Living with Brain Injury
Narrative, Community, and Women’s Renegotiation of Identity
Publication Year: 2013
Published by: NYU Press
The Greeks warned against counting anyone lucky before he or she was safely dead. Well, Homeric gods, I am very lucky in the friends, collaborators, exemplars, and advisors who have contributed so much to this project (and my life). First before firsts, I owe ultrahumble thanks...
When Nancy was in her late twenties she began having blinding headaches, tunnel vision, and dizziness, which led to a diagnosis of a congenital arterial malformation on her brain stem. Surgery was scheduled and she wrapped projects at her job as a financial consultant, assuming...
1. People and Methodology
The first interviews conducted for this study were with Rose and Cindy, both of whom asked many questions about the study, its aims and methods. Both women also offered specific advice about how I should (and shouldn’t) proceed. Cindy, who had conducted life history research on...
2. Meeting Post-Injury
There is no universal rehabilitation experience. The site and severity of brain injuries vary greatly, as do the effects those injuries will have in the short and long runs, and these are difficult to predict (Doidge, 2007; Lezak, Howeisen & Loring, 2004). Diversity defines pre-injury,...
3. Oneself as Another
I have already drawn attention to ways in which the pre-injury self figures into the women’s accounts and in their experiences in rehabilitation. This presence, and the kinds of opposition or breach it may configure between the post-injury experience and pre-injury self, can play...
The fight in recovery and rehabilitation is the fight to recover prior functioning. The self or identity that figures prominently is that of the pre-injury person, along with the even more supernatural future fully restored person. What formal rehabilitation often doesn’t offer or support...
5. Sense (and Sensibility) of Community
Tobin Siebers (2008) makes the point that “oppressed social locations create identities and perspectives, embodiments and feelings, histories and experiences that stand outside of and offer valuable knowledge about the powerful ideologies that seem to enclose us” (8). The cultural...
6. Wrestling with an Angel
Most of the women discussed spiritual or religious commitments, beliefs, and/or communities as important to their identity and their recovery. Tracy was regular churchgoer and believer but didn’t see a connection between that and her injuries; the car accident was “just one...
People with brain injury are most often spoken about by others, in the terms of others and in relation to the concerns and interests of others. Whether as intention or effect, the perspectives and vocabularies— just the third person-ness—of these representations problematize and...
Appendix: Brief Summary of Participants’ Demographics and Injuries
About the Author
Page Count: 256
Publication Year: 2013
OCLC Number: 862135527
MUSE Marc Record: Download for Living with Brain Injury