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Table of Contents

Editors' Note

  1. Editors’ Note
  2. James M. DuBois, Ana S. Ilitis, Susan G. DuBois
  3. p. v
  4. DOI: https://doi.org/10.1353/nib.2014.0001
  5. restricted access

Narrative Symposium

Introduction

  1. Confronting Pediatric Brain Tumors: Parent Stories
  2. Gigi McMillan
  3. pp. 1-3
  4. DOI: https://doi.org/10.1353/nib.2014.0006
  5. restricted access

Personal Narratives

  1. A Bittersweet Score: A Father’s Account of His Family’s 20-Year Journey After a Pediatric Brain Tumor Diagnosis
  2. Christopher Riley
  3. pp. 3-6
  4. DOI: https://doi.org/10.1353/nib.2014.0011
  5. restricted access
  1. From Normal to Nightmare
  2. Brandi Wecks
  3. pp. 6-9
  4. DOI: https://doi.org/10.1353/nib.2014.0015
  5. open access
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  1. Second Guessing
  2. Anonymous One
  3. pp. 9-11
  4. DOI: https://doi.org/10.1353/nib.2014.0019
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  1. Things Are NOT Okay
  2. Lynne Hillard
  3. pp. 11-13
  4. DOI: https://doi.org/10.1353/nib.2014.0023
  5. restricted access
  1. Advocates, Not Problem Parents
  2. Anonymous Two
  3. pp. 13-16
  4. DOI: https://doi.org/10.1353/nib.2014.0027
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  1. What Now?
  2. Mike Abell
  3. pp. 16-18
  4. DOI: https://doi.org/10.1353/nib.2014.0004
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  1. Down the Medical Rabbit Hole
  2. Anonymous Three
  3. pp. 18-21
  4. DOI: https://doi.org/10.1353/nib.2014.0009
  5. restricted access
  1. The Road to Understanding and Acceptance of the Late Effects of Pediatric Brain Tumors and Treatment
  2. Jeanne Carlson
  3. pp. 21-23
  4. DOI: https://doi.org/10.1353/nib.2014.0013
  5. restricted access
  1. Family, Friends, and Cancer: The Overwhelming Effects of Brain Cancer on a Child’s Life
  2. Lynne Scheumann
  3. pp. 23-25
  4. DOI: https://doi.org/10.1353/nib.2014.0017
  5. restricted access
  1. Over the Years
  2. Kimberly Rocker
  3. pp. 25-27
  4. DOI: https://doi.org/10.1353/nib.2014.0021
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  1. Prepping for the Day You Hope Never Arrives: Facing Recurrence
  2. Terra Trevor
  3. pp. 27-30
  4. DOI: https://doi.org/10.1353/nib.2014.0025
  5. restricted access
  1. Not the End We Planned For
  2. Anonymous Four
  3. pp. 30-31
  4. DOI: https://doi.org/10.1353/nib.2014.0002
  5. restricted access
  1. Ice Cream for Breakfast
  2. Michelle Methven
  3. pp. 31-33
  4. DOI: https://doi.org/10.1353/nib.2014.0007
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Personal Narratives (Web Only Content)

  1. Ethan’s Gift
  2. Michelle Burgess
  3. pp. E1-E2
  4. DOI: https://doi.org/10.1353/nib.2014.0012
  5. restricted access
  1. How I Hate You, Cancer
  2. Claire Yar
  3. pp. E12-E14
  4. DOI: https://doi.org/10.1353/nib.2014.0005
  5. restricted access
  1. Life in Limbo
  2. M. Chiu
  3. pp. E2-E4
  4. DOI: https://doi.org/10.1353/nib.2014.0016
  5. restricted access
  1. My Lost Survivor
  2. Virginia Hammond
  3. pp. E4-E6
  4. DOI: https://doi.org/10.1353/nib.2014.0020
  5. restricted access
  1. An Encounter with the Art and Science of Medicine
  2. Anonymous Five
  3. pp. E7-E9
  4. DOI: https://doi.org/10.1353/nib.2014.0024
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  1. Roadmap Needed: How to Help Parents Navigate the Worst Day of Their Lives
  2. Cheryl Kilpatrick
  3. pp. E9-E12
  4. DOI: https://doi.org/10.1353/nib.2014.0000
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Commentary

  1. Cartography of Endurance
  2. Christy Rentmeester
  3. pp. 34-38
  4. DOI: https://doi.org/10.1353/nib.2014.0010
  5. restricted access
  1. The Right Thing
  2. Michael Barraza
  3. pp. 39-42
  4. DOI: https://doi.org/10.1353/nib.2014.0014
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  1. “Grey Matters”
  2. Katie Rose
  3. pp. 43-46
  4. DOI: https://doi.org/10.1353/nib.2014.0018
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  1. Reflecting on Parental Concerns in the Treatment of Pediatric Brain Tumors: Observations From A General Pediatrician
  2. Lisa Stern
  3. pp. 47-52
  4. DOI: https://doi.org/10.1353/nib.2014.0022
  5. restricted access

Research Article

  1. Who Are You Going to Call? Primary Care Patients’ Disclosure Decisions Regarding Direct–to–Consumer Genetic Testing
  2. Katherine Wasson, Sara Cherny, Tonya Nashay Sanders, Nancy S. Hogan, Kathy J. Helzlsouer
  3. pp. 53-68
  4. DOI: https://doi.org/10.1353/nib.2014.0026
  5. restricted access

Case Studies

  1. I Don’t Know Why I Called You
  2. Jeffrey S. Farroni, Colleen M. Gallagher
  3. pp. 69-74
  4. DOI: https://doi.org/10.1353/nib.2014.0003
  5. restricted access
  1. Responding to the Refusal of Care in the Emergency Department
  2. Jennifer Nelson, Arvind Venkat, Moira Davenport
  3. pp. 75-80
  4. DOI: https://doi.org/10.1353/nib.2014.0008
  5. restricted access