Living the Life
Publication Year: 2012
Published by: Gallaudet University Press
Title Page, Copyright Page
Download PDF (30.5 KB)
Glossary and Abbreviations
Download PDF (46.2 KB)
Download PDF (89.7 KB)
As its title suggests, this book deals with the reality of being deaf-blind. The goal of this book is not to tell amazing or inspiring stories about people who are disabled; it is to show what life is really like for persons with a combination of vision and hearing loss (and, in a few cases, additional disabilities as well...
1. Family Reaction and Support
Download PDF (83.4 KB)
How a family responds to a child’s disabilities has a monumental impact on the child’s life. Often, a youngster’s ability to accept or at least cope with disabilities is a direct reflection of the family’s response to the abnormal circumstances...
2. Education Part I: Primary andSecondary School Experiences
Download PDF (111.3 KB)
School is far more difficult for children with sensory disabilities, both academically and socially. There are many ways in which parents, teachers, and special services can help these children get the most out of primary and secondary school. When I asked the contributors to discuss their school experiences, several important issues surfaced...
3. Transition to Adulthood
Download PDF (72.0 KB)
Making the transition from childhood to adulthood can be a challenge for anyone. For a person with multiple disabilities, the challenge is even greater. The key difference between these two phases in our lives is the level of responsibility and independence expected of us. Whether “the next step” is going to college, getting a job, or becoming a homemaker, most people find themselves needing...
Download PDF (107.1 KB)
Only a small percentage of deaf-blind people are born with absolutely no vision and hearing. Many suffer from degenerative disorders, such as Usher’s syndrome, that cause progressive loss of one or both senses. The effects of aging can also exacerbate sensory disabilities. Such progressive losses can happen quickly or be very gradual...
5. Bad Medicine
Download PDF (84.5 KB)
To err is human, and doctors are as human as the rest of us. However, when a medical professional makes a mistake or fails to take a case seriously, the results can be disastrous. Patients with multiple problems that can’t readily be diagnosed can understandably be frustrating for doctors...
Download PDF (82.6 KB)
Rehabilitation services can help people with disabilities learn to cope with their challenges on a number of basic levels, including getting around (“orientation and mobility,” or O&M), performing household chores, cooking, shopping, communication, attending school or college, and workplace adaptation...
7. Education Part II: Adult Education
Download PDF (102.6 KB)
In chapter 2, the panelists discussed their primary and secondary schooling experiences. Adult education, which includes college, technical or business schools, and work training programs, differs significantly from early education, so it is covered here as a separate topic...
Download PDF (111.6 KB)
One of the greatest challenges for people who are deaf-blind is identifying feasible careers and then finding and maintaining actual jobs in those areas. Sensory disabilities throw multiple monkey wrenches into this equation. While VR services and good accommodations can help pave the way for a productive...
9. Daily Life
Download PDF (90.8 KB)
While homemaking and running errands involve things most people take for granted, such routine activities can be a lot more complicated for people who are deaf-blind. A hearing-sighted person can pick up the phone and call a plumber when the kitchen sink leaks or hop in the car when it’s time for an appointment...
10. Adult Relationships
Download PDF (86.2 KB)
Given that we humans are social creatures by nature, one of the most important aspects of our lives is building relationships with other people. Deaf-blindness interferes with normal social interactions in a number of ways, such as inhibiting communication and making common social activities difficult or impossible...
Download PDF (69.7 KB)
Communication is a critically important issue. While the group of deaf-blind individuals discusses their communication methods throughout this book, some readers may want to focus specifically on understanding how people who are deaf...
12. Cochlear Implants
Download PDF (79.9 KB)
The advent of the cochlear implant (CI) has had a major impact on the deaf-blind world. While the technology is far from perfect and is less effective with certain types of hearing loss, such as auditory neuropathy, the CI has helped many deaf-blind people improve their ability to communicate and glean information...
Download PDF (70.2 KB)
The previous chapters of this book have dealt with coping primarily in a physical sense. Here, the contributors talk about how deafblindness affects them psychologically and how they cope with this. Being able to manage physically does not guarantee...
Download PDF (46.3 KB)
pp. 166 -289
The following are poems written by the contributors of this book. There are no particular themes for this section, though much insight can be gleaned from a person’s creative works...
Page Count: 304
Publication Year: 2012