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A Clinician's Guide to Helping Children Cope and Cooperate with Medical Care

An Applied Behavioral Approach

Keith J. Slifer, Ph.D.

Keith J. Slifer, Ph.D., a pediatric psychologist at the Kennedy Krieger Institute and the Johns Hopkins University School of Medicine, draws on practice and research to help health care practitioners provide better care for children with chronic conditions and children undergoing rehabilitation after traumatic injury or surgery. By better understanding the behavior, emotions, and developmental challenges of children, health care professionals in practice and in training can solve a range of problems, from getting a distressed child to cooperate with a physical examination or diagnostic test, to teaching a child to adhere to medical self-care. More than nine million children in the United States regularly visit health care professionals for treatment of chronic or recurrent health conditions. These children experience multiple doctors’ visits, trips to the Emergency Department, hospital admissions, anesthesia, surgery, medications, needle sticks, wound cleaning, seizures, nausea, vomiting, pain, and fear. While most of these children are developing typically in terms of their intellectual and cognitive functioning, many children with intellectual, developmental, and physical disabilities also require frequent medical care, and as chronic health conditions increase so do the chances of having developmental, learning, emotional, and behavioral problems. A Clinician's Guide to Helping Children Cope and Cooperate with Medical Care will benefit both health care professionals and children as practitioners aim to improve medical care and prevent the children’s behavior from disrupting clinics and distressing and frustrating health care workers and family caregivers. This book is for pediatric psychologists, pediatricians, family medicine practitioners, physician’s assistants, nurse specialists, pediatric subspecialists, and students in these fields—and for family members dedicated to helping their children cope with medical procedures and get the best possible medical care.

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Community Organizing and Community Building for Health and Welfare

Edited by Meredith Minkler

The third edition of Community Organizing and Community Building for Healthand Welfare provides new and more established ways to approach community building and organizing, from collaborating with communities on assessment and issue selection to using the power of coalition building, media advocacy, and social media to enhance the effectiveness of such work.

 

With a strong emphasis on cultural relevance and humility, this collection offers a wealth of case studies in areas ranging from childhood obesity to immigrant worker rights to health care reform. A “tool kit” of appendixes includes guidelines for assessing coalition effectiveness, exercises for critical reflection on our own power and privilege, and training tools such as “policy bingo.” From former organizer and now President Barack Obama to academics and professionals in the fields of public health, social work, urban planning, and community psychology, the book offers a comprehensive vision and on-the-ground examples of the many ways community building and organizing can help us address some of the most intractable health and social problems of our times.

 

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Contemporary Public Health

Principles, Practice, and Policy

edited by James W. Holsinger Jr.. foreword by David M. Lawrence

Public health refers to the management and prevention of disease within a population by promoting healthy behaviors and environments in an effort to create a higher standard of living. In this comprehensive volume, editor James W. Holsinger Jr. and an esteemed group of scholars and practitioners offer a concise overview of this burgeoning field, emphasizing that the need for effective services has never been greater.

Designed as a supplemental text for introductory courses in public health practice at the undergraduate and graduate levels, Contemporary Public Health provides historical background that contextualizes the current state of the field and explores the major issues practitioners face today. It addresses essential topics such as the social and ecological determinants of health and their impact on practice, marginalized populations, the role of community-oriented primary care, the importance of services and systems research, accreditation, and the organizational landscape of the American public health system. Finally, it examines international public health and explores the potential of systems based on multilevel partnerships of government, academic, and nonprofit organizations.

With fresh historical and methodological analyses conducted by an impressive group of distinguished authors, this text is an essential resource for practitioners, health advocates, and students.

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Cultivating Health

Los Angeles Women and Public Health Reform

Jennifer Lisa Koslow

Cultivating Health, an interdisciplinary chronicle, details women's impact on remaking health policy, despite the absence of government support. Jennifer Lisa Koslow explores community nursing, housing reform, milk sanitation, childbirth, and the campaign against venereal disease in late nineteenth and early twentieth century Los Angeles. She demonstrates how women implemented health care reform and civic programs and highlights women's home health care, urban policy-changing accomplishments, and pays tribute to what would become the model for similar service-based systems in other American centers.

