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Alzheimer disease afflicts more than twelve million people worldwide, and its incidence is increasing at a staggering rate. People with the disorder are living longer than have those in previous generations, and they require interventions for quality-of-life issues associated with palliative care. However, the symptoms of Alzheimer disease often fail to place such persons into settings where palliative care resources are available to them. Indeed, clinicians and other caregivers may be unsure about what constitutes effective palliation in these cases. At the same time, the ethical issues involved in providing end-of-life care to persons with Alzheimer disease remain on the margins of mainstream bioethics. In Ethical Foundations of Palliative Care for Alzheimer Disease, leading ethicists and clinicians from the United States and Europe explore ethical and scientific concerns about the diagnosis and prognosis of Alzheimer disease, challenges arising from applying palliative procedures to its symptoms, key philosophical and theological concepts central to our understanding of the disease and to end-of-life decisions, and the changing patterns of relevant medical, social, and economic policies. Cross-cultural, multidisciplinary, and state-of-the-art, this volume is a unique and important resource for bioethicists, clinicians, and policy makers everywhere. Contributors: David A. Bennahum, M.D., University of New Mexico; Pierre Boitte, Ph.D., Catholic University of Lille, France; Roger A. Brumback, M.D., Creighton University Medical Center; Wim J. M. Dekkers, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Elizabeth Furlong, R.N., Ph.D., J.D., Creighton University Medical Center; Eugenijus Gefenas, M.D., Ph.D., Vilnius University, Lithuania; Bert Gordijn, Ph.D., University Medical Centre Nijmegen, The Netherlands; Amy M. Haddad, R.N., Ph.D., Creighton University Medical Center; Søren Holm, M.D., Ph.D., Dr.Med.Sci., University of Manchester; Franz J. Illhardt, D.D., Ph.D., Freiburg University; Rien Janssens, Ph.D., University Medical Centre Nijmegen, The Netherlands; Givi Javashvili, M.D., Ph.D., State Medical Academy of Georgia, Tbilisi; Judith Lee Kissell, Ph.D., Creighton University Medical Center; Gunilla Nordenram, D.D.S., Ph.D., Karolinska Institute, Stockholm; Richard L. O'Brien, M.D., Creighton University Medical Center; Marcel G. M. Olde Rikkert, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Winifred J. Ellenchild Pinch, R.N., Ed.D., Creighton University Medical Center; Patricio F. Reyes, M.D., Creighton University Medical Center; Anne-Sophie Rigaud, M.D., Ph.D., Hôpital Broca, Paris; Linda S. Scheirton, Ph.D., Creighton University Medical Center; Jos V. M. Welie, M.Med.S., J.D., Ph.D., Creighton University Medical Center.

Table of Contents

  1. Cover [Includes Copyright and Title Pages]
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  1. Contents
  2. pp. v-viii
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  1. Foreword
  2. pp. ix-xi
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  1. Preface
  2. pp. xiii-xvi
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  1. Acknowledgments
  2. pp. xvii-xviii
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  1. List of Contributors
  2. pp. xix-xxi
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  1. Introduction: Historical Overview of a Current Global Challenge
  2. pp. 1-4
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  1. Part I: The Health Care Challenge of Alzheimer Disease: Basic Societal, Pathological, and Clinical Issues
  2. p. 5
  1. ONE: Darkness Cometh: Personal, Social, and Economic Burdens of Alzheimer Disease
  2. pp. 7-23
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  1. TWO: Neuropathology and Symptomatology in Alzheimer Disease: Implications for Caregiving and Competence
  2. pp. 24-46
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  1. THREE: The Clinical Challenge of Uncertain Diagnosis and Prognosis in Patients with Dementia
  2. pp. 47-58
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  1. Part II: European Voices on U.S. and European Models of Palliative Care
  2. p. 59
  1. FOUR: Expanding the Scope of Palliative Care
  2. pp. 61-79
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  1. FIVE: Hospital-based Palliative Care and Dementia, or What Do We Treat Patients For and How Do We Do It?
  2. pp. 80-96
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  1. SIX: Elderly Persons with Advanced Dementia: An Opportunity for a Palliative Culture in Medicine
  2. pp. 97-111
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  1. Part III: Philosophical and Theological Explorations
  2. p. 113
  1. SEVEN: Autonomy and the Lived Body in Cases of Severe Dementia
  2. pp. 115-130
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  1. EIGHT: The Moral Self as Patient
  2. pp. 131-145
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  1. NINE: The Practice of Palliative Care and the Theory of Medical Ethics: Alzheimer Disease as an Example
  2. pp. 146-159
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  1. Part IV: Clinical Ethics Issues: Focus on Patients and Caregivers
  2. p. 161
  1. TEN: The Tendency of Contemporary Decision-making Strategies to Deny the Condition of Alzheimer Disease
  2. pp. 163-180
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  1. ELEVEN: Advance Directives and End-of-Life Decision Making in Alzheimer Disease: Practical Challenges
  2. pp. 181-199
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  1. TWELVE: Saying No to Patients with Alzheimer Disease: Rethinking Relations among Personhood, Autonomy, and World
  2. pp. 200-217
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  1. THIRTEEN: The Ethical Challenge of Treating Pain in Alzheimer Disease: A Dental Case
  2. pp. 218-225
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  1. FOURTEEN: Alzheimer Disease and Euthanasia
  2. pp. 226-239
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  1. Part V: Organizational Ethics Issues: Educational Initiatives, Laws, and Allocation Decisions
  2. p. 241
  1. FIFTEEN: The Role of Nurses and Nursing Education in the Palliative Care of Patients and Their Families
  2. pp. 243-260
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  1. SIXTEEN: Ethical Dimensions of Alzheimer Disease Decision Making: The Need for Early Patient and Family Education
  2. pp. 261-277
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  1. SEVENTEEN: Changing Patterns of Protection and Care for Incapacitated Adults: Perspectives from a European Society in Transition
  2. pp. 278-289
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  1. EIGHTEEN: Social Marginalization of Persons with Disability: Justice Considerations for Alzheimer Disease
  2. pp. 290-304
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  1. Commentary on Part V: A Clinician’s Commentary from a Post-Soviet Society on Organizational Issues of Care for Alzheimer Disease
  2. pp. 305-308
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  1. Part VI: Research Underpinnings for an Ethical Model of Palliative Care
  2. p. 309
  1. NINETEEN: Biomedical Research in Alzheimer Disease
  2. pp. 311-319
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  1. TWENTY: Conducting Research in the Alzheimer Disease Population: Balancing Individual, Group, Family, and Societal Interests
  2. pp. 320-329
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  1. TWENTY-ONE: Drugs and Dementia: Pharmacotherapy and Decision Making by Primary Caregivers
  2. pp. 330-342
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  1. Appendix A. The Declaration of Berg en Dal on Ethical Principles Guiding Palliative Care of Persons with Alzheimer’s Disease
  2. pp. 343-347
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  1. Appendix B. Framework for an Educational Module for Health Professionals
  2. pp. 348-353
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  1. Index
  2. pp. 355-368
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Additional Information

ISBN
9781421403687
Related ISBN
9780801898396
MARC Record
OCLC
298012651
Pages
396
Launched on MUSE
2012-01-01
Language
English
Open Access
No
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