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  Volume 3, Number 1, Spring 2013

Table of Contents

Editors’ Note

pp. v-vi
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Narrative Symposium: Taking Bioethics Personally

Introduction

Taking Bioethics Personally

pp. 1-3
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Personal Narratives

Nourishing my Grandmother’s Soul

pp. 3-6
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The Foretelling

pp. 6-8
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No Surprises, Please!

pp. 8-10
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A Terrifying Truth

pp. 10-12
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What my Children Taught Me about Information Sharing in Medicine

pp. 12-14
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Fractured Humerous/Fractured Humor—What a Broken Arm Taught Me About Racial and Cultural Privilege in Hospital Care

pp. 14-18
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A Personal Experience of Prenatal Testing for Down Syndrome

pp. 18-21
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When Worlds Collide

pp. 21-23
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The Education of Josephine’s Mom

pp. 23-26
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Body Alienation and the Moral Sense of Self

pp. 26-28
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Two Journeys

pp. 28-31
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Teaching the Tyranny of the Form: Informed Consent in Person and on Paper

pp. 31-34
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Personal Narratives (Web Only Content)

Down the Rabbit Hole

pp. E1-E2
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The End of a Life

pp. E2-E4
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A Good Death

pp. E5-E7
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Give Away Decisions

pp. E7-E10
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Informed Consent, An Ongoing Conversation

pp. E10-E12
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“The breath goes now”: Questioning a Case Study about Withdrawing a Respirator

pp. E13-E16
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Commentary

Dense Junctures of Ethical Concern

pp. 35-40
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The Isolation of Illness

pp. 41-44
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What the Experience of Illness Teaches

pp. 45-49
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Research Article

The Protectors and the Protected: What Regulators and Researchers Can Learn from IRB Members and Subjects

pp. 51-65
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Reason for Hospital Admission: A Pilot Study Comparing Patient Statements with Chart Reports

pp. 67-79
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Case Study

Should We Tell Annie?: Preparing for Death at the Intersection of Parental Authority and Adolescent Autonomy

pp. 81-88
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Research Areas

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