In this Book

  • Palliative Care for Infants, Children, and Adolescents: A Practical Handbook
  • Book
  • edited by Brian S. Carter, M.D., Marcia Levetown, M.D., and Sarah E. Friebert, M.D.
  • 2011
  • Published by: Johns Hopkins University Press
buy this book Buy This Book in Print
summary
There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume.Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips.With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Table of Contents

restricted access Download Full Book
  1. Cover
  2. restricted access
    • Download PDF Download
  1. Contents
  2. pp. vii-viii
  3. restricted access
    • Download PDF Download
  1. List of Contributors
  2. pp. ix-xiii
  3. restricted access
    • Download PDF Download
  1. Preface
  2. pp. xv-xvi
  3. restricted access
    • Download PDF Download
  1. PART I: SOCIETAL AND INSTITUTIONAL ISSUES
  1. 1. Epidemiology and Health Services Research
  2. pp. 3-25
  3. restricted access
    • Download PDF Download
  1. 2. Goals, Values, and Conflict Resolution
  2. pp. 26-55
  3. restricted access
    • Download PDF Download
  1. 3. Barriers to Integrating Palliative Care and Potential Solutions
  2. pp. 56-84
  3. restricted access
    • Download PDF Download
  1. 4. Educational Initiatives
  2. pp. 85-113
  3. restricted access
    • Download PDF Download
  1. 5. The Art of Advocacy
  2. pp. 114-136
  3. restricted access
    • Download PDF Download
  1. PART II: THE CYCLE OF CARE
  1. 6. Decision Making
  2. pp. 139-168
  3. restricted access
    • Download PDF Download
  1. 7. Communication Skills and Relational Abilities
  2. pp. 169-201
  3. restricted access
    • Download PDF Download
  1. 8. Psychosocial Needs of the Child and Family
  2. pp. 202-226
  3. restricted access
    • Download PDF Download
  1. 9. Spiritual Dimensions
  2. pp. 227-243
  3. restricted access
    • Download PDF Download
  1. 10. Holistic Management of Symptoms
  2. pp. 244-274
  3. restricted access
    • Download PDF Download
  1. 11. Bereavement
  2. pp. 275-308
  3. restricted access
    • Download PDF Download
  1. 12. The Other Side of Caring: Caregiver Suffering
  2. pp. 309-342
  3. restricted access
    • Download PDF Download
  1. PART III: SPECIAL CARE ENVIRONMENTS AND PATIENT POPULATIONS
  1. 13. Palliative Care in the Neonatal-Perinatal Period
  2. pp. 345-386
  3. restricted access
    • Download PDF Download
  1. 14. Palliative Care in the Pediatric Intensive Care Setting
  2. pp. 387-413
  3. restricted access
    • Download PDF Download
  1. 15. Palliative Care in the Home, School, and Community
  2. pp. 414-440
  3. restricted access
    • Download PDF Download
  1. 16. Palliative Care for the Child Who Has a Genetic Condition
  2. pp. 441-464
  3. restricted access
    • Download PDF Download
  1. 17. Integrating Palliative Care with HIV Care and Treatment
  2. pp. 465-487
  3. restricted access
    • Download PDF Download
  1. 18. Integrating Palliative Care with Pediatric Hematology/Oncology
  2. pp. 488-520
  3. restricted access
    • Download PDF Download
  1. Index
  2. pp. 521-539
  3. restricted access
    • Download PDF Download
Back To Top

This website uses cookies to ensure you get the best experience on our website. Without cookies your experience may not be seamless.