- Web-based Survey Data Collection With Peer Support and Advocacy Organizations: Implications of Participatory Methods
- Progress in Community Health Partnerships: Research, Education, and Action
- Johns Hopkins University Press
- Volume 11, Issue 1, Spring 2017
- pp. 45-52
- View Citation
- Additional Information
Background: The 2012 National Survey of Peer-Run Organizations is one of the first to survey a nationally representative sample of mental health peer-run organizations, nonprofit venues for support and advocacy which are defined by people with psychiatric histories being in positions of authority and control.
Objectives: This paper describes data collection methods and demonstrates how participatory strategies to involve people with psychiatric histories intersected with Internet research to achieve study aims.
Methods: People with psychiatric histories were involved in designing and implementing a web-based survey to collect data on peer-run organizations' operations and views on national policy. Participatory approaches were used throughout design, data collection analysis, and dissemination.
Conclusions: The extensive involvement of people with psychiatric histories in project design and implementation were important strategies that contributed to this study's success.