If That Ever Happens to Me: Making Life and Death Decisions after Terri Schiavo

Notes

 notes IntroduCtIon 1. Smith, “Legacy of Terri Schiavo.” 2. As with the other major topics introduced in this chapter, this point is explored more fully later (see chapter 5) with sources cited to support the more developed text. 3. Dresser, “Schiavo’s Legacy,” 20. 4. “Poll: Keep Feeding Tube Out.” 5. ADA Watch et al., “Issues Surrounding Terri Schindler-Schiavo.” 6. Shepherd, “In Respect of People.” ChAPter 1 1. Jennett and Plum, “Persistent Vegetative State.” 2. Schiff and Fins, “Hope for ‘Comatose’ Patients.” 3. Ibid. 4. Jennett, Vegetative State, 4–5. 5. American Academy of Neurology, “Practice Parameters,” 1015. 6. Berube et al., Mohonk Report, 10. 7. Fins, Schiff, and Foley, “Late Recovery.” 8. Fins, “Rethinking Disorders of Consciousness”; Schiff and Fins, “Hope for ‘Comatose’ Patients.” 9. Groopman, “Silent Minds.” 10. Fins, “Minimally Conscious State,” 2; see also Fins et al., “Minimally Conscious State.” 11. Fins, “Minimally Conscious State,” 2. 12. Ibid. 13. Schindler and Schindler, Life That Matters, 40. 14. Schiff and Fins, “Hope for ‘Comatose’ Patients.” 15. Fins, “Border Zones of Consciousness,” 53. 16. Fritz, “Last Rights.” 17. The Uniform Determination of Death Act, adopted in most states, provides that “[a]n individual who has sustained either (1) irreversible cessation of circulatory and respiratory functions, or (2) irreversible cessation of all functions of the entire brain, including the brain stem,  is dead.” Two states, New Jersey and New York, allow families to reject a determination of death by neurological function (brain death) if contrary to the patient’s religious or moral convictions. See N.J. Stat. Ann. §26:6A-5 (2005); and N.Y. Comp. Codes R. & Regs. tit. 10§400.16(e)(3)(2006). 18. Multi-Society Task Force, “Medical Aspects of the Persistent Vegetative State, First of Two Parts.” 19. Jennett, Vegetative State, 8–9. 20. Ibid., 14–15. 21. Ibid., 15. 22. Wolfson, Report to Governor, 30. 23. Ibid. 24. Giacino, “Minimally Conscious State,” 385. 25. Ibid., 384. 26. Giacino et al., “Minimally Conscious State.” 27. Giacino, “Minimally Conscious State,” 385. 28. Jennett, Vegetative State, 65. 29. Wade and Johnston, “Permanent Vegetative State.” 30. In re Guardianship of Schiavo, 780 So.2d 176, 178 (Fla. 2d DCA 2001). 31. Thogmartin, “Report of Autopsy”; Fins and Schiff, “After-Life of Terri Schiavo.” 32. Jennett, Vegetative State, 63. 33. Ibid., 64. 34. Groopman, “Silent Minds.” 35. Schiff et al., “Behavioral Improvements.” 36. Owen et al., “Detecting Awareness”; see also Owen et al., “Using Functional Magnetic Resonance Imaging.” 37. Di et al., “Cerebral Response”; Coleman et al., “Vegetative Patients.” 38. Kotchoubey, “Event-Related Potentials,” 477. 39. Fins and Schiff, “Shades of Gray.” 40. Cranford, “Facts, Lies, and Videotapes,” 366. 41. ABC News, “Once in Coma.” 42. Fins, Schiff, and Foley, “Late Recovery,” 305. ChAPter 2 1. Memo to State Attorney Bernie McCabe. 2. Schiavo and Hirsch, Terri, 12–13. n o t e s t o P A g e s  0 –    3. Goodnough, “Behind Life-and-Death Fight.” 4. Wolfson, Report to Governor, 11. 5. Didion, “Case of Theresa Schiavo.” 6. Wolfson, Report to Governor, 11. 7. Ibid., 15. 8. In re Guardianship of Schiavo, No. 90-2908-GD-003 (Fla. Cir. Ct. Pinellas Cty. Feb. 11, 2000). 9. Wolfson, Report to Governor, 12. 10. Ibid., 13. 11. Pearse, “Report of Guardian Ad Litem,” 13. 12. In re Guardianship of Schiavo, No. 90-2908-GD-003 (Fla. Cir. Ct. Pinellas Cty. Feb. 11, 2000). 13. Ibid. 14. Ibid. 15. In re Guardianship of Schiavo, 792 So.2d 551, 555 (Fla. Dist. Ct. App. 2001). 16. In re Guardianship of Schiavo, 800 So.2d 640, 644 (Fla. Dist. Ct. App. 2001). 17. In re Guardianship of Schiavo, No. 90-2908-GD-003 (Fla. Cir. Ct. Pinellas Cty. Nov. 22, 2002). 18. In re Guardianship of Schiavo, 851 So.2d 182, 185 (Fla. Dist. Ct. App. 2003). 19. 2003 Fla. Laws Ch. 418. 20. Levesque, “Schiavo’s Husband.” 21. Goodnough, “Governor of Florida.” 22. Bousquet, “How Terri’s Law Came to Pass.” 23. Bush v. Schiavo, 885 So.2d 321, 324 (Fla. 2004). 24. Ibid. at 336. 25. Art. I, §23, Fla. Const. (1980). 26. Schiavo v. Bush, No. 03-0082120-CI-20 (Fla. Cir. Ct. Pinellas Cty. May 5, 2004). 27. See Fla. Stat. Ann. §825.102(3), which in certain circumstances makes neglect of an elderly or disabled adult a felony and defines neglect to include “[a] caregiver’s failure or omission to provide an elderly...