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Living with Lymphoma This page intentionally left blank UV Living with Lymphoma A Patient’s Guide 2nd Edition Elizabeth M. Adler, PhD Foreword by W. Jeffrey Baker, MD Introduction by Michael R. Bishop, MD Johns Hopkins University Press Baltimore Note to the reader. This book is not meant to substitute for medical care of people with lymphoma or other cancers, and treatment should not be based solely on its contents. Instead, treatment must be developed in a dialogue between the individual and his or her physician. This book has been written to help with that dialogue. Drug dosage. The author and publisher have made reasonable efforts to determine that the selection of drugs discussed in this text conforms to the practices of the general medical community. The medications described do not necessarily have specific approval by the U.S. Food and Drug Administration for use in the diseases for which they are recommended. In view of ongoing research, changes in governmental regulation, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert of each drug for any change in indications and dosage and for warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently used drug.© 2005, 2016 Johns Hopkins University Press All rights reserved. Published 2016 Printed in the United States of America on acid-free paper 9 8 7 6 5 4 3 2 1 Johns Hopkins University Press 2715 North Charles Street Baltimore, Maryland 21218-4363 www.press.jhu.edu Library of Congress Cataloging-in-Publication Data Adler, Elizabeth M. Living with lymphoma : a patient’s guide / Elizabeth M. Adler, PhD ; introduction by Michael R. Bishop, MD ; foreword by W. Jeffrey Baker, MD. — Second edition. pages cm Includes bibliographical references and index. ISBN 978-1-4214-1809-4 (hardcover : alk. paper) — ISBN 978-1-4214-1810-0 (pbk. : alk. paper) — ISBN 978-1-4214-1811-7 (electronic) — ISBN 1-4214-1809-6 (hardcover : alk. paper) — ISBN 1-4214-1810-X (pbk. : alk. paper) — ISBN 1-4214-1811-8 (electronic) 1. Lymphomas— Popular works. I. Title. RC280.L9A26 2015 616.99'446—dc23 2015004319 A catalog record for this book is available from the British Library. Illustrations by Jacqueline Schaffer The excerpt from the poem “Cancer Garden,” on page 133, is from Dream of Order © 1997 by Thomas Avena. Published by Mercury House, San Francisco, California, and reprinted by permission. Special discounts are available for bulk purchases of this book. For more information, please contact Special Sales at 410‑516‑6936 or specialsales@press.jhu.edu. Johns Hopkins University Press uses environmentally friendly book materials, including recycled text paper that is composed of at least 30 percent post-consumer waste, whenever possible. For Ruthie & Eddie & for Paul This page intentionally left blank Midway along the journey of our life I awoke to find myself in a dark wood. —Dante Alighieri, opening lines of The Divine Comedy This page intentionally left blank ...