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Culture and PTSD

Trauma in Global and Historical Perspective

Edited by Devon E. Hinton and Byron J. Good

Since the 1970s, understanding of the effects of trauma, including flashbacks and withdrawal, has become widespread in the United States. As a result Americans can now claim that the phrase posttraumatic stress disorder (PTSD) is familiar even if the American Psychiatric Association's criteria for diagnosis are not. As embedded as these ideas now are in the American mindset, however, they are more widely applicable, this volume attempts to show, than is generally recognized. The essays in Culture and PTSD trace how trauma and its effects vary across historical and cultural contexts.

Culture and PTSD examines the applicability of PTSD to other cultural contexts and details local responses to trauma and the extent they vary from PTSD as defined in the American Psychiatric Association's Diagnostic and Statistical Manual. Investigating responses in Peru, Indonesia, Haiti, and Native American communities as well as among combat veterans, domestic abuse victims, and adolescents, contributors attempt to address whether PTSD symptoms are present and, if so, whether they are a salient part of local responses to trauma. Moreover, the authors explore other important aspects of the local presentation and experience of trauma-related disorder, whether the Western concept of PTSD is known to lay members of society, and how the introduction of PTSD shapes local understandings and the course of trauma-related disorders.

By attempting to determine whether treatments developed for those suffering PTSD in American and European contexts are effective in global settings of violence or disaster, Culture and PTSD questions the efficacy of international responses that focus on trauma.

Contributors: Carmela Alcántara, Tom Ball, James K. Boehnlein, Naomi Breslau, Whitney Duncan, Byron J. Good, Mary-Jo DelVecchio Good, Jesse H. Grayman, Bridget M. Haas, Devon E. Hinton, Erica James, Janis H. Jenkins, Hanna Kienzler, Brandon Kohrt, Roberto Lewis-Fernández, Richard J. McNally, Theresa D. O'Nell, Duncan Pedersen, Nawaraj Upadhaya, Carol M. Worthman, Allan Young

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The Death of a Disease

A History of the Eradication of Poliomyelitis

Edited by Bernard Seytre and Mary M. Shaffer

In a national survey, 19 million Americans said they have a family member with Alzheimer's, and 37 million said they knew someone who had it. But when Rosette Teitel found herself in the role of caregiver to her ailing husband, she could find no books that answered her practical needs: How do you give a 170-pound man a shower? How do you pick him up when he falls? What support networks are available? When is it time to consider a nursing home and how do you find one?While many books about Alzheimer's disease focus on the illness and the patient, Teitel draws on her own experience to tackle subjects rarely dealt with in other self-help books. She covers topics such as managing the expenses of long-term care through Medicaid, estate planning, and preparing for the patient's death and the loss of someone whose daily survival has been at the center of one's existence. The chapters contain information on diagnosis, treatment, and the progression of the disease; the physical and emotional changes involved with the day-to-day caregiving; support networks; nursing homes; finances; death of the patient; mourning, and life after the patient's death; and interviews with caring children of parents with Alzheimer's disease. In addition, Teitel provides a helpful list of frequently asked questions, scheduling and memory aids, and websites where readers can find resources.

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Disease and Discovery

A History of the Johns Hopkins School of Hygiene and Public Health, 1916–1939

Elizabeth Fee

At the end of the nineteenth century, public health was the province of part-time political appointees and volunteer groups of every variety. Public health officers were usually physicians, but they could also be sanitary engineers, lawyers, or chemists—there was little agreement about the skills and knowledge necessary for practice. In Disease and Discovery, Elizabeth Fee examines the conflicting ideas about public health’s proper subject and scope and its search for a coherent professional unity and identity. She draws on the debates and decisions surrounding the establishment of what was initially known as the Johns Hopkins School of Hygiene and Public Health, the first independent institution for public health research and education, to crystallize the fundamental questions of the field.

Many of the issues of public health education in the early twentieth century are still debated today. What is the proper relationship of public health to medicine? What is the relative importance of biomedical, environmental, and sociopolitical approaches to public health? Should schools of public health emphasize research skills over practical training? Should they provide advanced training and credentials for the few or simpler educational courses for the many?

Fee explores the many dimensions of these issues in the context of the founding of the Johns Hopkins school. She details the efforts to define the school’s structure and purpose, select faculty and students, and organize the curriculum, and she follows the school’s growth and adaptation to the changing social environment through the beginning of World War II. As Fee demonstrates, not simply in its formation but throughout its history the School of Hygiene served as a crucible for the forces shaping the public health profession as a whole.

