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A Health Care Systems Approach to Improving Care for Seriously Ill Patients
- Narrative Inquiry in Bioethics
- Johns Hopkins University Press
- Volume 10, Number 1, Spring 2020
- pp. 79-88
- 10.1353/nib.2020.0004
- Article
- Additional Information
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Abstract:
Health care systems can go beyond advance care planning to create mechanisms for eliciting and documenting the goals of care and life-sustaining treatment decisions of patients with serious life-limiting illnesses. These systems can help ensure that patients receive care that is consistent with their values and preferences. We describe a case in which even though a patient with a serious illness had completed an advance directive and had discussed preferences with family, clinicians failed to identify the patient's authentic preferences for life-sustaining treatment. We offer a stepwise framework for communication with seriously ill patients and describe a systems approach to transforming the process of eliciting, documenting, and honoring patients' life-sustaining treatment preferences in the U. S. Veterans Health Administration.