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Chronic Disease and Slow Death in Nineteenth-Century France
Incurable and Intolerable looks at the history of incurable illness from a variety of perspectives, including doctors, patients, families, religious counsel, and policy makers. This compellingly documented history illuminates the physical, emotional, social, and existential consequences of chronic disease and terminal illness, and offers an original look at the world of palliative medicine, politics, religion, and charity. Jason Szabo encourages a more careful scrutiny of today's attitudes, policies, and practices surrounding "imminent death" and its effects on society.
Schizophrenia, Epilepsy, AIDS, and the Course of Health Activism
Not merely a revision of the history of this time period, Indirect Action expands the historiographical boundaries through which illness and health activism in the U.S. have been viewed. Diedrich explores the multiplicity illness-thought-politics through an array of subjects: queering the origin story of AIDS activism by recalling its feminist history; exploring health activism and the medical experience; analyzing psychiatry and self-help movements; thinking ecologically about counter-practices of generalism in science and medicine; and considering the experience and event of epilepsy and the witnessing of schizophrenia.
Indirect Action places illness in the leading role in the production of thought during the emergence of AIDS, ultimately showing the critical interconnectedness of illness and political and critical thought.
A History of Caring for Dying Patients in America
At the turn of the twentieth century, medicine’s imperative to cure disease increasingly took priority over the demand to relieve pain and suffering at the end of life. Filled with heartbreaking stories, The Inevitable Hour demonstrates that professional attention and resources gradually were diverted from dying patients. Emily K. Abel challenges three myths about health care and dying in America. First, that medicine has always sought authority over death and dying; second, that medicine superseded the role of families and spirituality at the end of life; and finally, that only with the advent of the high-tech hospital did an institutional death become dehumanized. Abel shows that hospitals resisted accepting dying patients and often worked hard to move them elsewhere. Poor, terminally ill patients, for example, were shipped from Bellevue Hospital in open boats across the East River to Blackwell’s Island, where they died in hovels, mostly without medical care. Some terminal patients were not forced to leave, yet long before the advent of feeding tubes and respirators, dying in a hospital was a profoundly dehumanizing experience. With technological advances, passage of the Social Security Act, and enactment of Medicare and Medicaid, almshouses slowly disappeared and conditions for dying patients improved—though, as Abel argues, the prejudices and approaches of the past are still with us. The problems that plagued nineteenth-century almshouses can be found in many nursing homes today, where residents often receive substandard treatment. A frank portrayal of the medical care of dying people past and present, The Inevitable Hour helps to explain why a movement to restore dignity to the dying arose in the early 1970s and why its goals have been so difficult to achieve.
Contagion in Premodern Islamic and Christian Thought in the Western Mediterranean
Infectious Ideas is a comparative analysis of how Muslim and Christian scholars explained the transmission of disease in the premodern Mediterranean world. How did religious communities respond to and make sense of epidemic disease? To answer this, historian Justin K. Stearns looks at how Muslim and Christian communities conceived of contagion, focusing especially on the Iberian Peninsula in the aftermath of the Black Death. What Stearns discovers calls into question recent scholarship on Muslim and Christian reactions to the plague and leprosy. Stearns shows that rather than universally reject the concept of contagion, as most scholars have affirmed, Muslim scholars engaged in creative and rational attempts to understand it. He explores how Christian scholars used the metaphor of contagion to define proper and safe interactions with heretics, Jews, and Muslims, and how contagion itself denoted phenomena as distinct as the evil eye and the effects of corrupted air. Stearns argues that at the heart of the work of both Muslims and Christians, although their approaches differed, was a desire to protect the physical and spiritual health of their respective communities. Based on Stearns's analysis of Muslim and Christian legal, theological, historical, and medical texts in Arabic, Medieval Castilian, and Latin, Infectious Ideas is the first book to offer a comparative discussion of concepts of contagion in the premodern Mediterranean world.
A Century of Science and Public Health Response
Dehner examines the wide disparity in national and international responses to influenza pandemics, from the Russian flu of 1889 to the swine flu outbreak in 2009. He chronicles the technological and institutional progress made along the way and shows how these developments can shape an effective future policy.
