Background: Designing an effective survey for gathering primary health data using a community-based participatory research (CBPR) approach in Indigenous communities in Canada has its challenges. Yet, the Pictou Landing First Nation (PFLN) Native Women’s Group (NWG) and academic research partners achieved a 59% response rate.

Objectives: To share lessons learned with both campus and community-based research teams engaged in CBPR involving Indigenous communities on the process of team development, and particularly survey development and execution, as well as the factors that led to a reliable and valid household level environmental health survey that achieved a 59% response rate.

Methods: Multiple debriefings conducted over the course of the 12-month data collection period allowed us to modify our protocol to fit with community oscillations.

Results/Lessons Learned: Unique aspects of CBPR allowed for the development of a culturally appropriate survey protocol and culturally relevant variables that reflected the concerns of the NWG, and presenting preliminary data to the community also encouraged community buy-in to participate.

Conclusions: Sharing lessons learned in this project are intended to have positive implications for future CBPR projects wanting to collect primary health survey data involving Indigenous communities.


Additional Information

Print ISSN
pp. 197-205
Launched on MUSE
Open Access
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