282n4 Autism Research and Prenatal Testing (Web site), 125 Autism Society of America, 39, 242–43 Autism Society Canada, 39, 228, 242 Autism Speaks, 21, 145–46, 161, 217, 232, 281n4 Autism: The Musical (film), 278–79 Autistic Community of Israel (ACI), 244 autistic cousins (ACs), 93, 102, 104–5, 106, 107, 111, 243–44, 253 “Autistic Disturbances of Affective Contact” (Kanner), 38 “‘Autistichen Psychopathen’ im Kindesalter , Die” (Asperger), 38 Autistic Self-Advocacy Network (ASAN), 5, 241, 245, 246 autobiographical narratives of autism, 21, 193–95, 207, 209, 240, 242, 272–75, 323–29 Auton (Guardian ad litem of ) v. British Columbia (Attorney General) (Supreme Court of Canada, 2004), 232 Autreat, 244 Badcock, Christopher, 35 Badmington, Neil, 54, 63 Bagatell, Nancy, 87 Baggs, Amanda, 6, 60, 66–67, 90n6 Baker, Anthony, 262, 276, 281n2 Baker, Dana Lee, 3, 8, 10, 12, 20, 154, 213, 331 bare life: autistic persons and fetuses viewed as, 118, 129–30, 137 Barnbaum, Deborah, 4, 56 Barnum and Bailey, 328 Baron-Cohen, Simon, 31–37, 45, 281n7 Bass, Ron, 261 Belmonte, Matthew K., 194, 272, 274 Ben (research participant), 87 Benford, Penny, 285 Benjamin, Walter, 23, 306, 310–14 Beresford, Peter, 152 Berg, Marc, 10 Bernard, Sallie, 120–21 Bettelheim, Bruno, 70, 266 Bickenbach, Jerome, 251...