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117 Notes Introduction 1. Florence and Henry Wald Papers (MS 1659) Manuscripts and Archives, Yale University Library, New Haven, Connecticut.Two dissertations that discuss the study are Joy Buck, “Rights of Passage: Reforming Care of the Dying, 1965–­ 1986” (PhD diss., University of Virginia, 2005), and Cynthia C. Adams, “Dying with Dignity in America: The Transformational Leadership of Florence Wald” (EdD diss., University of Hartford, 2008). 2. Emily K. Abel, “The Hospice Movement: Institutionalizing Innovation ,” International Journal of Health Services 16, no. 1 (1986): 71–­ 85. 3. Nicky James and David Field, “The Routinization of Hospice: Charisma and Bureaucratization,” Social Science and Medicine 34, no. 12 (1992): 1363–­95. 4. David Clark, “Hospice Care of the Dying,” in Death, Dying, and Bereavement: Contemporary Perspectives, Institutions, and Practices, ed. Judith M. Stillion and Thomas Attig (New York: Springer, 2015), 135–­ 49. 5. Joel Wald, telephone interview, January 20, 2017. 6. Donald Oken, “What to Tell Cancer Patients: A Study of Medical Attitudes,” JAMA 175, no. 13 (April 1, 1961): 86–­ 94. 7. Dennis H. Novack, Robin Plumer, Raymond L. Smith, Herb Omegert Ochitill, Gary R. Morrow, and John M. Bennett, “Changes in Physicians ’ Attitudes toward Telling the Cancer Patient,” JAMA 241, no. 9 (March 2, 1979): 897–­ 900. See Sydney A. Halpern, “Medical Authority and the Culture of Rights,” Journal of Health Politics, Policy and Law 29, nos. 4–­ 5 (August–­ October 2004): 835–­ 52; Anne Harrington, The Cure Within: A History of Mind-­ Body Medicine (New York: W. W. Norton, 2008); Mary Ann Krisman-­ Scott, “Historical Analysis of Disclosure of Terminal Status,” Image 32, no. 1 (2000): 47–­ 52; David J. Rothman, Strangers at the Bedside (New Brunswick: Transaction, 1991); Carl E. Schneider, The Practice of Autonomy: Patients, Doctors, and Medical Decisions (New York: Oxford University Press, 1998); Robert Zussman, “Sociological Perspectives on Medical Ethics and Decision-­ Making,” Annual Review of Sociology 23 (1997): 171–­ 89. 8. O. G. Brim, H. E. Freeman, S. Levine, and N. A. Scotch, The Dying Patient (New York: Russell Sage Foundation, 1970); Rosemary Stevens, In Sickness and in Wealth: American Hospitals in the Twentieth Century (New York: Basic Books, 1989), 231. 9. Julie Fairman and Joan Lynaugh, Critical Care Nursing: A History (Philadelphia : University of Pennsylvania Press, 1998), 2. 10. See Final Report of the Advisory Committee on Human Radiation Experiments (New York: Oxford University Press, 1996); Ezekiel J. Emanuel, Christine Grady, Robert A. Crouch, Reidar K. Lie, Franklin G. Miller, and David Wendler, eds., The Oxford Textbooks of Clinical Research Ethics (New York: Oxford University Press, 2008). 11. Drew Gilpin Faust, This Republic of Suffering: Death and the American Civil War (New York: Knopf, 2008), 31. Chapter 1. Setting the Stage Unless otherwise indicated, all files are from the Florence and Henry Wald Papers, MS 1659, Manuscripts and Archives, Sterling Memorial Library, New Haven, CT. 1. Monica Mills, “Interview with Florence Wald,” Oral History Archive, Connecticut Women’s Hall of Fame, June 10, 2003. 2. Florence Wald, “The Emergence of Hospice Care in the United States,” in Facing Death, ed. Howard M. Spiro, Mary G. McCrea Curnen, and Lee Palmer Wandel (New Haven: Yale University Press, 1996), 81–­ 89. 3. Mills, “Interview.” 4. Mills. 118 Notes to Pages 5–11 5. Florence Wald, “In Search of the Spiritual Component of Hospice Care,” in In Quest of the Spiritual Component of Care for the Terminally Ill: Proceedings of a Colloquium, May 3–­­ 4, 1986, Yale University School of Nursing, ed. Florence S. Wald (New Haven: 1986), 25. Copyright Florence S. Wald. 6. Cynthia Connolly, personal interview, Philadelphia, May 4, 2017. 7. Shari Wald Vogler, phone interview, February 14, 2017. 8. Elizabeth Fee, “The Origins of Public Health Nursing: The Henry Street Visiting Nurse Service,” American Journal of Public Health 100, no. 7 (July 2010): 1207. 9. Quoted in Joy Buck, “Rights of Passage: Reforming Care of the Dying, 1965–­ 1986,” (PhD diss., University of Virginia, 2005), 89. 10. “Curriculum Vitae, Florence S. Wald,” File 2. In 2003, the name of Babies Hospital was changed to the NewYork-­ Presbyterian Morgan Stanley Children’s Hospital. 11. Quoted in Jed S. Rakoff, “Neuroscience and the Law: Don’t Rush In,” New York Review of Books, May 12, 2016. 12. Wald, “Emergence of Hospice Care,” 82. 13. Barbara J. Callaway, Hildegard Peplau: Psychiatric Nurse of the Century (New York: Springer, 2002), 261. 14. Hildegard E. Peplau, Interpersonal Relations in Nursing: A Conceptual Frame of Reference for Psychodynamic Nursing (New York: Springer, 1991); See Patricia D’Antonio, Linda Beeber...


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