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Contents
- Rutgers University Press
- Chapter
- Additional Information
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vii Contents Acknowledgments ix Chapter 1 Saving Babies, Changing Lives 1 Chapter 2 Diagnostic Odysseys, Old and New: How Newborn Screening Transforms Parents’ Encounters with Disease 38 Chapter 3 Specters in the Room: Parenting in the Shadow of Cystic Fibrosis 80 Chapter 4 Encounters with Expertise: Parents and Health Care Professionals 120 Chapter 5 A House on Fire: How Private Experiences Ignite Public Voices 160 Chapter 6 Brave New Worlds: Visible in a Single Drop of Blood? 207 Notes 235 References 247 Index 263 ...
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