Palliative Care for Infants, Children, and Adolescents: A Practical Handbook

Cover

Palliative Care for Infants, Children, and Adolescents This page intentionally left blank Palliative Care for Infants, Children, and Adolescents A PRACTICAL HANDBOOK Second Edition Edited by Brian S. Carter, M.D., F.A.A.P. Marcia Levetown, M.D., F.A.A.P., F.A.A.H.P.M. Sarah E. Friebert, M.D., F.A.A.P., F.A.A.H.P.M. The Johns Hopkins University Press BALTIMORE Drug dosage: The authors and publisher have exerted every effort to ensure that the selection and dosage of drugs discussed in this text are in accord with recommendations and practice at the time of publication . However, in view of ongoing research, changes in governmental regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert of each drug for any change in indications and dosage and for warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently used drug.© 2004, 2011 The Johns Hopkins University Press All rights reserved. Published 2011 Printed in the United States of America on acid-free paper 9 8 7 6 5 4 3 2 1 The Johns Hopkins University Press 2715 North Charles Street Baltimore, Maryland 21218-4363 www.press.jhu.edu Library of Congress Cataloging-in-Publication Data Palliative care for infants, children, and adolescents : a practical handbook / edited by Brian S. Carter, Marcia Levetown, and Sarah E. Friebert. — 2nd ed. p. ; cm. Includes bibliographical references and index. ISBN-13: 978-1-4214-0148-5 (hardcover : alk. paper) ISBN-13: 978-1-4214-0149-2 (pbk. : alk. paper) ISBN-10: 1-4214-0148-7 (hardcover : alk. paper) ISBN-10: 1-4214-0149-5 (pbk. : alk. paper) 1. Terminally ill children—Care—Handbooks, manuals, etc. I. Carter, Brian S., 1957– II. Levetown, Marcia, 1960– III. Friebert, Sarah E. [DNLM: 1. Palliative Care—methods. 2. Terminal Care—methods. 3. Adolescent. 4. Child. 5. Chronic Disease. 6. Infant. WS 200] RJ249.P356 2011 618.92'0028—dc22 2010050249 A catalog record for this book is available from the British Library. Special discounts are available for bulk purchases of this book. For more information, please contact Special Sales at 410-516-6936 or specialsales@press.jhu.edu. The Johns Hopkins University Press uses environmentally friendly book materials, including recycled text paper that is composed of at least 30 percent post-consumer waste, whenever possible. With thankful remembrance to Drs. William A. Silverman and Gerald B. Merenstein for encouragement and support. BSC In honor of my husband, Philip Blum, M.D., who encouraged me to follow my heart, regardless of the consequences; my children, Lila and Alex, who understood when I loved children in addition to my own; the Project on Death in America; my friends and colleagues over the years, for their support; and the patients and families who taught me about what is truly important by allowing me to “be with them” during the most intimate and sacred time of their lives. ML With gratitude and blessings to all of the children and families who have taught, led, inspired, indulged, and trusted me over the years. SEF This page intentionally left blank ...