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Divining without Seeds

The Case for Strengthening Laboratory Medicine in Africa

by Iruka N. Okeke

Infectious disease is the most common cause of illness and death in Africa, yet health practitioners routinely fail to identify causative microorganisms in most patients. As a result, patients often do not receive the right medicine in time to cure them promptly even when such medicine is available, outbreaks are larger and more devastating than they should be, and the impact of control interventions is difficult to measure. Wrong prescriptions and prolonged infections amount to needless costs for patients and for health systems. In Divining without Seeds, Iruka N. Okeke forcefully argues that laboratory diagnostics are essential to the effective practice of medicine in Africa.

The diversity of endemic life-threatening infections and limited public health resources in tropical Africa make the need for basic laboratory diagnostic support even more acute than in other parts of the world. This book gathers compelling case studies of inadequate diagnoses of diseases ranging from fevers-including malaria-to respiratory infections and sexually transmitted diseases. The inherited and widely prevalent health clinic model, which excludes or diminishes the hospital laboratory, is flawed, to often devastating effect. Fortunately, there are new technologies that make it possible to inexpensively implement testing at the primary care level. Divining without Seeds makes clear that routine use of appropriate diagnostic support should be part of every drug delivery plan in Africa and that diagnostic development should be given high priority.

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Doctors Serving People

Restoring Humanism to Medicine through Student Community Service

Edward J. Eckenfels

Today's physicians are medical scientists, drilled in the basics of physiology, anatomy, genetics, and chemistry. They learn how to crunch data, interpret scans, and see the human form as a set of separate organs and systems in some stage of disease. Missing from their training is a holistic portrait of the patient as a person and as a member of a community. Yet a humanistic passion and desire to help people often are the attributes that compel a student toward a career in medicine. So what happens along the way to tarnish that idealism? Can a new approach to medical education make a difference? Doctors Serving People is just such a prescriptive. While a professor at Rush Medical College in Chicago, Edward J. Eckenfels helped initiate and direct a student-driven program in which student doctors worked in the poor, urban communities during medical school, voluntarily and without academic credit. In addition to their core curriculum and clinical rotations, students served the social and health needs of diverse and disadvantaged populations. Now more than ten years old, the program serves as an example for other medical schools throughout the country. Its story provides a working model of how to reform medical education in America.

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Doctors Without Borders

Humanitarian Quests, Impossible Dreams of Médecins Sans Frontières

Renée C. Fox

Médecins Sans Frontières / Doctors Without Borders (MSF) is a private international medical humanitarian organization that was created by a small group of French doctors and journalists in 1971. In 1988, MSF was awarded the Nobel Prize for Peace in recognition of the worldwide assistance it provides for people in distress who are victims of manmade and natural disasters and armed conflict. Committed to the principles of neutrality, impartiality, and independence, the men and women of MSF bear witness by speaking out about conditions of extreme need and suffering, acts of violence against individuals or groups, and threats or hindrances to medical care that they observe in the course of carrying out their work. Renée C. Fox is a sociologist known particularly for her pioneering work in medical sociology and for her ethnographic research and writing. Doctors Without Borders is based on the first-hand research she conducted about and within MSF since 1993. Its vivid, “thickly descriptive” data are derived from her participant observation, in-depth interviewing, and collection of primary and secondary documents in numerous MSF contexts. The book begins on the ground with the blogs of women and men of MSF in the field, recounting their experiences in moving detail. From there it chronicles MSF’s early history and development, paying special attention to its inner struggles, during the first decades of its existence, to clarify and implement its principles and to more fully realize its “without borders” transnational vision. Detailed case studies form the core of the book, describing MSF in postapartheid South Africa, dealing with that nation’s rampant epidemic of HIV/AIDS, and MSF in postsocialist Russia, responding to the thousands of homeless persons on the streets of Moscow and to the massive epidemic of tuberculosis in the penal colonies of Siberia. The book ends with an account of the fortieth anniversary meeting of MSF in Paris and with the author’s exit from the field. Doctor Without Borders tells a narrative enriched by photographs of MSF missions and by ironic, self-critical cartoons drawn by a member of the Communications Department of MSF France.

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