Dementia, Friendship, and Flourishing Communities
Publication Year: 2011
Published by: The Johns Hopkins University Press
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We were married in January 1970, halfway through our se nior year in college. It was the era of the Vietnam War, utopian back- to- the- land dreams, and âsex, drugs, and rock- and- roll.â Ours was a cohort not much given to career planning or long- term goals. The shadow cast by the war and our collective certainty that the Age of Aquarius...
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The idea of coauthoring a book that would bring together our respective disciplines (the psychology of aging; theology and pastoral care) was de cades in gestation. We believed that each had rich resources to offer to a much-needed conversation about how we can age together as friends within flourishing communities, especially given that dementia will inevitably be a component of our shared...
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âIâve got a story for you!â This was the opening greeting from a woman calling to talk about an upsetting recent experience that involved her husband, who has lived with the diagnosis of Alzheimerâs disease for about three years. She knew that we were writing a book about friendship and community and she had met one of us at an Alzheimerâs Association meeting several months earlier...
1. Dilemmas of Dementia Diagnoses
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âWhat is the difference between Alzheimerâs and dementia?â This commonly posed question indicates the confusion and concern felt by the public about what has been called âtodayâs most dreaded diagnosisâ (White house and George 2008). In a later chapter, we address the anxietyâ even the dreadâ more directly as we consider people anticipating the moment when they might have to hear...
2. Receiving the Diagnosis
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In the course of our lives we are likely to have many diseases and conditions diagnosed by a physician. We develop symptomsâ a nagging cough, a swollen joint, persistent painâ that suggest all is not as it should be, and we consult our physician. Sometimes, we do this reluctantly or only because a loved one nags...
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On several hot August days in 1998, a group of people who described themselves as âchange artistsâ met in a continuum-of-care retirement community in Oshkosh, Wisconsin, to continue a discussion that had begun the year before in Rochester, New York. Some of these folks remembered the 1960s and the VW buses they used to drive from concert to concert...
4. What Is Friendship?
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What is a friend? A teen might answer, âMy friends are the people I like to hang out with.â Adults may speak of the people who share their tastes and interests. Sometimes we speak of friends in terms of the settings in which we interact: our âwork friendsâ or our âfriends at the lake.â In the new world of social...
5. When Our Friends Travel the Dementia Road
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Aristotle taught that virtuous friendship, like marriage, binds us to each other for better or worse, in sickness and in health. Inevitably, as we share the blessing of friendship through the pro cess of aging, some friends we cherish (or we ourselves) will begin the journey of dementia. Dementia can challenge the ways in which we have previously experienced and understood our friendship...
6. Dementia Fear and Anxiety
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An imagined monologue: OK, OK. So you already told me about different kinds of dementia and what itâs like to hear the doctor say, âYou probably have Alzheimerâs.â I know that other people are important to us and that I should be grateful for my family and my friends. I do my best to stay in touch with friends, but you know, itâs hard...
7. Beyond Fear and Anxiety
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The monologue continues: Yup! Youâve got it right: Iâm scared and Iâm worried about my forgetfulness. My friends all joke about it. But what good is it to know what psychologists say about fear and anxiety? I want to know what to do about it! Isnât there some kind of pill...
8. The Flourishing Community
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When we moved from the East Coast to the upper Midwest nearly thirty years ago, John was initially puzzled by some of the practices associated with weddings in this region. The couples planning their wedding were typically casual about the guest list. In a few cases their invitation took the form of a notice in the local newspaper...
9. Congregations as Schools for Friendship
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Most Sundays, a group of very elderly women sits together on a long bench outside their churchâs library after the worship ser vice. Affectionately called âthe Legacy ladiesâ by many church members because of their residence at a local continuum-of-care retirement community, they wait for the Legacy bus while chatting with one another and with people passing by on the way to the front door...
10. The Things That Abide
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Duke Divinity School professor Stanley Hauerwas argues that it is possible to assess where a society invests its faith by observing which buildings are most imposing and impressive.1 For most of human history, places of worshipâ the Great Temple of Jerusalem, Saint Peterâs Basilica, the Masjid al Haram Mosque in Mecca...
11. Practicing Friendship in the âThin Placesâ
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Australian social worker and theologian Lorna Hallahan describes living with disabling conditions as ârabbit hole experiencesââ experiences that make people feel like they have fallen down Aliceâs rabbit hole into a strange and often confusing new world. In Chapter 2, we presented the ârabbit hole experiencesâ of people hearing their physicians pronounce...
12. Memory, Forgetting, and the Present Time
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Anne Basting (2009) argues that our fear of memory loss is greater than it needs to be because memory is the collective possession of the communities in which we participate. Although most scientists and geriatricians believe that there are signifi cant diff erences between the memory losses associated with so- called healthy aging and those associated with...
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As we wrote this book, we imagined people talking about it with their friends, either in formal groups, such as classes or book clubs, or in informal conversations, as in âI read a book and it got me thinking about . . .â We offer these questions as a way of launching conversations about the joys and challenges of aging together...
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Page Count: 256
Publication Year: 2011