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There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV / AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care. Praise for the first edition "An inspiring and accessible look at what end-of-life care for children should be—it is a text that should grace the shelf of every clinician facing the death of young patients."—Journal of the American Academy of Child and Adolescent Psychiatry "A great resource and learning tool . . . well written, well organized, very practical, and user friendly as a reference for all disciplines involved with palliative care."—American Academy of Pediatrics Newsletter "This book is rich with palliative care experts’ knowledge as well as humbling experiences of children and their families undergoing the latest stages of a life-threatening illness, the dying process, the death, and finally bereavement. Every chapter is written with a high degree of expertise and the authors’ compassion is ever present."—Journal of Palliative Medicine

Table of Contents

  1. Cover
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  1. Contents
  2. pp. vii-viii
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  1. List of Contributors
  2. pp. ix-xiii
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  1. Preface
  2. pp. xv-xvi
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  1. PART I: SOCIETAL AND INSTITUTIONAL ISSUES
  2. p. 1
  1. 1. Epidemiology and Health Services Research
  2. pp. 3-25
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  1. 2. Goals, Values, and Conflict Resolution
  2. pp. 26-55
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  1. 3. Barriers to Integrating Palliative Care and Potential Solutions
  2. pp. 56-84
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  1. 4. Educational Initiatives
  2. pp. 85-113
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  1. 5. The Art of Advocacy
  2. pp. 114-136
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  1. PART II: THE CYCLE OF CARE
  2. p. 137
  1. 6. Decision Making
  2. pp. 139-168
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  1. 7. Communication Skills and Relational Abilities
  2. pp. 169-201
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  1. 8. Psychosocial Needs of the Child and Family
  2. pp. 202-226
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  1. 9. Spiritual Dimensions
  2. pp. 227-243
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  1. 10. Holistic Management of Symptoms
  2. pp. 244-274
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  1. 11. Bereavement
  2. pp. 275-308
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  1. 12. The Other Side of Caring: Caregiver Suffering
  2. pp. 309-342
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  1. PART III: SPECIAL CARE ENVIRONMENTS AND PATIENT POPULATIONS
  2. p. 343
  1. 13. Palliative Care in the Neonatal-Perinatal Period
  2. pp. 345-386
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  1. 14. Palliative Care in the Pediatric Intensive Care Setting
  2. pp. 387-413
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  1. 15. Palliative Care in the Home, School, and Community
  2. pp. 414-440
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  1. 16. Palliative Care for the Child Who Has a Genetic Condition
  2. pp. 441-464
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  1. 17. Integrating Palliative Care with HIV Care and Treatment
  2. pp. 465-487
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  1. 18. Integrating Palliative Care with Pediatric Hematology/Oncology
  2. pp. 488-520
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  1. Index
  2. pp. 521-539
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Additional Information

ISBN
9781421402130
Related ISBN
9781421401492
MARC Record
OCLC
794700385
Pages
576
Launched on MUSE
2012-01-01
Language
English
Open Access
No
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