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Browse Book and Journal Content on Project MUSE

  Volume 4, Number 1, Spring 2014

Table of Contents

Editors' Note

Editors’ Note

p. v | DOI: 10.1353/nib.2014.0001

Narrative Symposium


Confronting Pediatric Brain Tumors: Parent Stories

pp. 1-3 | DOI: 10.1353/nib.2014.0006

Personal Narratives

A Bittersweet Score: A Father’s Account of His Family’s 20-Year Journey After a Pediatric Brain Tumor Diagnosis

pp. 3-6 | DOI: 10.1353/nib.2014.0011

From Normal to Nightmare

pp. 6-9 | DOI: 10.1353/nib.2014.0015

Second Guessing

pp. 9-11 | DOI: 10.1353/nib.2014.0019

Things Are NOT Okay

pp. 11-13 | DOI: 10.1353/nib.2014.0023

Advocates, Not Problem Parents

pp. 13-16 | DOI: 10.1353/nib.2014.0027

What Now?

pp. 16-18 | DOI: 10.1353/nib.2014.0004

Down the Medical Rabbit Hole

pp. 18-21 | DOI: 10.1353/nib.2014.0009

The Road to Understanding and Acceptance of the Late Effects of Pediatric Brain Tumors and Treatment

pp. 21-23 | DOI: 10.1353/nib.2014.0013

Family, Friends, and Cancer: The Overwhelming Effects of Brain Cancer on a Child’s Life

pp. 23-25 | DOI: 10.1353/nib.2014.0017

Over the Years

pp. 25-27 | DOI: 10.1353/nib.2014.0021

Prepping for the Day You Hope Never Arrives: Facing Recurrence

pp. 27-30 | DOI: 10.1353/nib.2014.0025

Not the End We Planned For

pp. 30-31 | DOI: 10.1353/nib.2014.0002

Ice Cream for Breakfast

pp. 31-33 | DOI: 10.1353/nib.2014.0007

Personal Narratives (Web Only Content)

Ethan’s Gift

pp. E1-E2 | DOI: 10.1353/nib.2014.0012

How I Hate You, Cancer

pp. E12-E14 | DOI: 10.1353/nib.2014.0005

Life in Limbo

pp. E2-E4 | DOI: 10.1353/nib.2014.0016

My Lost Survivor

pp. E4-E6 | DOI: 10.1353/nib.2014.0020

An Encounter with the Art and Science of Medicine

pp. E7-E9 | DOI: 10.1353/nib.2014.0024

Roadmap Needed: How to Help Parents Navigate the Worst Day of Their Lives

pp. E9-E12 | DOI: 10.1353/nib.2014.0000


Cartography of Endurance

pp. 34-38 | DOI: 10.1353/nib.2014.0010

The Right Thing

pp. 39-42 | DOI: 10.1353/nib.2014.0014

“Grey Matters”

pp. 43-46 | DOI: 10.1353/nib.2014.0018

Reflecting on Parental Concerns in the Treatment of Pediatric Brain Tumors: Observations From A General Pediatrician

pp. 47-52 | DOI: 10.1353/nib.2014.0022

Research Article

Who Are You Going to Call? Primary Care Patients’ Disclosure Decisions Regarding Direct–to–Consumer Genetic Testing

pp. 53-68 | DOI: 10.1353/nib.2014.0026

Case Studies

I Don’t Know Why I Called You

pp. 69-74 | DOI: 10.1353/nib.2014.0003

Responding to the Refusal of Care in the Emergency Department

pp. 75-80 | DOI: 10.1353/nib.2014.0008

Research Areas


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