A Death Retold: Jesica Santillan, the Bungled Transplant, and Paradoxes of Medical Citizenship

Contents

contents Introduction: Chronicles of an Accidental Death 1 Keith Wailoo, Julie Livingston, and Peter Guarnaccia part i. medical error and the american transplant theater America’s Angel or Thieving Immigrant?: Media Coverage, the Santillan Story, and Publicized Ambivalence toward Donation and Transplantation 19 Susan E. Morgan, Tyler R. Harrison, Lisa Volk Chewning, and Jacklyn B. Habib Hobson’s Choices: Matching and Mismatching in Transplantation Work Processes 46 Richard I. Cook The Transplant Surgeon’s Perspective on the Bungled Transplant 70 Thomas Diflo From Libby Zion to Jesica Santillan: Many Truths 82 Barron H. Lerner All Things Twice, First Tragedy Then Farce: Lessons from a Transplant Error 97 Charles L. Bosk part ii. justice and second chances across the border The Politics of Second Chances: Waste, Futility, and the Debate over Jesica’s Second Transplant 119 Keith Wailoo and Julie Livingston Tucker’s Heart: Racial Politics and Heart Transplantation in America 142 Susan E. Lederer Justice in Organ Allocation 158 Rosamond Rhodes Playing with Matches without Getting Burned: Public Confidence in Organ Allocation 180 Jed Adam Gross Consuming Di√erences: Post-Human Ethics, Global (In)justice, and the Transplant Trade in Organs 205 Nancy Scheper-Hughes part iii. citizens and foreigners/eligibility and exclusion Sympathy and Exclusion: Access to Health Care for Undocumented Immigrants in the United States 237 Beatrix Ho√man Eligibility for Organ Transplantation to Foreign Nationals: The Relationship between Citizenship, Justice, and Philanthropy as Policy Criteria 255 Eric M. Meslin, Karen R. Salmon, and Jason T. Eberl Imagining the Nation, Imagining Donor Recipients: Jesica Santillan and the Public Discourse of Belonging 276 Leo R. Chavez part iv. speaking for jesica Babes and Baboons: Jesica Santillan and Experimental Pediatric Transplant Research in America 299 Lesley A. Sharp Jesica Speaks?: Adolescent Consent for Transplantation and Ethical Uncertainty 329 Carolyn Rouse Fame and Fortune: The ‘‘Simple’’ Ethics of Organ Transplantation 349 Nancy M. P. King Acknowledgments 361 Contributors 363 Index 369 a death retold This page intentionally left blank ...