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The Tangled History of Cardiac Care
Still the leading cause of death worldwide, heart disease challenges researchers, clinicians, and patients alike. Each day, thousands of patients and their doctors make decisions about coronary angioplasty and bypass surgery. In Broken Hearts David S. Jones sheds light on the nature and quality of those decisions. He describes the debates over what causes heart attacks and the efforts to understand such unforeseen complications of cardiac surgery as depression, mental fog, and stroke. Why do doctors and patients overestimate the effectiveness and underestimate the dangers of medical interventions, especially when doing so may lead to the overuse of medical therapies? To answer this question, Jones explores the history of cardiology and cardiac surgery in the United States and probes the ambiguities and inconsistencies in medical decision making. Based on extensive reviews of medical literature and archives, this historical perspective on medical decision making and risk highlights personal, professional, and community outcomes.
Because health care works best when patients assume greater responsibility for their own health, community outreach and patient education have taken on increased importance. Building Healthy Communities through Medical-Religious Partnerships describes an innovative approach to the development of community-based health education and patient advocacy programs targeted at the prevention and management of disease. Partnerships between health systems and religious congregations, the authors show, can be remarkably successful at bringing appropriate care to people who are often difficult to serve. The book offers valuable guidance for religious and medical leaders interested in developing programs in their congregations and communities. It includes practical and accessible information for establishing health education programs, identifies additional resources that can be obtained from local and national organizations, and discusses a range of medical topics. It also outlines how to train volunteers to assist others in navigating our complex health system. This revised and expanded edition of Building Healthy Communities through Medical-Religious Partnerships includes several new chapters along with descriptions of five medical-religious partnership models. Special attention is given to the challenges and opportunities presented by our aging and increasingly diverse population.
Epidemics and Human Response in Western History, Revised Edition
In this updated edition of The Burdens of Disease, with revisions and additions to the original content, including the evolution of drug-resistant diseases and expanded coverage of HIV/AIDS, along with recent data on mortality figures and other relevant statistics, J. N. Hays chronicles perceptions and responses to plague and pestilence over two thousand years of western history. Disease is framed as a multidimensional construct, situated at the intersection of history, politics, culture, and medicine, and rooted in mentalities and social relations as much as in biological conditions of pathology.
Who Decides What?
People do not choose to suffer from catastrophic illnesses, but considerable human choice is involved in the ways in which the participants in the process treat and conduct research on these diseases.
Catastrophic Diseases draws a powerful and humane portrait of the patients who suffer from these illnesses as well as of the physician-investigators who treat them, and describes the major pressures, conflicts, and decisions which confront all of them. By integrating a discussion of "facts" and "values," the authors highlight the forces which affect new developments in medicine—such as kidney and heart transplants—and the controversial issues they generate.
Katz and Capron explore these issues through the use of dual conceptual perspectives. Their study first examines and evaluates the authority which should be vested in each of the chief participants in the catastrophic disease process—the physician-investigator, the patient-subject and his relatives, the professionals, and the state. Challenging questions are raised concerning medical education, informed consent, and professional responsibility. The authors next explore how the roles and capacities of the participants vary not only according to the basic issues they face but also according to the point in decision-making at which these issues arise. The process of investigating and treating catastrophic diseases, the authors believe, can thus usefully be divided into three decision-making stages—the formulation of policy, the administration of research and therapy, and the review of the decisions and their consequences.
In conclusion, Katz and Capron demonstrate the need for a variety of individuals and groups with diverse values to be involved in decision-making in a manner which will not unnecessarily impede the scientific investigation of these diseases.
Making a Difference through Advocacy
Who will speak for the children? is the question posed by Judith S. Palfrey, a pediatrician and child advocate who confronts unconscionable disparities in U.S. health care—a system that persistently fails sick and disabled children despite annual expenditures of $1.8 trillion. In Child Health in America, Palfrey explores the meaning of advocacy to children's health and describes how health providers, community agencies, teachers, parents, and others can work together to bring about needed change. Palfrey presents a conceptual framework for child health advocacy consisting of four interconnected components: clinical, group, professional, and legislative. Describing each of these concepts in useful and compelling detail, she is also careful to provide examples of best practices. This original and progressive work affirms the urgent need for child advocacy and provides valuable guidance to those seeking to participate in efforts to help all children live healthier, happier lives.
