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Hemophilia and the Unintended Consequences of Medical Progress
By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. Yet the glory of this achievement was short lived. The same treatments that delivered some normalcy to the lives of persons with hemophilia brought unexpectedly fatal results in the 1980s when people with the disease contracted HIV-AIDS and Hepatitis C in staggering numbers. The Bleeding Disease recounts the promising and perilous history of American medical and social efforts to manage hemophilia in the twentieth century. This is both a success story and a cautionary tale, one built on the emergence in the 1950s and 1960s of an advocacy movement that sought normalcy—rather than social isolation and hyper-protectiveness—for the boys and men who suffered from the severest form of the disease. Stephen Pemberton evokes the allure of normalcy as well as the human costs of medical and technological progress in efforts to manage hemophilia. He explains how physicians, advocacy groups, the blood industry, and the government joined patients and families in their unrelenting pursuit of normalcy—and the devastating, unintended consequences that pursuit entailed. Ironically, transforming the hope of a normal life into a purchasable commodity for people with bleeding disorders made it all too easy to ignore the potential dangers of delivering greater health and autonomy to hemophilic boys and men.
An American History of Intersex
What does it mean to be human? To be human is, in part, to be physically sexed and culturally gendered. Yet not all bodies are clearly male or female. Bodies in Doubt traces the changing definitions, perceptions, and medical management of intersex (atypical sex development) in America from the colonial period to the present day. From the beginning, intersex bodies have been marked as "other," as monstrous, sinister, threatening, inferior, and unfortunate. Some nineteenth-century doctors viewed their intersex patients with disrespect and suspicion. Later, doctors showed more empathy for their patients' plights and tried to make correct decisions regarding their care. Yet definitions of "correct" in matters of intersex were entangled with shifting ideas and tensions about what was natural and normal, indeed about what constituted personhood or humanity. Reis has examined hundreds of cases of “hermaphroditism” and intersex found in medical and popular literature and argues that medical practice cannot be understood outside of the broader cultural context in which it is embedded. As the history of responses to intersex bodies has shown, doctors are influenced by social concerns about marriage and heterosexuality. Bodies in Doubt considers how Americans have interpreted and handled ambiguous bodies, how the criteria and the authority for judging bodies changed, how both the binary gender ideal and the anxiety over uncertainty persisted, and how the process for defining the very norms of sex and gender evolved. Bodies in Doubt breaks new ground in examining the historical roots of modern attitudes about intersex in the United States and will interest scholars and researchers in disability studies, social history, gender studies, and the history of medicine.
The Medicalization of Reproduction in Greece
The author, a second-generation Greek American, returned to Greece with her young daughter to do fieldwork over the course of a decade. Focusing on Rhodes, an island that blends continuity with the past and rapid social change in often unexpected ways, she interviewed over a hundred women, doctors, and midwives about issues of reproduction. The result is a detailed portrait of how a longstanding system of “local” gynecological and obstetrical knowledge under the control of women was rapidly displaced in the period following World War II, and how the technologically-intensive biomedical model that took its place in turn assumed its own distinctive signature. Bodies of Knowledge is a vivid ethnographic study of how a presumably globalizing and homogenizing process like medicalization can be reshaped as women and medical experts alike selectively accept or reject new practices and technologies. Georges found, for example, that women in Rhodes have enthusiastically embraced some new technologies, like fetal imaging during pregnancy, but rejected others, like medical contraception. They are also avid consumers of popular childbirth manuals. This book is the recipient of the 2006 Norman L. and Roselea J. Goldberg Prize for the best project in the area of medicine.
The History of Coerced Sterilization in the United States
Most closely associated today with the Nazis and World War II atrocities, eugenics is sometimes described as a government-orchestrated breeding program, other times as a pseudo-science, and often as the first step leading to genocide. Less frequently is it depicted as a movement having links to the United States. But eugenics does have a history in this country, and Mark Largent tells that story by exploring one of the most disturbing aspects, the compulsory asterilization of more than 64,000 Americans.
Vol. 70 (1996) through current issue
The leading journal in its field for more than three quarters of a century, the Bulletin is the official publication of the American Association for the History of Medicine and the Johns Hopkins Institute of the History of Medicine. Each issue spans the social, cultural, and scientific aspects of the history of medicine worldwide and includes reviews of recent books on medical history.
