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  Volume 4, Number 1, Spring 2014

Table of Contents

Editors' Note

Editors’ Note

p. v
|

Narrative Symposium

Introduction

Confronting Pediatric Brain Tumors: Parent Stories

pp. 1-3
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Personal Narratives

A Bittersweet Score: A Father’s Account of His Family’s 20-Year Journey After a Pediatric Brain Tumor Diagnosis

pp. 3-6
|

From Normal to Nightmare

pp. 6-9
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Second Guessing

pp. 9-11
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Things Are NOT Okay

pp. 11-13
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Advocates, Not Problem Parents

pp. 13-16
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What Now?

pp. 16-18
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Down the Medical Rabbit Hole

pp. 18-21
|

The Road to Understanding and Acceptance of the Late Effects of Pediatric Brain Tumors and Treatment

pp. 21-23
|

Family, Friends, and Cancer: The Overwhelming Effects of Brain Cancer on a Child’s Life

pp. 23-25
|

Over the Years

pp. 25-27
|

Prepping for the Day You Hope Never Arrives: Facing Recurrence

pp. 27-30
|

Not the End We Planned For

pp. 30-31
|

Ice Cream for Breakfast

pp. 31-33
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Personal Narratives (Web Only Content)

Ethan’s Gift

pp. E1-E2
|

How I Hate You, Cancer

pp. E12-E14
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Life in Limbo

pp. E2-E4
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My Lost Survivor

pp. E4-E6
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An Encounter with the Art and Science of Medicine

pp. E7-E9
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Roadmap Needed: How to Help Parents Navigate the Worst Day of Their Lives

pp. E9-E12
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Commentary

Cartography of Endurance

pp. 34-38
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The Right Thing

pp. 39-42
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“Grey Matters”

pp. 43-46
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Reflecting on Parental Concerns in the Treatment of Pediatric Brain Tumors: Observations From A General Pediatrician

pp. 47-52
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Research Article

Who Are You Going to Call? Primary Care Patients’ Disclosure Decisions Regarding Direct–to–Consumer Genetic Testing

pp. 53-68
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Case Studies

I Don’t Know Why I Called You

pp. 69-74
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Responding to the Refusal of Care in the Emergency Department

pp. 75-80
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Research Areas

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