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In February 2003, an undocumented immigrant teen from Mexico lay dying in a prominent American hospital due to a stunning medical oversight--she had received a heart-lung transplantation of the wrong blood type. In the following weeks, Jesica Santillan's tragedy became a portal into the complexities of American medicine, prompting contentious debate about new patterns and old problems in immigration, the hidden epidemic of medical error, the lines separating transplant "haves" from "have-nots," the right to sue, and the challenges posed by "foreigners" crossing borders for medical care.

This volume draws together experts in history, sociology, medical ethics, communication and immigration studies, transplant surgery, anthropology, and health law to understand the dramatic events, the major players, and the core issues at stake. Contributors view the Santillan story as a morality tale: about the conflicting values underpinning American health care; about the politics of transplant medicine; about how a nation debates deservedness, justice, and second chances; and about the global dilemmas of medical tourism and citizenship.

Contributors:
Charles Bosk, University of Pennsylvania
Leo R. Chavez, University of California, Irvine
Richard Cook, University of Chicago
Thomas Diflo, New York University Medical Center
Jason Eberl, Indiana University-Purdue University Indianapolis
Jed Adam Gross, Yale University
Jacklyn Habib, American Association of Retired Persons
Tyler R. Harrison, Purdue University
Beatrix Hoffman, Northern Illinois University
Nancy M. P. King, University of North Carolina at Chapel Hill
Barron Lerner, Columbia University Mailman School of Public Health
Susan E. Lederer, Yale University
Julie Livingston, Rutgers University
Eric M. Meslin, Indiana University School of Medicine and Indiana University-Purdue University Indianapolis
Susan E. Morgan, Purdue University
Nancy Scheper-Hughes, University of California, Berkeley
Rosamond Rhodes, Mount Sinai School of Medicine and The Graduate Center, City University of New York
Carolyn Rouse, Princeton University
Karen Salmon, New England School of Law
Lesley Sharp, Barnard and Columbia University Mailman School of Public Health
Lisa Volk Chewning, Rutgers University
Keith Wailoo, Rutgers University

Table of Contents

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  1. Cover
  2. p. 1
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  1. Title Page, Copyright
  2. pp. 2-5
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  1. Contents
  2. pp. v-viii
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  1. Introduction: Chronicles of an Accidental Death
  2. pp. 1-16
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  1. Part I. Medical Error and the American Transplant Theater
  1. America’s Angel or Thieving Immigrant?: Media Coverage, the Santillan Story, and Publicized Ambivalence toward Donation and Transplantation
  2. pp. 19-45
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  1. Hobson’s Choices: Matching and Mismatching in Transplantation Work Processes
  2. pp. 46-69
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  1. The Transplant Surgeon’s Perspective on the Bungled Transplant
  2. pp. 70-81
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  1. From Libby Zion to Jesica Santillan: Many Truths
  2. pp. 82-96
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  1. All Things Twice, First Tragedy Then Farce: Lessons from a Transplant Error
  2. pp. 97-116
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  1. Part II. Justice and Second Chances Across the Border
  1. The Politics of Second Chances: Waste, Futility, and the Debate over Jesica’s Second Transplant
  2. pp. 119-141
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  1. Tucker’s Heart: Racial Politics and Heart Transplantation in America
  2. pp. 142-157
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  1. Justice in Organ Allocation
  2. pp. 158-179
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  1. Playing with Matches without Getting Burned: Public Confidence in Organ Allocation
  2. pp. 180-204
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  1. Consuming Differences: Post-Human Ethics, Global (In)justice, and the Transplant Trade in Organs
  2. pp. 205-234
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  1. Part III. Citizens and Foreigners/Eligibility and Exclusion
  1. Sympathy and Exclusion: Access to Health Care for Undocumented Immigrants in the United States
  2. pp. 237-254
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  1. Eligibility for Organ Transplantation to Foreign Nationals: The Relationship between Citizenship, Justice, and Philanthropy as Policy Criteria
  2. pp. 255-275
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  1. Imagining the Nation, Imagining Donor Recipients: Jesica Santillan and the Public Discourse of Belonging
  2. pp. 276-296
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  1. Part IV. Speaking for Jesica
  1. Babes and Baboons: Jesica Santillan and Experimental Pediatric Transplant Research in America
  2. pp. 299-328
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  1. Jesica Speaks?: Adolescent Consent for Transplantation and Ethical Uncertainty
  2. pp. 329-348
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  1. Fame and Fortune: The ‘‘Simple’’ Ethics of Organ Transplantation
  2. pp. 349-360
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  1. Acknowledgments
  2. pp. 361-362
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  1. Contributors
  2. pp. 363-368
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  1. Index
  2. pp. 369-378
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