The Parents' Guide to Cochlear Implants

Introduction

1 INTRODUCTION nitiating the process of cochlear implantation is a complex task. It combines the hard work of gathering information with Introduction Ithe difficulty of making a lifetime decision for a child. Parents wishing to explore this technology need information and support . This book is a resource for parents trying to decide if a cochlear implant is right for their child. It answers many of the questions that parents have, and poses and answers some that they may not have considered. This book is written with the parent’s perspective in mind and attempts to present a balanced view of implantation:the process, procedure, and performance results. Chapter 1 outlines steps for beginning the process, highlighting important factors to consider when choosing an implant center . When parents have a choice in determining which center to select, they should assess numerous characteristics about the center before making their decision. These characteristics are detailed to help parents understand the complexities of center selection. A list of questions that parents can ask is also provided. Chapter 2 explores the candidacy evaluation, a critical point of entry into the process. Evaluation of children for implantation should be considered within the perspective of the whole child. This whole child perspective sets the stage for understanding performance outcomes after implantation. Chapter 3 includes an unbiased review of the various implant technologies available, thereby allowing parents to compare and contrast the different implant systems. Issues related to internal components, external components, and accessories are presented 2 INTRODUCTION so that parents can be satisfied with the device that has been selected. Chapter 4 follows up with a discussion of the surgical procedures and other pre- and post-surgical concerns of parents. Useful tips for the practical realities of the hospital stay and the implant procedure are outlined. Since this is a stressful time for most parents, the more information that is available, the less the parent is caught off guard by unanticipated events. Initial switch-on, post-implant issues, and the responsibilities of the parents in managing their child’s equipment after implantation are reviewed in chapter 5. This is a time in which there is often a great deal of excitement and anticipation, so it is important for parents to have realistic expectations about the initial switch-on and the immediate post-implant period. In chapter 6, parents learn about strategies that can be used in the home to foster good listening behaviors. This chapter provides parents with an outline to begin the process of helping their youngster develop auditory skills. The role the parent plays in supporting the school and therapy cannot be overstated. Chapter 7 explores the role of the implant in light of the variety of communication options that are available to children with hearing loss. This chapter establishes that the implant is able to coexist with a variety of communication strategies as long as there is sufficient auditory input and opportunity to use spoken language . No one methodology is required for a child with an implant , nor can any methodology guarantee a particular result for any child. Chapter 8 addresses the issue of school choice, especially for deaf children who use cochlear implants. With the trends in education changing rapidly in today’s society, it is important that parents understand the services that each placement type does and does not provide. Performance outcomes of the cochlear implant relative to the whole child are outlined in chapter 9, and the candidacy issues outlined in chapter 2 are revisited. Performance can then be 3 INTRODUCTION viewed from the perspective of the child’s skills and abilities at the start of the implant process and how they contribute to ultimate benefit. The notions of implant “success” and “failure” are addressed in a frank and open manner. Chapter 10 details the evolution of cochlear implants in the context of Deaf culture and considers how cochlear implant users can move comfortably between the hearing and deaf worlds. This may be the first published attempt to look at the achievements that are possible when the Deaf community and the cochlear implant community work together. Indeed, the current generation of implant recipients may serve as “ambassadors” between the deaf and hearing worlds. The final chapter recognizes that it is helpful for parents to share their own experiences with those who are just beginning the process. Thus,chapter 11 includes a section in which parents reflect upon their own...