A Participatory Group Process within a Health Collaborative to Collect and Disseminate Needs Assessment Data

Background: Inclusion of community-based participatory research (CBPR) principles within an epidemiological study design is anticipated to promote the effective integration of knowledge derived from research data collection into the strategic planning and collaborative effort of a group focused on improving community-based health outcomes. This article describes how CBPR principles were used throughout survey design, data collection, analyses and results dissemination.

Methods: A health needs assessment survey was developed as a partnership between an academic research group from the Virginia Commonwealth University (VCU), a neighborhood-level health and wellness collaborative, and community residents. Survey development, pilot testing, data collection, results dissemination, and action among the health collaborative members were carried out using CBPR principles. Feedback from participants at each stage was collected to improve the overall process of data use within the collaborative.

Results: Data from 1,064 adult participants living in the East End of Richmond, Virginia, were collected. The use of CBPR and epidemiological approaches was successful in promoting effective collaborative efforts, as indicated by 1) sustained organization-level partner participation in the development of survey items and donation of participant incentives; 2) positive feedback from resident- and organization-level participants in a preliminary data dissemination event; 3) strong resident participation at community-wide dissemination events; 4) increases in survey-related blog traffic occurring in conjunction with community-wide dissemination events; and 5) the use of process protocols and results within similar collaboratives across the city.

Conclusions: Use of CBPR principles with epidemiological methods is a powerful tool for facilitating effective community-level strategic planning within health collaboratives.