Access your Project MUSE content using one of the login options below Close(X)
Browse Results For:
Hemophilia and the Unintended Consequences of Medical Progress
By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. Yet the glory of this achievement was short lived. The same treatments that delivered some normalcy to the lives of persons with hemophilia brought unexpectedly fatal results in the 1980s when people with the disease contracted HIV-AIDS and Hepatitis C in staggering numbers. The Bleeding Disease recounts the promising and perilous history of American medical and social efforts to manage hemophilia in the twentieth century. This is both a success story and a cautionary tale, one built on the emergence in the 1950s and 1960s of an advocacy movement that sought normalcy—rather than social isolation and hyper-protectiveness—for the boys and men who suffered from the severest form of the disease. Stephen Pemberton evokes the allure of normalcy as well as the human costs of medical and technological progress in efforts to manage hemophilia. He explains how physicians, advocacy groups, the blood industry, and the government joined patients and families in their unrelenting pursuit of normalcy—and the devastating, unintended consequences that pursuit entailed. Ironically, transforming the hope of a normal life into a purchasable commodity for people with bleeding disorders made it all too easy to ignore the potential dangers of delivering greater health and autonomy to hemophilic boys and men.
A Traveler's Memoir from Costa Rica to Cambodia
Through personal journeys both interior and across the globe, Alden Jones investigates what motivates us to travel abroad in search of the unfamiliar.
Essays in Psychoanalytic Folkloristics
Bloody Mary in the Mirror mixes Sigmund Freud with vampires and The Little Mermaid to see what new light psychoanalysis can bring to folklore techniques and forms.
Ever since Freud published his analysis of Jewish jokes in 1905 and his disciple Otto Rank followed with his groundbreaking The Myth of the Birth of the Hero in 1909, the psychoanalytic study of folklore has been an acknowledged part of applied psychoanalysis.
However, psychoanalysts, handicapped by their limited knowledge of folklore techniques, have tended to confine their efforts to the Bible, to classical mythology, and to the Grimm fairy tales. Most folklorists have been slow to consider psychoanalysis as a method of interpreting folklore.
One notable exception is folklorist Alan Dundes. In the seven fascinating essays of Bloody Mary in the Mirror, psychoanalytic theory illuminates such folklore genres as legend (in the vampire tale), folktale (in the ancient Egyptian tale of two brothers), custom (in fraternity hazing and ritual fasting), and games (in the modern Greek game of "Long Donkey"). One of two essays Dundes co-authored with his daughter Lauren Dundes, professor of sociology at Western Maryland College, successfully probes the content of Disney's The Little Mermaid, yielding new insights into this popular reworking of a Hans Christian Andersen favorite.
Among folk rituals investigated is the girl's game of "Bloody Mary." Elementary or middle school-age girls huddle in a darkened bathroom awaiting the appearance in the mirror of a frightening apparition. The plausible analysis of this well-known--if somewhat puzzling--American rite is one of many surprising and enlightening finds in this book.
All of the essays in this remarkable volume create new takes on old traditions. Bloody Mary in the Mirror is an expedition into psychoanalytic folklore techniques and constitutes a giant step towards realizing the potential Freud's work promises for folklore studies.
Alan Dundes is professor of anthropology and folklore at the University of California, Berkeley. Among many others, his books include Interpreting Folklore (1980) and From Game to War and Other Psychoanalytic Essays on Folklore (1997). He edited Mother Wit from the Laughing Barrel: Readings in the Interpretation of Afro-American Folklore (1991), which was published by University Press of Mississippi.
Euthanasia in Veterinary Medicine
Offering a candid behind-the-scenes look at small-animal veterinary practices, Blue Juice explores the emotional and ethical conflicts involved in providing a "good death" for companion animals. Patricia Morris presents a nuanced ethnographic account of how veterinarians manage patient care and client relations when their responsibility shifts from saving an animal's life to negotiating a decision to end it.
Using her own experiences and observations in veterinary settings as well as the voices of seasoned and novice vets, Morris reveals how veterinarians think about euthanasia and why this "dirty work" often precipitates "burnout," moral quandaries, and even tense or emotional interactions with clients. Closely observing these interactions, Morris illuminates the ways in which euthanasia reflects deep and unresolved tension in human-animal relationships.
Blue Juice seeks to understand how practitioners, charged with the difficult task of balancing the interests of animals and their humans, deal with the responsibility of ending their patients' lives.
Fighting for Safe Workplaces and Healthy Communities
What do unions and environmental groups have to gain by working together and how do they overcome their differences? In Blue-Green Coalitions, Brian Mayer answers these questions by focusing on the role that health-related issues have played in creating a common ground between the two groups. By recognizing that the same toxics that cause workplace hazards escape into surrounding communities and the environment, workers and environmentalists are able to collaborate for the protection of all.
