restricted access   Volume 5, Number 3, Winter 2015

Table of Contents

Editors’ Note

p. v
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Narrative Symposium: Patient and Research Participant experiences with Genetic Testing

Genetic Testing: Understanding the Personal Stories

pp. 201-203
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Ethical Issues in Interpretation of Risk, from the Perspective of a Research Subject

pp. 203-206
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Whole Genome Sequencing Solved Our Family’s Genetic Mystery: Titin

pp. 206-208
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My Experience with Direct to Consumer Genetic Testing

pp. 208-210
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Illusions of Certainty

pp. 210-212
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23andMe and Me

pp. 212-214
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I Had Genetic Testing for Alzheimer’s Disease Without My Consent

pp. 214-216
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A Test Unlike Any Other

pp. 216-218
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Becoming the “Subject” of My Own Study

pp. 219-220
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“Welcome to You”: A Reflection on Genetic Self-Exploration

pp. 220-222
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Peering into Vulnerable Genes: Genetic Risk and Population Screening

pp. 222-224
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The Impact of My Genetic Testing on My Father

pp. 224-226
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A Sister, a Father and a Son: Autism, Genetic Testing, and Impossible Decisions

pp. 226-228
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Commentary

Personal Narratives of Genetic Testing: Expectations, Emotions, and Impact on Self and Family

pp. 229-235
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In Guanine We Trust: Genetic Testing and the Sense of Coherence

pp. 237-244
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Appreciating Uncertainty and Personal Preference in Genetic Testing

pp. 245-249
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Research Article

Physician Religion and End–of–Life Pediatric Care: A Qualitative Examination of Physicians’ Perspectives

pp. 251-269
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Case Studies

System Failure: No Surgeon To Be Found

pp. 271-277
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Ethical Dilemmas Relating to the Management of a Newborn with Down Syndrome and Severe Congenital Heart Disease in a Resource-Poor Setting

pp. 277-286
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