Cover

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Title Page, Copyright, Dedication

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pp. i-vi

Contents

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pp. vii-viii

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Acknowledgments

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pp. ix-x

Books are always written by communities. Yes, it is the case that the author sits down at some point and puts it all together, but the ideas presented in any book emerge from a multitude of different sources, conversations, narratives, and perspectives. The author may take all of the credit or the criticism...

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Introduction: Time, Disability, and the Fragile Brain

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pp. 1-18

This is a book about time. It is not, however, about any old time. It is about God’s time and what it means to live one’s life faithfully within the time that has been gifted to us. There is no getting away from the fact that time is a fundamental aspect of the ways in which we understand, construct, and...

Part I: Time and Disability

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1. Thinking about Time: The Tyranny of the Clock

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pp. 21-34

Time is an elusive concept. Despite its centrality to all that we do, there is no real consensus as to what it is. Philosophy, science, theology, psychology, anthropology, medicine, and personal experience all create and narrate different stories about what time may or may not be. For Aristotle, time was...

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2. Time and Progress: Disability and the Wrong Kind of Time

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pp. 35-54

The connection between time and disability is not obvious, but when we come to see it, it becomes disturbing and yet deeply enlightening. Take, for example, the controversies that surround issues relating to euthanasia and prenatal testing for disabilities. At one level they look like standard ethical...

Part II: Learning to Live in God’s Time

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3. Time and Christ: A Brief Theology of Time

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pp. 57-66

The time of the clock has taught us to pay attention to the realm of time in ways that are grasping, utilitarian, instrumental, focused, selfish, and ultimately idolatrous. The time of the clock may be deeply influential and formative, but it is not the only kind of time or even the best kind of time that...

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4. Becoming Friends of Time: Love Has a Speed

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pp. 67-84

The previous discussion has indicated that everything that needs to be done has been done for us in the life, death, and resurrection of Jesus Christ.1 If everything that has to be done has been done for us in Jesus, human beings have no real need to race along trying to do everything on their own, in their...

Part III: From Inclusion to Discipleship

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5. Time and Discipleship: Inclusion, Discipleship, and Profound Intellectual Disability

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pp. 87-114

Timefullness, slowness, gentleness, love, patience, nonanxious presence, Sabbath. What a beautiful world we would live in if, in the power of the Holy Spirit, we could truly learn to live in such ways within God’s time. When we concentrate on moving our lives to the cadence of such divine timing, we...

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6. Time and Vocation: Slow and Gentle Disciples

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pp. 115-130

Moving the conversation from inclusion to discipleship opens up new possibilities for genuine participation not only for people with profound intellectual disabilities but for the whole body of Christ. As we move from membership to belonging and from inclusion to discipleship, so we are freed...

Part IV: Reclaiming the Heart

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7. Time and Memory: Dementia and the Advancement of Time

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pp. 133-146

Earlier in the book, we spent some time looking at how certain ways of perceiving time were highly problematic for people with dementia. So much so that some assume dementia is worse than death and seek to draw out arguments and engage in practices aimed at ending the lives of those living with...

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8. Time and the Heart: Affective Remembering

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pp. 147-162

The other day I watched a fascinating piece of video on the website of the organization Memory Bridge. They offer a perspective of deep hope that speaks into the lives of people with advanced dementia.2 Their ethos is that, no matter how advanced dementia may be, if we slow down and give people...

Part V: The Horror of Time

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9. The Horror of Time: Acquired Brain Injury and Personality Change

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pp. 165-176

The year 2014 was an interesting one for our family. My mother turned ninety, my eldest daughter celebrated her eighteenth birthday, and my wife reached the grand old age of fifty! (My own age shall remain a mysterious secret. . . .) Three special birthdays in the same year is pretty unusual. We...

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10. The Time Before and the Time After: Brain Injury, Human Identity, & the Hiddenness of Our Lives in Christ

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pp. 177-192

A primary motif within Skloot’s story is the suggestion that somehow he changed from being one person, with whom he was familiar, to another person who in many ways he perceived as a stranger. There seems to have been a Floyd Skloot before the virus’ insult and a different Floyd Skloot afterward...

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11. Time and Ritual: Funerals for Friends

with Tonya Whaley

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pp. 193-206

Such a theological foundation grounded in God’s simultaneous time and the mystery of Jesus’ redemptive work provides hope in contexts where hope can be hard to find. However, it does not in and of itself make the process of change and reorientation following brain damage easier at the level of...

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Conclusion: Being in Christ, Being in Time: Every Body Has a Place

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pp. 207-212

Our journey into time has taken us to some fascinating and challenging places. As we have explored the nature of God’s time and what it might mean to live in such a time, so we have been challenged to pay attention to the world, time, and disability in fresh and creative ways. As we have moved...

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Appendix: Redeeming Time

with Tonya Whaley

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pp. 213-220

What follows is a reflection on the rationale that lay behind Tonya’s creation of the ritual of a lived funeral and her experience of it. John and Tonya then present a fictional example of what such a timefull ritual might actually look like. Readers may find it beneficial to reflect on this appendix in the light of...

Notes

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pp. 221-236

Bibliography

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pp. 237-242

Index

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pp. 243-245