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An American History of Intersex
What does it mean to be human? To be human is, in part, to be physically sexed and culturally gendered. Yet not all bodies are clearly male or female. Bodies in Doubt traces the changing definitions, perceptions, and medical management of intersex (atypical sex development) in America from the colonial period to the present day. From the beginning, intersex bodies have been marked as "other," as monstrous, sinister, threatening, inferior, and unfortunate. Some nineteenth-century doctors viewed their intersex patients with disrespect and suspicion. Later, doctors showed more empathy for their patients' plights and tried to make correct decisions regarding their care. Yet definitions of "correct" in matters of intersex were entangled with shifting ideas and tensions about what was natural and normal, indeed about what constituted personhood or humanity. Reis has examined hundreds of cases of “hermaphroditism” and intersex found in medical and popular literature and argues that medical practice cannot be understood outside of the broader cultural context in which it is embedded. As the history of responses to intersex bodies has shown, doctors are influenced by social concerns about marriage and heterosexuality. Bodies in Doubt considers how Americans have interpreted and handled ambiguous bodies, how the criteria and the authority for judging bodies changed, how both the binary gender ideal and the anxiety over uncertainty persisted, and how the process for defining the very norms of sex and gender evolved. Bodies in Doubt breaks new ground in examining the historical roots of modern attitudes about intersex in the United States and will interest scholars and researchers in disability studies, social history, gender studies, and the history of medicine.
Environmental Illness and the Struggle Over Medical Knowledge
Gulf War Syndrome: Is It a Real Disease? asks a recent headline in the New York Times. This questionare certain diseases real?lies at the heart of a simmering controversy in the United States, a debate that has raged, in different contexts, for centuries. In the early nineteenth century, the air of European cities, polluted by open sewers and industrial waste, was generally thought to be the source of infection and disease. Thus the term miasmaliterally deathlike aircame into popular use, only to be later dismissed as medically unsound by Louis Pasteur.
While controversy has long swirled in the United States around such illnesses as chronic fatigue syndrome and Epstein-Barr virus, no disorder has been more aggressively contested than environmental illness, a disease whose symptoms are distinguished by an extreme, debilitating reaction to a seemingly ordinary environment. The environmentally ill range from those who have adverse reactions to strong perfumes or colognes to others who are so sensitive to chemicals of any kind that they must retreat entirely from the modern world.
Bodies in Protest does not seek to answer the question of whether or not chemical sensitivity is physiological or psychological, rather, it reveals how ordinary people borrow the expert language of medicine to construct lay accounts of their misery. The environmentally ill are not only explaining their bodies to themselves, however, they are also influencing public policies and laws to accommodate the existence of these mysterious illnesses. They have created literally a new body that professional medicine refuses to acknowledge and one that is becoming a popular model for rethinking conventional boundaries between the safe and the dangerous.
Having interviewed dozens of the environmentally ill, the authors here recount how these people come to acknowledge and define their disease, and themselves, in a suddenly unlivable world that often stigmatizes them as psychologically unstable. Bodies in Protest is the dramatic story of human bodies that no longer behave in a manner modern medicine can predict and control.
The Medicalization of Reproduction in Greece
The author, a second-generation Greek American, returned to Greece with her young daughter to do fieldwork over the course of a decade. Focusing on Rhodes, an island that blends continuity with the past and rapid social change in often unexpected ways, she interviewed over a hundred women, doctors, and midwives about issues of reproduction. The result is a detailed portrait of how a longstanding system of “local” gynecological and obstetrical knowledge under the control of women was rapidly displaced in the period following World War II, and how the technologically-intensive biomedical model that took its place in turn assumed its own distinctive signature. Bodies of Knowledge is a vivid ethnographic study of how a presumably globalizing and homogenizing process like medicalization can be reshaped as women and medical experts alike selectively accept or reject new practices and technologies. Georges found, for example, that women in Rhodes have enthusiastically embraced some new technologies, like fetal imaging during pregnancy, but rejected others, like medical contraception. They are also avid consumers of popular childbirth manuals. This book is the recipient of the 2006 Norman L. and Roselea J. Goldberg Prize for the best project in the area of medicine.
