Front Cover

pdf iconDownload PDF
 

Front Matter

Contents

pdf iconDownload PDF

p. v

Acknowledgments

pdf iconDownload PDF

p. vii

read more

Foreword

pdf iconDownload PDF

pp. ix-xi

DURING THE SPAN of my career in medicine, breast cancer has been transformed from a disease that was hidden from family and friends to one that has a public face with a strong advocacy movement. Most women and men have familiarity with the diagnosis and treatment of breast cancer based on frequent newspaper and magazine articles...

read more

Introduction

pdf iconDownload PDF

pp. 1-17

WHEN EMILY ABEL finished six months of breast cancer surgery, chemotherapy, and radiation in 1993, she assumed her troubles were over. Doctors, friends, and family reassured her. She read scores of triumphalist breast cancer narratives; “Now I’m cured...

read more

“Standing on New Ground”

pdf iconDownload PDF

pp. 19-38

ALTHOUGH MEDICAL RESEARCHERS have begun to investigate a number of posttreatment symptoms, we wanted to know how survivors themselves understood their various complaints. Greta Shaw began by discussing a problem that is virtually absent from the existing literature...

read more

“We Saved Your Life. Now Leave Us the Hell Alone”

pdf iconDownload PDF

pp. 39-64

PAT GARLAND HAS little good to say about any of the doctors she saw either during or after cancer. When we interviewed her in her small studio apartment, eleven years had elapsed since she learned that a breast lump was malignant. Nevertheless, she vividly recalled that...

read more

Remedying, Managing, and Making Do

pdf iconDownload PDF

pp. 65-80

LEANNE THOMAS NEVER expected doctors to resolve the many health problems she faced after breast cancer treatment. “I’m not one for taking a lot of medications,” she told us. “I’m one for holistic. My family didn’t go to doctors. They had things that you took that you didn’t have to go to doctors for, natural things.” Physicians...

read more

“Like Talking to a Wall”

pdf iconDownload PDF

pp. 81-96

THREE AFRICAN AMERICAN women met during a focus group to discuss the ways breast cancer affects social relationships both during and after therapy. Ida Jaffe began: My family was very supportive in helping me. My husband was very supportive, and I have two daughters, and they were just right there for me. But I did have an experience with a so-called...

read more

Narrowed Lives

pdf iconDownload PDF

pp. 97-117

ALTHOUGH ROSE JENSEN used to work as an engineer, she is now an office manager. Interviewed during two successive lunch hours, she began by explaining why she has a job far beneath her ambitions and qualifications: I went from someone who kept phenomenal amounts of very sophisticated, concrete data in my head...

read more

“Turning a Bad Experience into Something Good”

pdf iconDownload PDF

pp. 119-137

BECAUSE MARGE BARLOW was writing a Ph.D. dissertation while undergoing breast cancer therapy, her memory loss was especially troubling. But during our long conversation in her tiny Craftsman-style house, we realized that she is more likely to be derailed by an expanded sense of self than by a diminished...

read more

Conclusion

pdf iconDownload PDF

pp. 139-142

“THE HEALING PROCESS begins,” according to physician Rita Charon, “when patients tell of symptoms or even fears of illness—first to themselves, then to loved ones, and finally to health professionals.”1 In the stories we heard, that process was badly flawed. The primary response of “loved ones” was to urge...

read more

Epilogue

pdf iconDownload PDF

pp. 143-148

BECAUSE POSTTREATMENT SYMPTOMS are long-term, we wanted to know how they change over time. In the spring of 2007, approximately five years after the initial interviews, we spoke again to ten of the eleven women who figure most prominently in this book. (The remaining woman could not be contacted.) Only one...

Appendix

pdf iconDownload PDF

pp. 149-152

Notes

pdf iconDownload PDF

pp. 153-167

Index

pdf iconDownload PDF

pp. 169-181

About the Authors

pdf iconDownload PDF

p. 183