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One Woman's Cochlear Implant Journey
Deafened at the age of six, Claire Blatchford was educated orally with speech lessons, speechreading, and hearing aids. Though successful both professionally and domestically, at the age of 67 Blatchford decided to undergo a cochlear implantation. In this memoir, she describes in prose and verse living with a cochlear implant for the past three years. At first, Blatchford feared losing the last of her hearing through the surgical process. Her audiologist explained that her hearing was worsening and that soon she would move from profound deafness into a state called “cosmic deafness.” Blatchford decided upon the surgery in hope of meeting her hearing family on their turf, and of again hearing the wind, rain, rivers, and crickets. After being implanted, however, she realized that amplification and comprehension were two different things: at first all she heard was a soup of sound, a condition known as being brain deaf. Blatchford soon learned, however, that regaining her hearing was a journey of discovery. Gradually, the sound soup gave way to the ability to hear some sentences without speechreading. The sound of her own voice surprised her, and she could hear her grandchildren speak. The thrill of new things heard on one car trip to a friend’s house moved her to “try my first yodel as I pass by your house.” When asked by others if they should receive an implant, she cautions that it is an individual decision that each deaf person must make. For her, it was the right decision.
Disability and the Defamiliar Body
Professor Davidson---an accomplished literary critic---offers a focused and balanced analysis of poetry, film, and the arts honed with his excellent knowledge of the latest advances in disability studies. He is brilliant at reading texts in a sophisticated and aesthetically pleasurable way, making Concerto for the Left Hand one of the smartest books to date in disability studies. ---Lennard Davis, University of Illinois, Chicago "Moving elegantly among social theorists and cultural texts, Davidson exemplifies and propels an ethical-aesthetic model for criticism. Davidson asks continuously and with a committed intensity 'where a disability ends and the social order begins' . . . this book brings the study of poetry and poetics into the twenty-first century." ---Rachel Blau DuPlessis, Temple University Concerto for the Left Hand is at the cutting edge of the expanding field of disability studies, offering a wide range of essays that investigate the impact of disability across various art forms---including literature, performance, photography, and film. Rather than simply focusing on the ways in which disabled persons are portrayed, Michael Davidson explores how the experience of disability shapes the work of artists and why disability serves as a vital lens through which to interpret modern culture. Covering an eclectic range of topics---from the phantom missing limb in film noir to the poetry of American Sign Language---this collection delivers a unique and engaging assessment of the interplay between disability and aesthetics. Written in a fluid, accessible style, Concerto for the Left Hand will appeal to both specialists and general audiences. With its interdisciplinary approach, this book should appeal not only to scholars of disability studies but to all those working in minority art, deaf studies, visual culture, and modernism. Michael Davidson is Professor of American Literature at the University of California, San Diego. His other books include Guys Like Us: Citing Masculinity in Cold War Poetics and Ghostlier Demarcations: Modern Poetry and the Material World.
Human Being as Mutuality and Response
Responding to how little theological research has been done on intellectual (as opposed to physical) disability, this book asks, on behalf of individuals with profound intellectual disabilities, what it means to be human. That question has traditionally been answered with an emphasis on an intellectual capacity the ability to employ concepts or to make moral choicesand has ignored the value of individuals who lack such intellectual capacities.The author suggests, rather, that human being be understood in terms of participation in relationships of mutual responsiveness, which includes but is not limited to intellectual forms of communicating.She supports her argument by developing a phenomenology of how an individual with a profound intellectual disability relates, drawn from her clinical experience as a physical therapist. She thereby demonstrates that these individuals participate in relationships of mutual responsiveness, though in nonsymbolic, bodily ways.To be human, to image God, she argues, is to respond to the world around us in any number of ways, bodily or symbolically. Such an understanding does not exclude people with intellectual disabilities but rather includes them among those who participate in the image of God.
What Current Data Tell Us and Options for Improvement
U.S. government agencies compile a thorough set of statistics on populations defined by age, race, ethnicity, and marital status—but not by disability status. Therefore, working-age people with disabilities are often overlooked in discussions of the latest statistics on employment, income, poverty, and other measures of the status of a particular population. This book helps remedy this situation by providing a systematic review of what current statistics and data on working-age people with disabilities can and cannot tell us, and how the quality of the data can be improved to better inform policymakers, advocates, analysts, service providers, administrators, and others interested in this at-risk population.
Representations of Deafness in Biography
This remarkable volume examines the process by which three deaf, French biographers from the 19th and 20th centuries attempted to cross the cultural divide between deaf and hearing worlds through their work. The very different approach taken by each writer sheds light on determining at what point an individual’s assimilation into society endangers his or her sense of personal identity. Author Hartig begins by assessing the publications of Jean-Ferdinand Berthier (1803–1886). Berthier wrote about Auguste Bébian, Abbé de l’Epée, and Abbé Sicard, all of whom taught at the National Institute for the Deaf in Paris. Although Berthier presented compelling portraits of their entire lives, he paid special attention to their political and social activism, his main interest. Yvonne Pitrois (1880-1937) pursued her particular interest in the lives of deaf-blind people. Her biography of Helen Keller focused on her subject’s destiny in conjunction with her unique relationship with Anne Sullivan. Corinne Rocheleau-Rouleau (1881-1963) recounted the historical circumstances that led French-Canadian pioneer women to leave France. The true value of her work resides in her portraits of these pioneer women: maternal women, warriors, religious women, with an emphasis on their lives and the choices they made. Crossing the Divide reveals clearly the passion these biographers shared for narrating the lives of those they viewed as heroes of an emerging French deaf community. All three used the genre of biography not only as a means of external exploration but also as a way to plumb their innermost selves and to resolve ambivalence about their own deafness.
