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Bodies in Protest

Environmental Illness and the Struggle Over Medical Knowledge

Steve Kroll-Smith, H. Hugh Floyd

Publication Year: 1997

Gulf War Syndrome: Is It a Real Disease? asks a recent headline in the New York Times. This question—are certain diseases real?—lies at the heart of a simmering controversy in the United States, a debate that has raged, in different contexts, for centuries. In the early nineteenth century, the air of European cities, polluted by open sewers and industrial waste, was generally thought to be the source of infection and disease. Thus the term miasma—literally deathlike air—came into popular use, only to be later dismissed as medically unsound by Louis Pasteur.

While controversy has long swirled in the United States around such illnesses as chronic fatigue syndrome and Epstein-Barr virus, no disorder has been more aggressively contested than environmental illness, a disease whose symptoms are distinguished by an extreme, debilitating reaction to a seemingly ordinary environment. The environmentally ill range from those who have adverse reactions to strong perfumes or colognes to others who are so sensitive to chemicals of any kind that they must retreat entirely from the modern world.

Bodies in Protest does not seek to answer the question of whether or not chemical sensitivity is physiological or psychological, rather, it reveals how ordinary people borrow the expert language of medicine to construct lay accounts of their misery. The environmentally ill are not only explaining their bodies to themselves, however, they are also influencing public policies and laws to accommodate the existence of these mysterious illnesses. They have created literally a new body that professional medicine refuses to acknowledge and one that is becoming a popular model for rethinking conventional boundaries between the safe and the dangerous.

Having interviewed dozens of the environmentally ill, the authors here recount how these people come to acknowledge and define their disease, and themselves, in a suddenly unlivable world that often stigmatizes them as psychologically unstable. Bodies in Protest is the dramatic story of human bodies that no longer behave in a manner modern medicine can predict and control.

Published by: NYU Press

Title Page, Copyright

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pp. iii-iv

Contents, Dedication

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pp. v-vii

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Acknowledgments

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pp. ix-x

A book is never written alone. Like a child, it takes a community to bring it to maturity. A research initiation grant from the University of New Orleans supported the first author through several months of interviewing. Vern Baxter, Valerie Gunter, and Susan Mann, colleagues in the sociology department at the University of New...

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Preface

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pp. xi-xiii

Another pandemic illness is emerging in American society. It is called, among other things, multiple chemical sensitivity (MCS), environmental illness (EI), and somewhat ominously, twentieth-century disease. It invites comparison with that most deadly modern pandemic, AIDS. In two important respects the terms...

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Introduction

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pp. 1-13

In the early nineteenth century, the air of European cities was thought to be the source of infection and disease. The word miasma entered popular conversation and meant, quite literally, dangerous, deathlike air. It was not acute toxicity that disabled the person, but noxious exhalations from open sewers and industrial effluents that...

Part One

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pp. 15-

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Environmental Illness as a Practical Epistemology and a Source of Professional Confusion

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pp. 17-42

The confusing nature of MCS is reflected in the number of terms enlisted to describe it: environmental illness, chemical sensitivity, cerebral allergy, chemically induced immune dysregulation, total allergy syndrome, universal reactor syndrome, ecologic illness, chemical hypersensitivity syndrome, universal allergy, and, more alarming,...

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Chemically Reactive Bodies, Knowledge,and Society

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pp. 43-67

Multiple chemical sensitivity, at its core, is a dispute over knowing. It is a dispute over what will count as rational explanations of the relationship of the human body to local environments. One stake in this struggle is the privilege to render an authoritative explanation of the body and its relationship to the environment by, in part,...

Part Two

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pp. 69-

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Something Unusual Is Happening Here

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pp. 71-88

Our bodies are surrounded by environments and themselves constitute parts of environments that other bodies experience. In spite of this close affinity with biophysical environments (or, perhaps, because of it), most people do not pay close attention to their bodies’ complex relationships to biospheres and the things in them. In...

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Bodies against Theory

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pp. 89-110

A striking feature of the interviews we collected was the common activities among people who would later identify themselves as chemically reactive. Like sleuths in search of clues, these people interrogate their material environments as possible perpetrators of disease. In systematic fashion they look for relationships between...

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Explaining Strange Bodies

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pp. 111-139

A turning point for many of the chemically reactive is the failure of prevailing medical theory and practice to acknowledge their immediate and tangible somatic experiences. It is worth recalling a point made briefly in the last chapter. By the time the chemically reactive are seeking the counsel and care of physicians, many of them have...

Part Three

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pp. 141-

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Representation and the Political Economy of a New Body

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pp. 143-162

Imagine a single person living without the company of others who is free to exercise considerable control over his environments. Now suppose this person begins to experience frightening changes in his body as it touches or absorbs what were once thought to be safe places and things. A reasonable response to his dilemma would be a...

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A New Body in the Courts, Federal Policies,the Market, and Beyond

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pp. 163-182

We can assume the term damage potential in the preceding is not referring to risk to human health and well-being but to the harm caused employers and manufacturers who must pay in the event they are found responsible for a plaintiff’s physical disability. Recognizing the grave potential in legal recognition of MCS, the Chemical Manufacturers...

Conclusion

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pp. 183-

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Bodies, Environments,and Interpretive Space

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pp. 185-203

It is a late summer day in a southern university where a sociology professor is lecturing to a group of students. This class begins as others that preceded it during the semester, with nothing unusual happening. However, on this day, shortly after the lecture gets under way, two students in the back of the room begin coughing, making a dry,...

Notes

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pp. 205-208

Bibliography

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pp. 209-217

Name Index

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pp. 219-220

Subject Index

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pp. 221-223


E-ISBN-13: 9780814749234
E-ISBN-10: 0814749232
Print-ISBN-13: 9780814746622
Print-ISBN-10: 0814746624

Page Count: 237
Publication Year: 1997

Research Areas

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Subject Headings

  • Allergy.
  • Environmentally induced diseases.
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