The Health of the Black Soldier in the American Civil War
Black soldiers in the American Civil War were far more likely to die of disease than were white soldiers. In Intensely Human, historian Margaret Humphreys explores why this uneven mortality occurred and how it was interpreted at the time. In doing so, she uncovers the perspectives of mid-nineteenth-century physicians and others who were eager to implicate the so-called innate inferiority of the black body. In the archival collections of the U.S. Sanitary Commission, Humphreys found evidence that the high death rate among black soldiers resulted from malnourishment, inadequate shelter and clothing, inferior medical attention, and assignments to hazardous environments. While some observant physicians of the day attributed the black soldiers' high mortality rate to these circumstances, few medical professionals—on either side of the conflict—were prepared to challenge the "biological evidence" of white superiority. Humphreys shows how, despite sympathetic and responsible physicians' efforts to expose the truth, the stereotype of black biological inferiority prevailed during the war and after.
A Transnational History of Catholic Medical Missions and Social Change
A Short History of Autoimmunity
Autoimmune diseases, which affect 5 to 10 percent of the population, are as unpredictable in their course as they are paradoxical in their cause. They produce persistent suffering as they follow a drawn-out, often lifelong, pattern of remission and recurrence. Multiple sclerosis, lupus, rheumatoid arthritis, and type 1 diabetes—the diseases considered in this book—are but a handful of the conditions that can develop when the immune system goes awry. Intolerant Bodies is a unique collaboration between Ian Mackay, one of the prominent founders of clinical immunology, and Warwick Anderson, a leading historian of twentieth-century biomedical science. The authors narrate the changing scientific understanding of the cause of autoimmunity and explore the significance of having a disease in which one’s body turns on itself. The book unfolds as a biography of a relatively new concept of pathogenesis, one that was accepted only in the 1950s. In their description of the onset, symptoms, and course of autoimmune diseases, Anderson and Mackay quote from the writings of Charles Dickens, Edgar Allan Poe, Joseph Heller, Flannery O’Connor, and other famous people who commented on or grappled with autoimmune disease. The authors also assess the work of the dedicated researchers and physicians who have struggled to understand the mysteries of autoimmunity. Connecting laboratory research, clinical medicine, social theory, and lived experience, Intolerant Bodies reveals how doctors and patients have come to terms, often reluctantly, with this novel and puzzling mechanism of disease causation.
From Spiritism and Occultism to Psychical Research and Metapsychics in France, 1853–1931
Séances were wildly popular in France between 1850 and 1930, when members of the general public and scholars alike turned to the wondrous as a means of understanding and explaining the world. Sofie Lachapelle explores how five distinct groups attempted to use and legitimize séances: spiritists, who tried to create a new “science” concerned with the spiritual realm and the afterlife; occultists, who hoped to connect ancient revelations with contemporary science; physicians, psychiatrists, and psychologists, who developed a pathology of supernatural experiences; psychical researchers, who drew on the unexplained experiences of the public to create a new field of research; and metapsychists, who attempted to develop a new science of yet-to-be understood natural forces. Lachapelle examines the practices, aims, and level of success of these five disciplines, paying special attention to how they interacted with each other and with the world of mainstream science. Their practitioners regarded mystical phenomena worthy of serious study; most devotees—with notable exceptions of physicians, psychiatrists, and psychologists—also meant to challenge conventional science in general and French science in particular. Through these stories, Lachapelle illuminates the lively relationship between science and the supernatural in late nineteenth- and early twentieth-century France and relates why this relationship ultimately led to the marginalization of psychical research and metapsychics. An enlightening and entertaining narrative that includes colorful people like "Allan Kardec"—a pseudonymous former mathematics teacher from Lyon who wrote successful works on the science of the séance and what happened after death—Investigating the Supernatural reveals the rich and vibrant diversity of unorthodox beliefs and practices that existed at the borders of the French scientific culture in the late nineteenth and early twentieth centuries.
A Lifetime of Stories