The Matter of Maladies in Tanzania
This subtle and powerful ethnography examines African healing and its relationship to medical science. Stacey A. Langwick investigates the practices of healers in Tanzania who confront the most intractable illnesses in the region, including AIDS and malaria. She reveals how healers generate new therapies and shape the bodies of their patients as they address devils and parasites, anti-witchcraft medicine, and child immunization. Transcending the dualisms between tradition and science, culture and nature, belief and knowledge, Langwick tells a new story about the materiality of healing and postcolonial politics. This important work bridges postcolonial theory, science, public health, and anthropology.
Propaganda, Hygiene, and the Revolutionary State
Parenting and Adult-Child Intimacy
Discussing issues of parent-child contact ranging from breastfeeding and sleeping arrangements to sexual abuse, Jean O'Malley Halley traces the evolution of mainstream ideas about touching between adults and children over the course of the twentieth century in the United States. Boundaries of Touch shows how arguments about adult-child touch have been politicized, simplified, and bifurcated into "naturalist" and "behaviorist" viewpoints, thereby sharpening certain binary constructions such as mind/body and male/female. In addition to contemporary periodicals and self-help books on child rearing, Halley uses information gathered from interviews she conducted with mothers ranging in age from twenty-eight to seventy-three. Throughout, she reveals how the parent-child relationship, far from being a private or benign subject, continues as a highly contested, politicized affair of keen public interest.
Contemporary Controversies in Infant-Feeding Policy and Practice
Breast or Bottle? is the first scholarly examination of the shift in breastfeeding recommendations occurring over the last half century. Through a close analysis of scientific and medical controversies and a critical examination of the ways in which medical beliefs are communicated to the public, Amy Koerber exposes layers of shifting arguments and meaning that inform contemporary infant-feeding advocacy and policy. Whereas the phrase "breast or bottle" might once have implied a choice between two relative equals, human milk is now believed to possess unique health-promoting qualities. Although it is tempting to view this revision in medical thinking as solely the result of scientific progress, Koerber argues that a progress-based interpretation is incomplete. Epidemiologic evidence demonstrating the health benefits of human milk has grown in recent years, but the story of why these forms of evidence have dramatically increased in recent decades, Koerber reveals, is a tale of the dedicated individuals, coalitions, and organizations engaged in relentless rhetorical efforts to improve our scientific explanations and cultural appreciation of human milk, lactation, and breastfeeding in the context of a historical tendency to devalue these distinctly female aspects of the human body. Koerber demonstrates that the rhetoric used to promote breastfeeding at a given time and cultural moment not only reflects a preexisting reality but also shapes the infant-feeding experience for new mothers. Koerber's claims are grounded in extensive rhetorical research including textual analysis, archival research, and interviews with key stakeholders in the breastfeeding controversy. Her approach offers a vital counterpoint to other feminist analyses of the shift toward probreastfeeding scientific discourse and presents a revealing rhetorical case study in the complex relationship between scientific data and its impact on medical policy and practices. The resulting interdisciplinary study will be of keen interest to scholars and students of rhetoric, communication, women's studies, medical humanities, and public health as well as medical practitioners and policymakers.
The Surprising Career of the Spirometer from Plantation to Genetics
In the antebellum South, plantation physicians used a new medical device—the spirometer—to show that lung volume and therefore vital capacity were supposedly less in black slaves than in white citizens. At the end of the Civil War, a large study of racial difference employing the spirometer appeared to confirm the finding, which was then applied to argue that slaves were unfit for freedom. What is astonishing is that this example of racial thinking is anything but a historical relic.
In Breathing Race into the Machine, science studies scholar Lundy Braun traces the little-known history of the spirometer to reveal the social and scientific processes by which medical instruments have worked to naturalize racial and ethnic differences, from Victorian Britain to today. Routinely a factor in clinical diagnoses, preemployment physicals, and disability estimates, spirometers are often “race corrected,” typically reducing normal values for African Americans by 15 percent.
An unsettling account of the pernicious effects of racial thinking that divides people along genetic lines, Breathing Race into the Machine helps us understand how race enters into science and shapes medical research and practice.
The History of Coerced Sterilization in the United States
Most closely associated today with the Nazis and World War II atrocities, eugenics is sometimes described as a government-orchestrated breeding program, other times as a pseudo-science, and often as the first step leading to genocide. Less frequently is it depicted as a movement having links to the United States. But eugenics does have a history in this country, and Mark Largent tells that story by exploring one of the most disturbing aspects, the compulsory asterilization of more than 64,000 Americans.