Mayer examines three contemporary cases of successful labor-environmental alliances to demonstrate how health and safety issues are used to create durable and politically influential social movement coalitions:
•Alliance for a Healthy Tomorrow, a coalition of environmental, labor, community, and public health organizations in Massachusetts that has developed a successful prevention-based approach to safe workplaces and a clean environment;
•the Work Environment Council in New Jersey, which succeeded in passing the first statewide right-to-know law and concentrates on protecting citizens from the dangerous toxics generated by the state's chemical industries;
•the Silicon Valley Toxics Coalition, an organization that began in the 1980s fighting hazardous high-tech practices that were affecting the Valley residents and the high-tech industry's largely immigrant workforce.
In Mayer's ethnographic accounts of the challenging work of bringing these blue-green coalitions together, it becomes clear that stereotypes about environmentalists and workers are largely irrelevant when thinking about who is at risk of exposure to dangerous toxic substances. Both movements share a common concern for protecting their members' health from toxic hazards that are by-products of the modern industrial economy.
An American History of Intersex
What does it mean to be human? To be human is, in part, to be physically sexed and culturally gendered. Yet not all bodies are clearly male or female. Bodies in Doubt traces the changing definitions, perceptions, and medical management of intersex (atypical sex development) in America from the colonial period to the present day. From the beginning, intersex bodies have been marked as "other," as monstrous, sinister, threatening, inferior, and unfortunate. Some nineteenth-century doctors viewed their intersex patients with disrespect and suspicion. Later, doctors showed more empathy for their patients' plights and tried to make correct decisions regarding their care. Yet definitions of "correct" in matters of intersex were entangled with shifting ideas and tensions about what was natural and normal, indeed about what constituted personhood or humanity. Reis has examined hundreds of cases of “hermaphroditism” and intersex found in medical and popular literature and argues that medical practice cannot be understood outside of the broader cultural context in which it is embedded. As the history of responses to intersex bodies has shown, doctors are influenced by social concerns about marriage and heterosexuality. Bodies in Doubt considers how Americans have interpreted and handled ambiguous bodies, how the criteria and the authority for judging bodies changed, how both the binary gender ideal and the anxiety over uncertainty persisted, and how the process for defining the very norms of sex and gender evolved. Bodies in Doubt breaks new ground in examining the historical roots of modern attitudes about intersex in the United States and will interest scholars and researchers in disability studies, social history, gender studies, and the history of medicine.
Environmental Illness and the Struggle Over Medical Knowledge
Gulf War Syndrome: Is It a Real Disease? asks a recent headline in the New York Times. This questionare certain diseases real?lies at the heart of a simmering controversy in the United States, a debate that has raged, in different contexts, for centuries. In the early nineteenth century, the air of European cities, polluted by open sewers and industrial waste, was generally thought to be the source of infection and disease. Thus the term miasmaliterally deathlike aircame into popular use, only to be later dismissed as medically unsound by Louis Pasteur.
While controversy has long swirled in the United States around such illnesses as chronic fatigue syndrome and Epstein-Barr virus, no disorder has been more aggressively contested than environmental illness, a disease whose symptoms are distinguished by an extreme, debilitating reaction to a seemingly ordinary environment. The environmentally ill range from those who have adverse reactions to strong perfumes or colognes to others who are so sensitive to chemicals of any kind that they must retreat entirely from the modern world.
Bodies in Protest does not seek to answer the question of whether or not chemical sensitivity is physiological or psychological, rather, it reveals how ordinary people borrow the expert language of medicine to construct lay accounts of their misery. The environmentally ill are not only explaining their bodies to themselves, however, they are also influencing public policies and laws to accommodate the existence of these mysterious illnesses. They have created literally a new body that professional medicine refuses to acknowledge and one that is becoming a popular model for rethinking conventional boundaries between the safe and the dangerous.
Having interviewed dozens of the environmentally ill, the authors here recount how these people come to acknowledge and define their disease, and themselves, in a suddenly unlivable world that often stigmatizes them as psychologically unstable. Bodies in Protest is the dramatic story of human bodies that no longer behave in a manner modern medicine can predict and control.
The Medicalization of Reproduction in Greece
The author, a second-generation Greek American, returned to Greece with her young daughter to do fieldwork over the course of a decade. Focusing on Rhodes, an island that blends continuity with the past and rapid social change in often unexpected ways, she interviewed over a hundred women, doctors, and midwives about issues of reproduction. The result is a detailed portrait of how a longstanding system of “local” gynecological and obstetrical knowledge under the control of women was rapidly displaced in the period following World War II, and how the technologically-intensive biomedical model that took its place in turn assumed its own distinctive signature. Bodies of Knowledge is a vivid ethnographic study of how a presumably globalizing and homogenizing process like medicalization can be reshaped as women and medical experts alike selectively accept or reject new practices and technologies. Georges found, for example, that women in Rhodes have enthusiastically embraced some new technologies, like fetal imaging during pregnancy, but rejected others, like medical contraception. They are also avid consumers of popular childbirth manuals. This book is the recipient of the 2006 Norman L. and Roselea J. Goldberg Prize for the best project in the area of medicine.