Chronicity and the Anthropology of Illness
The essays commissioned for this book analyze the impact of city living on health, focusing primarily on conditions in the United States. With 16 chapters by 24 internationally recognized experts, the book introduces an ecological approach to the study of the health of urban populations. This book assesses the primary determinants of well-being in cities, including the social and physical environments, diet, and health care and social services. The book includes chapters on the history of public health in cities, the impact of urban sprawl and urban renewal on health, and the challenges facing cities in the developing world. It also examines conditions such as infectious diseases, violence and disasters, and mental illness.
Urban Schools and the Protection and Promotion of Child Health, 1870-1930
Classrooms and Clinics is the first book-length assessment of the development of public school health policies from the late nineteenth century through the early years of the Great Depression. Richard A. Meckel examines the efforts of early twentieth-century child health care advocates and reformers to utilize urban schools to deliver health care services to socioeconomically disadvantaged and medically underserved children in the primary grades. Their goal, Meckel shows, was to improve the children’s health and thereby improve their academic performance.
Meckel situates these efforts within a larger late nineteenth- and early twentieth-century public discourse relating schools and schooling, especially in cities and towns, to child health. He describes and explains how that discourse and the school hygiene movement it inspired served as critical sites for the constructive negotiation of the nature and extent of the public school’s—and by extension the state’s—responsibility for protecting and promoting the physical and mental health of the children for whom it was providing a compulsory education.
Tracing the evolution of that negotiation through four overlapping stages, Meckel shows how, why, and by whom the health of schoolchildren was discursively constructed as a sociomedical problem and charts and explains the changes that construction underwent over time. He also connects the changes in problem construction to the design and implementation of various interventions and services and evaluates how that design and implementation were affected by the response of the civic, parental, professional, educational, public health, and social welfare groups that considered themselves stakeholders and took part in the discourse. And, most significantly, he examines the responses called forth by the question at the heart of the negotiations: what services are necessitated by the state’s and school’s taking responsibility for protecting and promoting the health and physical and mental development of schoolchildren. He concludes that the negotiations resulted both in the partial medicalization of American primary education and in the articulation and adoption of a school health policy that accepted the school’s responsibility for protecting and promoting the health of its students while largely limiting the services called for to the preventive and educational.
An Applied Behavioral Approach
Keith J. Slifer, Ph.D., a pediatric psychologist at the Kennedy Krieger Institute and the Johns Hopkins University School of Medicine, draws on practice and research to help health care practitioners provide better care for children with chronic conditions and children undergoing rehabilitation after traumatic injury or surgery. By better understanding the behavior, emotions, and developmental challenges of children, health care professionals in practice and in training can solve a range of problems, from getting a distressed child to cooperate with a physical examination or diagnostic test, to teaching a child to adhere to medical self-care. More than nine million children in the United States regularly visit health care professionals for treatment of chronic or recurrent health conditions. These children experience multiple doctors’ visits, trips to the Emergency Department, hospital admissions, anesthesia, surgery, medications, needle sticks, wound cleaning, seizures, nausea, vomiting, pain, and fear. While most of these children are developing typically in terms of their intellectual and cognitive functioning, many children with intellectual, developmental, and physical disabilities also require frequent medical care, and as chronic health conditions increase so do the chances of having developmental, learning, emotional, and behavioral problems. A Clinician's Guide to Helping Children Cope and Cooperate with Medical Care will benefit both health care professionals and children as practitioners aim to improve medical care and prevent the children’s behavior from disrupting clinics and distressing and frustrating health care workers and family caregivers. This book is for pediatric psychologists, pediatricians, family medicine practitioners, physician’s assistants, nurse specialists, pediatric subspecialists, and students in these fields—and for family members dedicated to helping their children cope with medical procedures and get the best possible medical care.
With a strong emphasis on cultural relevance and humility, this collection offers a wealth of case studies in areas ranging from childhood obesity to immigrant worker rights to health care reform. A “tool kit” of appendixes includes guidelines for assessing coalition effectiveness, exercises for critical reflection on our own power and privilege, and training tools such as “policy bingo.” From former organizer and now President Barack Obama to academics and professionals in the fields of public health, social work, urban planning, and community psychology, the book offers a comprehensive vision and on-the-ground examples of the many ways community building and organizing can help us address some of the most intractable health and social problems of our times.