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249 Appendix Further Down Syndrome Resources for Infants to Adults GENERAL AAIDD: American Association on Intellectual and Developmental Disabilities 501 3rd Street, NW, Suite 200 Washington, DC 20001 “AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.” Global Down Syndrome Foundation 3300 East First Avenue, Suite 390 Denver, CO 80206 “The Global Down Syndrome Foundation is a public non-profit 501(c) (3) dedicated to significantly improving the lives of people with Down 250 ♦ Life with a Superhero syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.” National Down Syndrome Congress 30 Mansell Court, Suite 108 Roswell, GA 30076 “Founded in 1973, the National Down Syndrome Congress is the country ’s oldest national organization for people with Down syndrome, their families, and the professionals who work with them. [They] provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.” National Down Syndrome Society 666 Broadway, 8th Floor New York, New York, 10012 “The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.” Appendix ♦ 251 MEDICAL Denver Adult Down Syndrome Clinic The Medical Center of Aurora (TMCA) MCPN Clinic 700 Potomac Street, Suite A Aurora, CO 80011 “The mission of the Denver Adult Down Syndrome Clinic is to provide quality health care to adolescents and adults with Down syndrome, education for the families and care givers, and consultative services for their health providers.” Linda Crnic Institute for Down Syndrome Research Complex 2 Room P15-4014 Mail Stop 8608 12700 E 19th Avenue institutes/lindacrnic/Pages/lindacrnic.aspx “Mission: Significantly improve the lives of all people with Down syndrome : Eradicate the ill effects associated with Down syndrome (having an extra chromosome 21) Vision: Provide the world’s first ‘cradle-to-cradle,’ fully integrated institute for Down syndrome with the highest quality basic, translational and clinical research, clinical trials, therapeutic development, medical care, education and advocacy in the pursuit of the mission: Change the paradigm of how people with Down syndrome are perceived by society: Serve as the Anschutz Medical Campus gold standard for translational research for Colorado and the gold standard worldwide.” 252 ♦ Life with a Superhero EDUCATION AND COMMUNITY ACTION The Arc 1825 K Street NW, Suite 1200 Washington, DC 20006 “The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.” Best Buddies Global Headquarters 100 Southeast Second Street, Suite 2200 Miami, FL 33131 “Best Buddies® is a nonprofit 501(c)(3) organization dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities (IDD). Human Animal Bond in Colorado 1586 Campus Delivery Colorado State University Fort Collins, CO 80523-1586 “HABIC’S mission is to “improve the quality of life for people of all ages through the therapeutic use of companion animals.” Within this mission are the goals of: Appendix ♦ 253 Service/outreach—providing animal-assisted intervention services and programs (animal-assisted therapy, and animal-assisted activity) in partnership with: public schools; long-term care and rehabilitation; hospitals; hospice; mental health; youth corrections; residential treatment ; the Veterans Administration and other health and social services organizations in Colorado. Teaching—educating students and professionals on the human-animal bond, the therapeutic use of companion animals, and animal-assisted interventions. Research—conducting research in the human-animal bond field and animal -assisted therapy/activity interventions; evaluations of the animalassisted therapy model/approach with “at-risk” students in schools.” IDEA...


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