Children, Ethics, and Modern Medicine

Index

INDEX Abraham and Isaac, 18–25, 276n6 Accountability, 222, 229–30 Ackerman, Terence F., 297n35 Acts, commissions and omissions, 276n6 Adult care, 2–3, 37–38, 40, 43, 47, 52, 119, 121, 126, 157, 166, 189, 245, 257 Agape, 216–18. See also Altruism; Care; Charity; Duty to care; Love Aires, Philippe, 4 Alternative medicine. See Unconventional treatment Altruism, 203–19, 293n22. See also Care; Charity ; Duty to care; Love Antipaternalism, 2, 64, 68, 77, 78, 79, 107, 108, 119, 171. See also Paternalism Aristotle, 27, 42, 145 Assent, pediatric, 54, 58, 59, 60, 76–81, 99, 108, 248–52. See also Consent; Informed consent Asser, Seth M., and Rita Swan, 200 Augustine, Saint, 216–219; on amor uti and amor frui, 217 Autonomy, 2, 3, 5, 6, 10, 37–38, 44, 47, 48, 50, 52, 54, 55, 61, 69, 71, 85, 87, 93, 94, 96, 100, 101, 102, 103, 105, 106, 110, 111, 112, 113, 115, 116, 117, 119–20, 121, 129, 132, 135, 139, 143–45, 157, 164, 169–73, 174, 176, 177, 184, 185, 187, 213, 214, 215, 221, 232, 233, 237, 244–48, 257; with adults, 37, 43, 52; as ideal of personhood, 129, 143; as negative, 144, 188; as positive, 144, 188; as side constraint, 129, 143, 144, 177, 215. See also Parental autonomy Autopsies, 223–27 Baby Doe, 1 Basic interests, 2, 3, 4, 17, 36, 41, 47–50, 53, 82, 83, 84, 106, 107, 108, 115, 117, 118–45, 150, 157, 160, 162, 163, 170, 194, 202, 245, 258. See also Primary goods Beauchamp, Tom L., 37; and James F. Childress, 53, 61, 65, 69, 133, 279n31, 281n10, 293n25 Belloc, Hillarie, and Cecil Chesterton, 88–90 Beneficence, 2–3, 6, 10, 35, 36, 37–38, 41, 45, 46, 50, 52, 54, 55, 59, 61, 84, 85, 102, 105, 110, 111, 112, 117, 119, 120, 121, 143–45, 169, 174, 175, 177, 184, 185, 189, 190, 196, 205, 207, 221, 232, 233, 237, 244–48, 249, 264; as mediated 34–37, 51, 70, 77, 83, 120, 164 Benevolence, 26, 28, 35, 41, 44, 45, 46, 47, 191, 202, 205, 206, 209, 271. See also Duties, imperfect Bioethics, 1–2, 7, 11, 24, 268; “ethics-distant,” 7–8, 11, 268; “ethics-near,” 7–8, 11, 268; and ethnography, 8–13; methodology in, 6–13; regarding adults, 2, 3, 10; regarding children, 3, 4, 5, 10, 24 Blustein, Jeffrey, 42 Bone marrow transplantation (BMT), 149, 150, 153, 154, 155, 163 Buchanan, Allen, and Dan Brock, 65–71, 171; “corrected preference account” of competence , 67 Burke, Edmund, 88–90, 97 Calibration, 84, 164–65, 171, 180, 252, 253, 267, 286n64 Calvin, John, 155, 161; Institutes of the Christian Religion, 155 Caplan, Arthur, 231 Care, 11, 25–34, 45–46, 47, 63, 119, 153, 154, 269–74; as an obligation, 27–30, 34; sense of, 269–70; as a special duty, 30–33. See also Agape; Altruism; Beneficence; Charity; Duty to care; Love Casuistry, 9, 207, 211, 214, 232–33. See also Practical reasoning Chambliss, Daniel, 7 Charity, 161, 163, 203, 205, 218, 219. See also Agape; Altruism; Care; Duty to care; Love Children, 5, 25, 41, 84–85; age of consent, 64, 71–76; assent, 71, 76–79; and bioethics, 2–3; competent and incompetent, 106–117, 243–48; as dependent, 30, 42; and development , 3, 5–6, 10, 61–62, 71, 84–85, 164–66, 252–53, 256; and environmental hazards, 258–65; as future citizens, 274; locus of control, 72; and paternalism, 62–83; as powerless, 248; and primary goods, 32, 47–50; as protoautonomous, 53, 61; proxy consent, 105–106, 117; and research, 238–67; rights, 41–45, 47–50, 84; and society ’s obligations, 3–4; as special, 4 302 | Index Childress, James F., 37, 129, 210, 213, 293n25. See also Beauchamp, Tom L., and James F. Childress Clinton, Hillary Rodham, 82, 118 Committee on Bioethics of The American Academy of Pediatrics, 74, 76, 77 Competence, 53, 61, 63–76, 91–98, 119, 164, 169–73, 243–48; basic threshold approach, 65, 69; with children, 106–117, 162–63; former, 96, 100, 103, 104, 106, 116; sliding scale approach, 65–69; standards of vs. burdens of, 67–69. See also Incompetence Consent, 30, 33–34, 50, 54, 56, 58, 59, 60, 64, 66, 69, 71–74, 91, 99, 108, 175–76, 177, 190, 225, 226, 229, 233, 234, 243–48, 263, 267; and children, 71–76; and legitimation, 229, 233–34. See also...