In this Book

  • Narrative Matters: The Power of the Personal Essay in Health Policy
  • Book
  • edited by Fitzhugh Mullan, M.D., Ellen Ficklen, and Kyna Rubin foreword by Abraham Verghese, M.D.
  • 2006
  • Published by: Johns Hopkins University Press
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summary
This anthology brings together the personal stories of patients, physicians, policy makers, and others whose writings humanize discussions and deliberations about health policy. Drawn from the popular "Narrative Matters" column in the journal Health Affairs, the essays epitomize the policy narrative, a new genre of writing that explores health policy through the expression of personal experiences. Forty-six articles focus on such topics as the hard financial realities of medical insurance, AIDS, assisted suicide, marketing drugs, genetic engineering, organ transplants, and ethnic and racial disparities in the health care system. The narratives raise ethical and moral issues that are being studied in many of our nation's medical schools. This compelling collection provides important insight into the human dimensions of health care and health policy.

Table of Contents

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  1. Cover
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  1. Title Page
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  1. Copyright
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  1. CONTENTS
  2. pp. v-viii
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  1. Foreword
  2. pp. ix-xii
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  1. Preface: About this book
  2. pp. xiii-xvi
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  1. Contributors
  2. pp. xvii-xxii
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  1. CHAPTER 1: WRITING TO CHANGE THINGS: ESSAYS ON THE POLICY NARRATIVE
  2. pp. 1-20
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  1. CHAPTER 2: DOLLARS AND SENSE: HARD FINANCIAL REALITIES
  2. pp. 21-64
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  1. CHAPTER 3: BEARING WITNESS: PATIENTS’ STORIES
  2. pp. 65-104
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  1. CHAPTER 4: THE MADDENING SYSTEM: FRUSTRATIONS AND SOLUTIONS
  2. pp. 105-140
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  1. CHAPTER 5: TROUBLE IN THE RANKS: PROFESSIONAL PROBLEMS
  2. pp. 141-168
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  1. CHAPTER 6: DRUG RESISTANCE: BATTLING UNDUE INFLUENCE
  2. pp. 169-184
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  1. CHAPTER 7: DISPARITY DILEMMAS: STORIES ON RACE AND ETHNICITY
  2. pp. 185-222
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  1. CHAPTER 8: VALUES AND CHOICE: STORIES OF PRACTICAL ETHICS
  2. pp. 223-286
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  1. INDEX
  2. pp. 287-293
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