Eugenics and Deaf People in Nazi Germany
Horst Biesold’s Crying Hands treats a neglected aspect of the Holocaust: the fate of the deaf in Nazi Germany. His book covers a story that has remained almost unknown. In the United States, even in Germany, few are aware that during the Nazi era human beings–men, women, and children–with impaired hearing were sterilized against their will, and even fewer know that many of the deaf were also murdered. --From the Foreword by Henry Friedlander When the Nazis assumed power in Germany in 1933, they wasted no time in implementing their radical policies, first by securing passage of the Law for the Prevention of Offspring with Hereditary Diseases. Among those designated by this law as “congenitally disabled” were deaf people. Horst Biesold’s newly translated book examines this neglected aspect of Nazi “racial hygiene” through interviews with more than 1,000 deaf survivors of this brutal law that authorized forced sterilizations, abortions, and eventually murder. Crying Hands meticulously delineates the antecedents of Nazi eugenics, beginning with Social Darwinism (postulated in the mid-nineteenth century) and tracing the various sterilization laws later initiated throughout the world, including many passed and practiced in the United States. This exceptional scholarship is movingly paralleled by the human faces fixed to the numbing statistics, as in story after story those affected recount their irretrievable loss, pain, and misplaced shame imposed upon them by the Nazi regime. Through their stories, told to Biesold in German Sign Language, they have given voice to the countless others who died from the specious science practiced by the Third Reich. And now their own trials finally have been acknowledged.
The Cultural Construction of Deaf People as Disabled
Until the recent recognition of Deaf culture and the legitimacy of signed languages, majority societies around the world have classified Deaf people as “disabled,” a term that separates all persons so designated from the mainstream in a disparaging way. Damned for Their Difference offers a well-founded explanation of how this discrimination came to be through a discursive exploration of the cultural, social, and historical contexts of these attitudes and behavior toward deaf people, especially in Great Britain. Authors Jan Branson and Don Miller examine the orientation toward and treatment of deaf people as it developed from the 17th century through the 20th century. Their wide-ranging study explores the varied constructions of the definition of “disabled,” a term whose meaning hinges upon constant negotiation between parties, ensuring that no finite meaning is ever established. Damned for Their Difference provides a sociological understanding of disabling practices in a way that has never been seen before.
The Chronicles of a Hard of Hearing Reporter
Elizabeth Thompson’s hearing loss was detected when she was in elementary school, and her hearing continued to deteriorate until she became completely deaf. Like many other hard of hearing and late-deafened individuals, her hearing loss complicated the general challenges of life. She struggled through school, worked as a secretary, married, had a daughter, and then found herself living as a single mother. She remarried, and soon after learned that she had contracted Multiple Sclerosis (MS). Despite these hurdles, Thompson always expressed her determination to enjoy the best life had to offer. Her astonishing exuberance might have gone unnoticed if she hadn’t accepted a new position as a reporter/columnist in 1998 for the Suburban News Publications (SNP). Day by Day: The Chronicles of a Hard of Hearing Reporter presents a marvelous blend of her experiences and best SNP columns that illustrate how she created her remarkable outlook. In her columns, Thompson presented how she handled her hearing loss as a personal guide for readers. She used every stratagem available to function full-throttle – hearing aids, FM systems, lights for alarms, TTYs, even training her dog Snert. She also gently counseled readers on how to treat deaf and hard of hearing people with practical consideration and respect. Her pursuit of a fully realized life enabled her to do what she loved most, to meet and write about inspiring persons, many of whom are profiled in her memoir. Thompson eventually underwent cochlear implantation that restored 95% of her hearing, an exalting moment for her. Yet, Day by Day celebrates the entire arc of her life, a wonderful testament to her joyous resilience.
Inner Lives and Lifeworld Development
In her landmark book Inner Lives of Deaf Children: Interviews and Analysis, Martha A. Sheridan explored the lifeworlds — the individual and collective elements and realities that are present within the participants’ existential experiences, their relationships, and their truths — of seven deaf and hard of hearing children between the ages of seven and ten. What she discovered were deaf children with strengths, positive experiences, and positive relationships. Sheridan’s new book Deaf Adolescents: Inner Lives and Lifeworld Development returns to these seven individuals, now between the ages of 13 and 17, to see how their lives have progressed since their first interviews. Establishing an identity is said to be a primary and necessary task of adolescence. Deaf Adolescents reveals how these young adults all have begun to deal with tasks and situations that lead them to rely more on themselves and others outside of their families. Many of them talk about the athletic challenges that they face, and how their success depends upon their own efforts. They also think about the future while biding their time, taking “a break” from the furious growth that they are experiencing and also enjoying time spent with other deaf friends. In this volume, Sheridan examines the similarities and differences that these deaf young adults reveal in their views at two developmental points in their lives. Her renewed study has advanced the quest to determine what pathways and spaces can foster productive, healthy, satisfying, actualized deaf lives.
Leo Jacobs has written a unique and personal account of what it is like to be deaf in a hearing world. He speaks out on such issues as mainstreaming and its effect on deaf children and the Deaf community, total communication versus oralism, employment opportunities for deaf adults, and public policy toward deaf people. This new edition includes an update of services by and for deaf people, and an expanded chapter on legislation and social issues that have had an impact on the Deaf community in the last ten years.