Epidemics and Human Response in Western History, Revised Edition
In this updated edition of The Burdens of Disease, with revisions and additions to the original content, including the evolution of drug-resistant diseases and expanded coverage of HIV/AIDS, along with recent data on mortality figures and other relevant statistics, J. N. Hays chronicles perceptions and responses to plague and pestilence over two thousand years of western history. Disease is framed as a multidimensional construct, situated at the intersection of history, politics, culture, and medicine, and rooted in mentalities and social relations as much as in biological conditions of pathology.
From the Indiana Experiment to the Human Genome Era
In 1907, Indiana passed the world's first involuntary sterilization law based on the theory of eugenics. In time, more than 30 states and a dozen foreign countries followed suit. Although the Indiana statute was later declared unconstitutional, other laws restricting immigration and regulating marriage on "eugenic" grounds were still in effect in the U.S. as late as the 1970s. A Century of Eugenics in America assesses the history of eugenics in the United States and its status in the age of the Human Genome Project. The essays explore the early support of compulsory sterilization by doctors and legislators; the implementation of eugenic schemes in Indiana, Georgia, California, Minnesota, North Carolina, and Alabama; the legal and social challenges to sterilization; and the prospects for a eugenics movement basing its claims on modern genetic science.
Charcot in Morocco is the first-ever publication of Dr. Jean-Martin Charcot’s travel diary of his 1887 trip to Morocco. Considered the father of neuropathology, Charcot (1825–1893) is a seminal character in the history of neurology and psychology. His Moroccan travel diary includes his “objective” observations of the local Jewish community, which only fortified his assumptions about the relationship between race and neuropathology. These became a conspicuous feature of his ideas about the hereditary origins of nervous ailments. His ideas – taught as doctrine to a vast audience, including a young Sigmund Freud – reveal the convergence of clinical observation and European anti-Semitism at the end of the nineteenth century.
Including an enlightening critical introduction by renowned Charcot expert Toby Gelfand, Charcot in Morocco provides new insights into the personality of this influential figure and his perspectives on the “Orient” and its inhabitants.
From sentimental stories about polio to the latest cherub in hospital commercials, sick children tug at the public’s heartstrings. However sick children have not always had adequate medical care or protection. The essays in Children’s Issues in Historical Perspective investigate the identification, prevention, and treatment of childhood diseases from the 1800s onwards, in areas ranging from French-colonial Vietnam to nineteenth-century northern British Columbia, from New Zealand fresh air camps to American health fairs.
Themes include: the role of government and/or the private sector in initiating and underwriting child public health programs; the growth of the profession of pediatrics and its views on “proper” mothering techniques; the role of nationalism, as well as ethnic and racial dimensions in child-saving movements; normative behaviour, social control, and the treatment of “deviant” children and adolescents; poverty, wealth, and child health measures; and the development of the modern children’s hospital.
This liberally illustrated collection reflects the growing academic interest in all aspects of childhood, especially child health, and originates from health care professionals and scholars across the disciplines. An introduction by the editors places the historical themes in context and offers an overview of the contemporary study of children’s health.
Epistolary Medicine in the Renaissance
During the Renaissance, collections of letters both satisfied humanist enthusiasm for ancient literary forms and provided the flexibility of a format appropriate to many types of inquiry. The printed collections of medical letters by Giovanni Manardo of Ferrara and other physicians in early sixteenth-century Europe may thus be regarded as products of medical humanism. The letters of mid- and late sixteenth-century Italian and German physicians examined in Communities of Learned Experience by Nancy G. Siraisi also illustrate practices associated with the concepts of the Republic of Letters: open and relatively informal communication among a learned community and a liberal exchange of information and ideas. Additionally, such published medical correspondence may often have served to provide mutual reinforcement of professional reputation. Siraisi uses some of these collections to compare approaches to sharing medical knowledge across broad regions of Europe and within a city, with the goal of illuminating geographic differences as well as diversity within social, urban, courtly, and academic environments of medical learning and practice. The collections she has selected include essays on general medical topics addressed to colleagues or disciples, some advice for individual patients (usually written at the request of the patient’s doctor), and a strong dose of controversy.