In this Book
- Palliative Care for Infants, Children, and Adolescents: A Practical Handbook
- Book
- 2011
- Published by: Johns Hopkins University Press
summary
There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume.Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips.With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
Table of Contents
Download Full Book
- List of Contributors
- pp. ix-xiii
- PART I: SOCIETAL AND INSTITUTIONAL ISSUES
- 4. Educational Initiatives
- pp. 85-113
- 5. The Art of Advocacy
- pp. 114-136
- PART II: THE CYCLE OF CARE
- 6. Decision Making
- pp. 139-168
- 9. Spiritual Dimensions
- pp. 227-243
- 10. Holistic Management of Symptoms
- pp. 244-274
- 11. Bereavement
- pp. 275-308
- PART III: SPECIAL CARE ENVIRONMENTS AND PATIENT POPULATIONS
Additional Information
ISBN
9781421402130
Related ISBN(s)
9781421401485
MARC Record
OCLC
794700385
Pages
560
Launched on MUSE
2012-01-01
Language
English
Open Access
No